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Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

Minimal Change Disease (MCD)

Shelby C.

My name is Shelby Chan. I was diagnosed with Nephrotic Syndrome with biopsy confirmed of Minimal Change Disease in June 2022...

Minimal Change Disease (MCD)

Stacey B.

In 1976, at the age of 5, I was diagnosed with childhood nephrotic syndrome. Shortly after, we moved and the pediatrician, after my first or second relapse...

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