2020 Virtual Programming Recordings
Chats with Nurse Kristen – a twice per month opportunity to hear from our resident health expert on topics like How to Have a Virtual Doc Visit, Adrenal Insufficiency, Medications, Biopsies, and more. This event is ongoing; to learn more about our next session, visit our Events page here. Watch previous sessions below:
NephCure U Series: Physician-hosted Virtual education, with topics like Genetic Testing, Diet & Nutrition, Clinical Trials, IgAN, C3G, Membranous Nephropathy, and more. Our June sessions will be on Renal Diet and APOL1. This event is ongoing; to learn more about our next session, visit our Events page here. Watch previous sessions below:
- May 15 – IgA Nephropathy
- June 8 – Kidney-Friendly Diet
Join us for our NephCure U webinar focusing on kidney-friendly diet options. Dietitian Daniela Safina, MS, RN, LD/N will lead the discussion, providing helping cooking and grocery shopping tips. Please feel free to leave questions below as there will be a Q&A section at the end of the presentation.
Posted by NephCure Kidney International on Monday, June 8, 2020
- June 25 – Kidney Disease in Patients of African Descent: APOL1-Associated Disease
Join us for our free, educational NephCure U webinar focusing on the APOL1 gene and its significance to individuals of African descent.Dr. Jeffrey Kopp of the NIDDK is leadings this session. Please feel free to comment below with your questions!
Posted by NephCure Kidney International on Thursday, June 25, 2020
“Cultivating Resilience During Anxious Times: Strategies for Staying Steady while Navigating COVID-19″ with Dr. Christine Kiesinger. This four part series covered understanding stress, family relationships, cultivating a responsive vs. a reactive mindset, creating your resiliency tool box, and more! Please email Kelly Helm for a link to the recording.
#MondayMotivation Every Monday in April, NephCure hosted a motivational series featuring two FSGS patients as they shared stress management techniques. These techniques include helpful breathing techniques and stretching exercises that can allow you to work through your anxieties and process your feelings in a healthy way. Watch previous sessions below:
US Government Stimulus Package: What Does It Mean for You? A Community Call with Christopher Porter, Vice President of Government Affairs and Policy at Retrophin, Inc. The $2 trillion relief bill (CARES Act) signed March 25, 2020 will send money directly to Americans, greatly expand unemployment coverage and make a number of other changes. In this webinar, Christopher breaks down what this exactly means for those specifically affected by rare diseases like Nephrotic Syndrome.
It’s not too late to hear from experts on a variety of topics relevant
to you and your family! Listen to some of our webinars below and find the rest on our YouTube channel.
Depression and Chronic Illness
FSGS and Pregnancy Webinar
Nephrotic Syndrome 101
Navigating Common Insurance Headaches
Past Regional Symposia
To watch the recordings of the Charlotte symposium talks, see our Youtube Playlist or watch below!