Nephrotic Syndrome and COVID-19 – Updated Guidelines

While the past few months have brought a great deal of confusion, pain, and discomfort to the entire world, we understand the thirst for information is just as prevalent now as it was at the start of the COVID-19 pandemic.

As new research is coming out and guidelines are seemingly changing every day, NephCure is here to help you and other patients with protein-spilling kidney diseases navigate the unknown. We continue to advise you to consult with your physician to design your own protection plan, as every patient’s situation is unique.

No matter your age, if you have chronic kidney disease at any stage or have received an organ transplant, the CDC has clearly outlined and our NephCure Specialists agree that you are at an increased risk for complications from the COVID-19 virus.

We recognize that while your physical health is important, your mental, social, and financial health are also a priority. We encourage you to talk to your doctor, family, and support system to devise a plan you feel comfortable with as you decide when and how to re-enter society.

In the words of Dr. Anthony Fauci, “If it looks like you’re overreacting, you’re probably doing the right thing.” Ultimately, until a vaccine is found, we urge you to follow all precautionary steps recommended by the CDC to decrease your chance of getting COVID-19 infection.

We are in regular communication with our NephCure Specialists to help find the answers you need. We will keep you updated as we receive new information in the coming weeks and months.

As you develop your protection plan, here are some key points to remember:

• Consult with your personal nephrologist and family to create a plan that is right for you.

• Review the most current guidelines from the CDC.

• Your risk may vary depending on the community spread within your region. Search for your county using this map and check with your local health department for information relevant to your location.

This statement was prepared with input from NephCure Specialists:

Ambarish Athavale, MBBS, MD
Lawrence Holzman, MD
Elaine Kamil, MD
Ali Poyan Mehr, MD