If you are living with Nephrotic Syndrome, your voice needs to be heard. Only your voice can give the information (or the data) that researchers need to find a cure. At NephCure, we have an opportunity for you to use your voice to give your data to researchers that will find your cure for Nephrotic Syndrome diseases- the NephCure Kidney Network Patient Registry. Keep reading to see how the NephCure Kidney Network brings together your data, your voice, and your cure!
Your Data: By logging on to www.nephcurekidneynetwork.org and completing surveys about health information, you make an important data donation that can help advance research in Nephrotic Syndrome. Your Data can also be used to match you with clinical trials for which you may be eligible.
Your Voice: By joining the NephCure Kidney Network, you are joining a community that is demanding better treatments sooner, not later. Your Voice can tell researchers what is important for them to study.
Your Cure: Making a data donation in the NephCure Kidney Network Patient Registry could inspire the next big idea in research. Data trends can be analyzed to help researchers figure out what to study. Finally, we can help you find clinical trials to participate in that may help find better treatment options and cures.
How does it work?
You spend about 30 minutes answering questions online (you will need to have some things on hand, like lab results). Researchers can then access the de-identified (anonymous) data and perform meaningful research analyses on the information that you have provided. The NephCure Kidney Network Patient Registry can also connect you to groundbreaking clinical trials for which you may be eligible.
Get Started Now!
Visit www.nephcurekidneynetwork.org to add your voice and your data to the NephCure Kidney Network and the search for a cure.