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Rare Kidneys Connect – Dallas

Join NephCure, along with fellow patients and caregivers affected by rare kidney diseases, in Dallas for an informative session on protein-spilling kidney conditions and strategies for their effective management. This event is FREE and a low-sodium snack will be provided!

We extend a warm invitation to individuals impacted by the following rare kidney diseases to participate:

  • Focal segmental glomerulosclerosis (FSGS)
  • Nephrotic syndrome
  • IgA nephropathy (IgAN)
  • Membranous nephropathy (MN)
  • Minimal change disease (MCD)
  • C3 glomerulonephritis (C3G)/membranoproliferative glomerulonephritis (MPGN)
  • IgM nephropathy (IgMN)


Together, we will delve into various topics, including:

  • Education and management of these diseases
  • Advances in treatments and ongoing research
  • Insights from a patient panel on coping with rare kidney diseases
  • Access to patient resources

Hourly Schedule

RKC: Dallas

12:30pm - 1:00pm
Check In
Cumberland G Meeting Room
1:00pm - 1:30pm
Welcome & Introduction
Kimberly Figgs Associate Director, Community Engagement
1:30pm - 2:45pm
Rare, Protein-Spilling Kidney Disease: What Every Patient Should Know
Dr. Elizabeth Brown: Pediatric Nephrologist & Dr. Irfan Agha: Adult Nephrologist
2:45pm - 3:00pm
3:00pm - 3:15pm
Benefits of an Empowered Patient
Kimberly Figgs Associate Director, Community Engagement
3:15pm - 4:15pm
Managing Rare Kidney Disease - Patient Panel
4:15pm - 4:45pm
Patient Connection Time


Mar 02 2024


1:00 pm - 4:30 pm

Local Time

  • Timezone: America/Chicago
  • Date: Mar 02 2024
  • Time: 1:00 pm - 4:30 pm

More Info



Hyatt Regency Dallas
300 Reunion Boulevard, Dallas, TX 75207