In celebration and recognition of National Kidney Month, we’re devoting this period to sharing stories, research news, and educational opportunities specifically for communities of color and other diverse and underrepresented groups who are affected by rare, protein-spilling kidney diseases. Our focus now and always is on keeping kidneys healthy for all the members of our rare disease community.
Don’t miss these upcoming events:
- Thursday, March 4 at 7pm ET: “Rare Kidney Disease Requires Rare Expertise” – In partnership with Black Health Matters and with support from Travere Therapeutics
- Thursday, March 25 at 7pm ET: “Living Your Best Life with FSGS Kidney Disease” – In partnership with Black Health Matters and with support from Travere Therapeutics
Check out some patient stories:
- Aries Merritt – Overcoming Hurdles
- Briana’s Journey with FSGS
- Finding the Beauty in Kidney Disease: Keyaira’s Story
- Fourth Doctor is the Charm: Kevin’s Journey to the Correct Diagnosis
- Sabrina’s Journey with Minimal Change Disease
- Stephanie’s Journey with Nephrotic Syndrome
Get up to speed on the latest education, research, and commentary:
- An Inside Look: Vertex’s Study in APOL1-FSGS
- APOL1 FSGS Kidney Disease Fact Sheet
- Ask the Expert: Dr. Rasheed Gbadegesin
- The Genetic FSGS Discovery Trailblazing Possible Kidney Disease Treatment
- NephCure U: APOL1 with Dr. Jeffrey Kopp
Make sure to visit our Facebook page to see more resources and information, including our “The Doctor is In” social media campaign.