Make your voice heard. March on Capitol Hill. Write letters to your congressperson about living with chronic kidney disease. Respond to NKI Advocacy Alerts to increase funding for research. Attend Advocacy Day. There’s no better way to champion our cause than flexing your rights when it comes to your quality of life. Our Advocacy Volunteers pay attention to the process and act on it.
Set up a meeting:
Summer is a good time to engage in grassroots advocacy while legislators are in their local districts and states. Schedule a meeting with your Representative and Senators, or attend their events, and tell them about why increasing funding for Nephrotic Syndrome research is important.
Attend an event:
Many representatives hold town hall meetings or other events while they are in their home districts. Check their websites for events to attend.
Send an email:
Emails are a great way to tell your elected officials about what they can do to improve the lives of people with Nephrotic Syndrome. They can also be useful as a follow-up after in-person meetings to maintain the relationship you established during the meeting.
Participate in an Advocacy Day
CLICK HERE for information about Advocacy Day 2017.
Advocacy Day is an amazing opportunity to engage with your legislators on behalf of everyone who is impacted by Nephrotic Syndrome diseases.
Here are some pictures from Advocacy Day 2015
How to: meeting with legislators
Talking points for meetings and events
Click here for a sample email
NKI Legislative Asks (to leave behind at meetings, or attach to emails)
FSGS Funding Through the DOD Information (to leave behind at meetings, or attach to emails)
Kidney Disease by the Numbers – Stats by State from ASN
Action Alert, HealthCare Reform – Information about what patient protections are essential for healthcare reform legislation
Click here for recent Advocacy news