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Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

Focal Segmental Glomerulosclerosis (FSGS)

Imani M.

In 2016, at the age of 23, Imani Mintz received a diagnosis of FSGS. Following a...

Membranous Nephropathy (MN)

Joe H.

My name is Joe Hawkins and I am 59 years old. I am a U.S. Navy veteran and settl...

Membranous Nephropathy (MN)

Dan H.

Dan is from Baltimore, MD. Who is living in Florida and served in the US NAVY fr...

Membranous Nephropathy (MN)

Seferiana D.

Seferiana Day was diagnosed with Primary Membranous Nephropathy and Stage 1 Chro...

Membranous Nephropathy (MN)

Eric H.

Eric is a 54-year-old attorney, musician, husband and father of two teenagers fr...

C3 Glomerulopathy (MPGN)

Chase G.

In 2009, Chase Gallagher, at the age of 8, was diagnosed with Type III MPGN now ...

C3 Glomerulopathy (MPGN)

Lindsey F.

Lindsey Fuller has a rare form of hereditary C3G. Her grandfather died of renal ...

Focal Segmental Glomerulosclerosis (FSGS)

Teleya B.

I have APOL 1-Associated FSGS. I was diagnosed when I was 14. For 20 years, I’...

Focal Segmental Glomerulosclerosis (FSGS)

Jorden A.

In 2022, at the age of 24, Jorden Albright-Henighan was diagnosed with chronic k...

Focal Segmental Glomerulosclerosis (FSGS)

Nicholas A.

When I was 17 I was diagnosed with kidney disease called FSGS. This was 1 year a...

Focal Segmental Glomerulosclerosis (FSGS)

Amber H.

When I was eleven years old, I had ongoing swelling that no one could figure out...

Focal Segmental Glomerulosclerosis (FSGS)

Jazrome C.

Jazrome was diagnosed at the age of 29. The onset of the diseased started when h...

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NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care.

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