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Patient Stories

From California to Sydney and everywhere in between, your tales of courage, optimism and perseverance resonate with us. But, more importantly, they give hope to other people impacted by FSGS and Nephrotic Syndrome.

We’re here for everyone impacted by these diseases no matter your age, gender or where you are in the journey. Are you a newly-diagnosed adult patient? Perhaps you’re the parent of a young child waiting for a transplant? Maybe you’re a teen in remission and feeling good? No matter who you are or where you live, we invite you to share your story and help others feel less alone, more inspired and more empowered in their journey.

share your story

Focal Segmental Glomerulosclerosis (FSGS)

Imani M.

In 2016, at the age of 23, Imani Mintz received a diagnosis of FSGS. Following a...

Focal Segmental Glomerulosclerosis (FSGS)

Teleya B.

I have APOL 1-Associated FSGS. I was diagnosed when I was 14. For 20 years, I’...

Focal Segmental Glomerulosclerosis (FSGS)

Jorden A.

In 2022, at the age of 24, Jorden Albright-Henighan was diagnosed with chronic k...

Focal Segmental Glomerulosclerosis (FSGS)

Nicholas A.

When I was 17 I was diagnosed with kidney disease called FSGS. This was 1 year a...

Focal Segmental Glomerulosclerosis (FSGS)

Amber H.

When I was eleven years old, I had ongoing swelling that no one could figure out...

Focal Segmental Glomerulosclerosis (FSGS)

Jazrome C.

Jazrome was diagnosed at the age of 29. The onset of the diseased started when h...

Focal Segmental Glomerulosclerosis (FSGS)

Tiffany L.

Tiffany Lymon was diagnosed in August of 2020. Prior to her diagnosis, she notic...

Focal Segmental Glomerulosclerosis (FSGS)

Kimberly Q.

Kimberly was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) at the age...

Focal Segmental Glomerulosclerosis (FSGS)

Traejen K.

Traejen was diagnosed at 3 years old with Focal Segmental Glomerulosclerosis (FS...

Focal Segmental Glomerulosclerosis (FSGS)

Kevin M.

In 2002, Kevin found himself suffering from debilitating migraines. As they got ...

Focal Segmental Glomerulosclerosis (FSGS)

Jenn T.

Jenn Trunk had a routine physical in 2005 that showed protein in her urine. She ...

Focal Segmental Glomerulosclerosis (FSGS)

Jen M.

After noticing her ankles were the size of grapefruits, Jen was diagnosed with F...

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