FSGS Patient-Focused Drug Development Meeting 2020 The EL-PFDD Meeting on FSGS was a huge success! View the Recorded Meeting Read the Voice of Patient Report Read the Meeting Transcript What are EL-PFDD meetings? Externally led patient-focused drug development (EL-PFDD) meetings bring together patients and care partners, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. The goal is to hear from patients who have the disease, in order for the FDA and pharmaceutical companies to understand the patient experience. The EL-PFDD meeting on FSGS The National Kidney Foundation and NephCure Kidney International conducted an EL-PFDD meeting on FSGS to inform the FDA about the patient perspective of living with this disease. Understanding the patient perspective may help the FDA make informed decisions regarding approvals of potential treatments for FSGS. Voice of the Patient After the meeting, a report titled “Voice of the Patient” was sent to the FDA. This will be a reference for future decisions about potential medicines for FSGS.