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Finding the Right Doctor

Having a good doctor-patient relationship is crucial for managing the challenges that come with Rare Kidney Disease. With the right doctor by your side, you can feel more confident and supported in your health journey, which can make a big difference in your overall well-being.

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The Right Kidney Doctor Is:

  • Knowledgeable about your specific kidney disease
  • An active listener
  • Informed about recent kidney disease research and clinical trials
  • Takes time to answer your questions and concerns
  • Easily accessible
  • Honest, factual and provides a great bedside manner
  • Willing to have tough conversations with you
  • Acknowledges your role as an active member of your care
  • Includes you in the care-planning process and integrates your goals into your care plan

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Low Phosphorus Diet Guidelines: For Patients with Rare Kidney Disease

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

The History & Innovation of C3G: Patient Summit Seminar with Dr. Corey Cavanaugh

Educational Materials

School Accomodations

ALL RESOURCES

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