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Finding the Right Doctor

Having a good doctor-patient relationship is crucial for managing the challenges that come with Rare Kidney Disease. With the right doctor by your side, you can feel more confident and supported in your health journey, which can make a big difference in your overall well-being.

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The Right Kidney Doctor Is:

  • Knowledgeable about your specific kidney disease
  • An active listener
  • Informed about recent kidney disease research and clinical trials
  • Takes time to answer your questions and concerns
  • Easily accessible
  • Honest, factual and provides a great bedside manner
  • Willing to have tough conversations with you
  • Acknowledges your role as an active member of your care
  • Includes you in the care-planning process and integrates your goals into your care plan
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Find Your NephCure Specialist Today

It’s essential to partner with a nephrologist who specializes in RKD and can offer personalized guidance tailored to your unique health needs and evolving treatment options. NephCure offers a carefully curated list of NephCure Specialists across the country who are ready to support you.

Find Your Nephcure specialist

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

The New Landscape | Patient Summit Seminar with Dr. Wadhwani
Video

The New Landscape | Patient Summit Seminar with Dr. Wadhwani

Educational Materials

School Accomodations

ALL RESOURCES

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