Advocacy Day 2017 February 1, 2017 by Chelsey Fix Advocacy Day 2017 NephCure invites all patient families, doctors, researchers, nurses, and everyone else impacted by Nephrotic Syndrome to join us on June 8th and 9th for a day on Capitol Hill. We will be meeting with Representatives, Senators, or Congressional staff to share our stories about Nephrotic Syndrome and kidney disease and to ask for research funding that can help us find better treatment options and cures. This is your chance to make sure your voice is heard by legislators. Your story matters, and can help shape policies that impact millions of Americans. NephCure only hosts this event every 2 years, so don’t miss your chance to share your story with your elected representatives. If you are interested in attending Advocacy Day with us, please email Chelsey at cfix@nephcure.org or call 610-540-0186 ext 19 for registration and hotel information. Date: June 8th & 9th Location: Capitol Hill, Washington D.C. Who: Everyone impacted by Nephrotic Syndrome How to attend: Email cfix@nephcure.org for registration and travel information Can’t make June 8th-9th? There are opportunities to advocate on Capitol Hill with other organizations! The dates and organizations are listed below, and feel free to email us if you would like more information on these events: National Kidney Foundation: March 6- 7
Barbara Chaney says March 31, 2017 at 12:38 pm I am interested in advocacy. My son was diagnosed with fsgs at 4. Transplat at 6 after pd for 1.5 years. Hes now going threw ivig every month has nephrotoxicity from prograph functioning at 40% and is 17 years old.
Chelsey Fix says April 6, 2017 at 8:52 am Hi Barbara- thanks for being interested in Advocacy! I will email you some info about Advocacy Day on Capitol Hill and some other ways to get involved. Be sure to check your inbox! Thanks, Chelsey
Nicholle Montalvo says May 8, 2017 at 6:33 pm This is amazing! I am very interested in learning more!