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Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

Nephrotic Syndrome

Christopher S.

My journey with kidney disease has been a long one, full of trials and hope. And...

Nephrotic Syndrome

Keyaira S.

At the age of 11, Keyaira was diagnosed with Nephrotic Syndrome. Before being di...

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