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Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

C3 Glomerulopathy (MPGN)

Chase G.

In 2009, Chase Gallagher, at the age of 8, was diagnosed with Type III MPGN now known as C3G.  Chase’s primary pediatrician originally misdiagnosed him...

C3 Glomerulopathy (MPGN)

Lindsey F.

Lindsey Fuller has a rare form of hereditary C3G. Her grandfather died of renal failure, and her father had four transplants over the course of 20 years...

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