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Marlene Botta is a patient parent in the New York City area. Her daughter, Jacqueline, battles Nephrotic Syndrome. Marlene has done a tremendous amount of work at the state capital in Albany, even securing March 27th as “Nephrotic Syndrome Awareness Day” throughout New York every year. She’s lead the Long Island Walk multiple years and constantly fights for better treatments for those with Nephrotic Syndrome and FSGS. You can contact Marlene at nephcurenewyork@nephcurevolunteer.org.
What’s your personal connection to NephCure?
My daughter was diagnosed with Nephrotic Syndrome in 2016. NephCure has saved my life and my sanity. Without an outlet for my pain, I would have never gotten myself out of bed some mornings. It was a way for me to turn a horrific moment into triumph.
Where do you focus your volunteer efforts with NephCure?
My family and I do a lot of legislative relations in New York state. I speak to large groups about what NephCure does and try to get legislative initiatives to create awareness and raise funds. In addition to that, we do the Long Island NYC walk, which brings together our community and local families and creates a support system for all.
What projects are you working on right now?
I’m currently figuring out how to do my outreach in this post-Covid world. But, I always feel like I’m coming closer to creating a better life for those families afflicted by this insidious disease.
NephCure is local to you. To learn more and get involved within your regional volunteer community, please click here.
