Join the NephCure Action Network

The NephCure Action Network (NCAN) is a movement of patients with rare kidney disease and their caregivers, physicians, and partner organizations who all have one goal: to save kidneys and save lives through lasting legislative and policy improvements.

We believe that activated, educated, and empowered patients, families, and allies are powerful voices in developing policies and procedures that optimize care and treatment for the rare kidney disease population.

By joining this coalition, you’ll be invited to attend various educational opportunities to learn how to effectively fight for rare kidney disease patients, stay informed on our latest advocacy work, and receive time-sensitive action alerts for opportunities to raise your voice and help policymakers understand what’s important to those directly impacted by rare kidney disease.