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Preventing Caregiver Burnout

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NephCure Patient Summit 2023

Jessica Patay is the founder and executive director of We Are Brave Together (WABT) and a champion of self-care practices and their positive effect on caregivers.

During the 2023 NephCure Patient Summit, Jessica discussed how to combat the isolation and burnout that accompanies caring for loved ones with serious, rare, and chronic conditions.

Listen in to hear how creating supportive, resourceful, and empowering communities and meaningful connections can strengthen and equip you and your family to cope for the long haul!

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

The New Landscape | Patient Summit Seminar with Dr. Wadhwani
Video

The New Landscape | Patient Summit Seminar with Dr. Wadhwani

Educational Materials

School Accomodations

ALL RESOURCES

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