2022 NephCure Patient Summit

The NephCure Patient Summit is one of the world’s largest gatherings of rare kidney disease patients, caregivers, health care professionals, researchers, and partners. NephCure held the 2022 Patient Summit on April 28-30, 2022, offering an in-person event at the Walt Disney World Dolphin Resort in Orlando, Florida, and a concurrent virtual Summit hosted on an interactive online platform. Plus, we held the first-ever NephCure Youth Summit with dedicated programming just for kids!

With two days of educational sessions and engaging speakers, attendees gained insights about the latest in rare kidney disease research, diet and nutrition information, mental health resources, clinical trial opportunities, and more. NephCure community members also enjoyed plenty of time to meet and connect with other patients, families, and industry partners, and make memories in the Florida sun.

We’re excited to provide recordings of these informative sessions and will be adding new uploads in the coming weeks. Stay tuned!

• Patient-Centered Clinical Trials Panel
• COVID-19 & Rare Kidney Disease Update
• The NephCure Action Network: A New Era of Kidney Care
• How to Effectively Share Your Story Panel

2021 NephCure Patient Summit

The 2021 NephCure Patient Summit took place virtually on May 16, 2021. It was designed to provide a place for patients with all types of protein-spilling kidney disease to gather and learn. This Summit included teaching from specialists about protein-spilling kidney disease, presentations on advancements in glomerular disease, opportunities for patients and caregivers to ask questions, and a chance to connect with other patients and caregivers on similar journeys.

In the past, the Patient Summit took place in-person over several days. We hope to bring an in-person format back in April 2022.

We are thrilled to have the opportunity to provide recordings of the 2021 Patient Summit below:

Doctor-Led Breakout Sessions

• Newly Diagnosed Adult Session – Learning the Basics of Glomerular Disease
• Exploring Care Options and Trial Opportunities for MCD & FSGS Patients
• Membranous Nephropathy: Sharing Breakthroughs and Recent Discoveries
• C3G Update: Addressing Innovation and New Learnings
• Adult Dialysis & Transplant Patients: Current Trends & Opportunities
• Newly Diagnosed Parents — Nephrotic Syndrome 101
• Experienced Parents and Caregivers – Extending the Life of Your Child’s Kidneys
• Pediatric Dialysis & Transplant Patients: An Update on New Interventions and Trends