I was diagnosed with Nephrotic Syndrome in 2008 when I was 17 years old. When I was first diagnosed, I was getting protein infusions every two weeks.
About a half a year later, I ended up with kidney failure and was put on dialysis. I am mainly on blood pressure medication to keep it down.
Physically, I am very unstable and have been admitted over and over again to the hospital. At the beginning of 2009, I suffered from respiratory failure and fell into a coma for a week. When I finally woke up, I recovered unexpectedly fast, except for my legs. I had to attend in-patient rehab for about a month.
I pray that I can get the awareness out for this disease, and I hope that in sharing my story, others will read it and see that they’re not alone.