RESOURCES

/

FIND A SPECIALIST

/

CONTACT

Turning Adversity Into Action | Patient Summit Seminar on Advocacy for RKD

Headline decoration line

Click to Watch…

During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Britta Dornan, NephCure’s Executive Director of Strategic Relations, hosted a panel with Texas Senator Kelly Hancock, Mary Baliker, Lisa Cimino, and Kimberly Queen surrounding their journey with RKD and how to turn their adversity from their disease into actionable cause.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Patient Empowerment Flyer

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

The New Landscape | Patient Summit Seminar with Dr. Wadhwani
Video

The New Landscape | Patient Summit Seminar with Dr. Wadhwani

Educational Materials

School Accomodations

ALL RESOURCES

Sign up to get NephCure’s latest updates.

SIGN UP
This field is for validation purposes and should be left unchanged.