Educational Programs Click Here for Upcoming Educational Programs Back to School Support Webinar 2022 NephCure once again teamed up with GLEAN (Glomerular Disease Learning Network) for a supportive and educational session to help parents prepare for their kids’ return to school. Hear from experts on COVID-19 updates, learn some tips and tricks on kidney-friendly eating from a kidney dietician, and gain valuable insights and advice from a social worker on managing 504 and IEP plans. Watch the recording here. Mental Health and Rare Kidney Disease: Patient and Caregiver Panel Discussion Hear from five patients and a patient parent affected by rare, protein-spilling kidney diseases about their struggles and the coping strategies they’ve developed throughout their journeys. This panel dives deeper into the mental health impacts of living with rare kidney disease and discusses how we can come together as a community to improve resources and support. Watch the recording here. NephCure U NephCure’s series of physician-hosted virtual education! These events are ongoing — to learn about our next session, visit our Events page here. Watch previous sessions below: IgA Nephropathy — 5/15/20 Kidney-Friendly Diet — 6/8/20 Kidney Disease in Patients of African Descent: APOL1-Associated Disease — 6/25/20 Clinical Trials 101: Patients Share Their Experience — 7/23/20 COVID and the Kidneys — 8/11/20 Unraveling the Significance of Genetics in Protein-Spilling Kidney Diseases — 8/19/20 Membranous Nephropathy and You — 9/22/20 Coping with Prednisone — 11/16/20 Transition Care: Pediatric to Adult — 12/16/20 KDIGO Guidelines Explained — 2/9/21 Vaccines Explained — 3/4/21 Steroid and Adrenal Suppression — 5/27/21 Síndrome Nefrótico 101 en Español — 6/10/21 Understanding Your Kidney Biopsy — 7/13/21 Improving Diagnosis with Biomarkers in Kidney Disease — 8/12/21 The Genetics of Rare Kidney Disease — 9/30/21 COVID-19 Update: What we Now Know — 11/17/21 Updates and Trends in Transplant — 2/17/22 Cutting through the Noise: An Inside Look at IgA Nephropathy — 3/31/2022 A New Era of Kidney Care — 6/7/22 How to Manage Your Rare Kidney Disease — 8/10/22 2022 NephCure Patient Summit NephCure held the 2022 Patient Summit on April 28-30, 2022, offering an in-person event at the Walt Disney World Dolphin Resort in Orlando, Florida, and a concurrent virtual Summit hosted on an interactive online platform. Plus, we held the first-ever NephCure Youth Summit with dedicated programming just for kids! See our full list of recorded sessions from the Summit here. Chats with Nurse Kristen A monthly opportunity to hear from our resident health expert. This event is ongoing — to learn more about our next session, visit our Events page here. Watch previous sessions below: Telemedicine — 4/10/20 Blood Pressure — 4/24/20 Foamy Urine — 5/8/20 Special Mental Health Panel — 5/28/20 Getting a Second Opinion — 6/12/20 The Importance of Clinical Research — 6/26/20 Clinical Trials & Safety — 7/10/20 Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD) on FSGS — 8/7/20 Clinical Trial Table — 8/21/20 NephCure Reading Group — 9/4/20 Research Updates — 10/11/20 Rare Kidney Revolution — 10/25/20 Vaccines — 11/11/20 Chat with Pfizer — 12/13/20 NephCure’s COVID-19 FAQs — 1/17/21 Interim Analysis of DUPLEX Study Explained — 2/3/21 COVID-19 Vaccine Update — 3/2/21 Patient Summit Overview & COVID-19 Vaccine Update — 5/12/21 Precision Medicine (with Dr. Frank Czerwiec of Goldfinch Bio) — 6/27/21 PROTECT Study Interim Results and Clinical Trials Outlook – 8/25/21 Back to School Survival Guide: Fall 2021 Returning to school can cause new worries for parents and other caregivers, especially during the age of COVID-19. Watch a recording of our panel of experts discussing safety tips for returning to the classroom this fall! 2021 NephCure Patient Summit The 2021 NephCure Patient Summit took place virtually on May 16, 2021. It was designed to provide a place for patients with all types of protein-spilling kidney disease to gather and learn. This Summit included teaching from specialists about protein-spilling kidney disease, presentations on advancements in glomerular disease, opportunities for patients and caregivers to ask questions, and a chance to connect with other patients and caregivers on similar journeys. You can find the full list of doctor-led breakout session recordings here. Black Health Matters Facebook Live Series Black Health Matters partnered with NephCure, Travere Therapeutics, and Kappa Alpha Psi Fraternity, Inc., to present a three-part Facebook Live series on living with kidney disease. Click below to watch each recording: Part 1: FSGS Diagnostics, Signs, and Symptoms Part 2: How to Get Access to Expert Care Part 3: Living Your Best Life Cultivating Resilience During Anxious Times Series Strategies for Staying Steady While Navigating COVID-19, with Dr. Christine Kiesinger. This four-part series covered understanding stress, dealing with family relationships, cultivating a responsive vs. a reactive mindset, creating your resiliency tool box, and more! Please email firstname.lastname@example.org for links to the recordings. #MondayMotivation Series Every Monday in April 2020, NephCure hosted a motivational series featuring two FSGS patients as they shared stress management techniques, including helpful breathing techniques and stretching exercises that can allow you to work through your anxieties and process your feelings in a healthy way. Watch these sessions below: April 6 April 13 April 20 April 27 Ask An Expert Webinar Series It’s not too late to hear from experts on a variety of topics relevant to you and your family! Listen to some of our webinars below and find the rest on our YouTube channel. Depression and Chronic Illness Complementary Therapies FSGS and Pregnancy Webinar Nephrotic Syndrome 101 Navigating Common Insurance Headaches Past Regional Symposia To watch the recordings of the Charlotte symposium talks, see our Youtube playlist or watch below! Pediatric Nephrotic Syndrome: Forward Motion – Dr. Susan Massengill Ethics of Renal Transplant – Dr. Benjamin Hippen The Role of Complement in Nephrotic Syndrome – Dr. Carla Nester Recurrent Glomerular Disease in Renal Transplant – Dr. Karin True Genetic Risk Factors for Childhood Nephrotic Syndrome & Response to Therapy – Dr. Rasheed Gbadegesin APOL1-Associated Nephropathy: Pathology, Mechanisms, and Clinical Utility – Dr. Barry Freedman For even more educational offerings, visit NephCure’s YouTube channel.