Home Events Rare Kidney Connect – Los Angeles

Rare Kidney Connect – Los Angeles

Join NephCure and other rare kidney disease patients and caregivers on Saturday, February 3, 2024, from 1:00 to 4:30 p.m. in Los Angeles for a FREE, in-person educational event to learn more about rare, protein-spilling kidney diseases and how to best manage them. Plus, enjoy a low-sodium snack and connect with other rare kidney disease patients in your community.

We invite everyone affected by the following rare kidney diseases to attend:

  • Focal segmental glomerulosclerosis (FSGS)
  • Nephrotic syndrome
  • IgA nephropathy (IgAN)
  • Membranous nephropathy (MN)
  • Minimal change disease (MCD)
  • C3 glomerulonephritis (C3G)/membranoproliferative glomerulonephritis (MPGN)
  • IgM nephropathy (IgMN)


This event will cover topics such as disease education and management, progress in treatments and research, and patient resources. You’ll also hear from a patient panel on coping with rare kidney disease! Register today!

Hourly Schedule

RKC: Los Angeles

12:30pm - 1:00pm
Check In
Mt. Olympus Meeting Room
1:00pm - 1:30pm
Welcome & Introduction
Kimberly Figgs Associate Director, Community Engagement
1:30pm - 2:45pm
Rare, Protein-Spilling Kidney Disease: What Every Patient Should Know
Dr. Anjay Rastogi, Adult Nephrologist & Dr. Dechu Puliyanda, Pediatric Nephrologist
2:45pm - 3:00pm
3:00pm - 3:15pm
Benefits of an Empowered Patient
Kimberly Figgs Associate Director, Community Engagement
3:15pm - 4:15pm
Managing Rare Kidney Disease - Patient Panel
4:15pm - 4:45pm
Patient Connection Time


Feb 03 2024


1:00 pm - 4:30 pm

Local Time

  • Timezone: America/New_York
  • Date: Feb 03 2024
  • Time: 4:00 pm - 7:30 pm

More Info



Loews Hollywood Hotel
1755 N Highland Avenue Los Angeles, CA 90028


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