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Mental Health Patient and Caregiver Panel

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Join NephCure for a mental health-focused patient panel. Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys.

Our panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Low Phosphorus Diet Guidelines: For Patients with Rare Kidney Disease

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

The History & Innovation of C3G: Patient Summit Seminar with Dr. Corey Cavanaugh

Educational Materials

School Accomodations

ALL RESOURCES

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