Zach was diagnosed in 2008 with Nephrotic Syndrome at the age of 11. He was specifically diagnosed with membranous glomerulonephritis. Membranous glomerulonephritis (MGN) is a slowly progressive disease of the kidneys affecting mostly patients between the ages of 30 and 50 years, usually Caucasian. It is the second most common cause of Nephrotic Syndrome in adults, with focal segmental glomerulosclerosis (FSGS) being the most common.
We are so thankful and happy that Zach, now almost 19, is in and has been in remission for almost five years now. He had a kidney biopsy very early and was found to be steroid resistant, so he was able to get off of the steroids after only a few months. Lisinopril was prescribed, and within two years he was able to wean off and has been doing great.
Over the last few years, we have held jambalaya fundraisers and our second annual Team Zac-A-Tac softball tournament to help raise money for awareness. We are praying that one day there will be a cure. Our prayers are with every child, adult, family member, or friend that is suffering from NS and FSGS.