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Nephrotic Syndrome
Ayeza B.
My daughter’s name is Ayeza. She was diagnosed with CNS at only 1.5 months old. The doctor told us that children with this disease only survive until they are maximum 2.5 years old. Immediately they started her on medications and at the age of 4 she diagnoses kidney disease. And she was referred for dialysis. After 4 months of dialysis, we started her kidney transplant process. As her father I am in hope that she gets the kidney transplant without augmentation. Once the reflux clears up, I will hopefully be able to donate my kidney to her in the meantime ... Read more
Focal Segmental Glomerulosclerosis (FSGS)
Salina G.
Like many other people around the globe, spring of 2020 changed my life forever but, it was not solely because of Covid-19. While we were processing the premature death of several people within our community of friends, my body began to feel very different. Until this point I had been a fairly healthy person. In April 2020, for the first time I began to feel extremely fatigued and I noticed that my urine was very foamy, almost like the top of a beer. After about a month things seemed to get worse. I scheduled an appointment with my primary care ... Read more
Nephrotic Syndrome
Sawyer R.
Sawyer’s journey began at the tender age of 4, marked by distressing symptoms that initially led to a diagnosis of constipation. However, a persistent feeling urged her family to delve deeper into her health concerns. A pivotal moment came when Sawyer’s body began to swell, prompting urgent action and a trip to the local military hospital ER. In the wee hours of the morning, the diagnosis was confirmed: nephrotic syndrome. Suddenly, an article glimpsed online became a roadmap for their journey, a journey filled with uncertainty and determination. Through every trial and triumph, they’ve emerged stronger, united in their fight ... Read more
Focal Segmental Glomerulosclerosis (FSGS)
Imani M.
In 2016, at the age of 23, Imani Mintz received a diagnosis of FSGS. Following a comprehensive blood panel, the results indicated that Imani had stage 3b kidney disease. After an extensive investigation to rule out other diseases, such as lupus, and a biopsy, Imani was officially diagnosed with FSGS. Imani grappled with intense fatigue, initially attributing it to job-related stress. Additionally, she observed foam in her urine. The challenges of undergoing dialysis for nearly two years took a toll on Imani, making it challenging to maintain employment and relationships. “I often found myself having to undergo dialysis on days ... Read more
