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Understanding Primary Nephrotic Syndrome

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NEPHROTIC WHAT..?”

Some symptoms of nephrotic syndrome include:

Proteinuria- Large amounts of protein ‘spilling’ into the urine

Edema – Swelling in parts of the body, most noticeable around the eyes, hands, and feet that become painful

Hypercholesterolemia – High level of cholesterol

Hypertension – High blood pressure

Hypoalbuminemia – Low levels of albumin in the blood

Someone who is experiencing these symptoms but has not had a kidney biopsy is diagnosed with nephrotic syndrome. To learn more about what is causing a patient’s nephrotic syndrome, doctors may choose to perform a kidney biopsy. After biopsy, a patient is usually diagnosed more specifically, based on what can be seen under the microscope.

The common diagnoses are:


Focal Segmental Glomerulosclerosis (FSGS):
Some sections of kidney filters show scarring.


Minimal Change Disease:
Kidney tissue shows very little change from normal kidney tissue.


Membranous Nephropathy:
Immune system attacks kidney tissues and damages filtering units.


Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

The New Landscape | Patient Summit Seminar with Dr. Wadhwani
Video

The New Landscape | Patient Summit Seminar with Dr. Wadhwani

Educational Materials

School Accomodations

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