The NephCure Patient Summit The NephCure Patient Summit is one of the world’s largest gatherings of rare kidney disease patients, caregivers, health care professionals, researchers, and partners. 2022 NephCure Patient Summit NephCure held the 2022 Patient Summit on April 28-30, 2022, offering an in-person event at the Walt Disney World Dolphin Resort in Orlando, Florida, and a concurrent virtual Summit hosted on an interactive online platform. Plus, we held the first-ever NephCure Youth Summit with dedicated programming just for kids! With two days of educational sessions and engaging speakers, attendees gained insights about the latest in rare kidney disease research, diet and nutrition information, mental health resources, clinical trial opportunities, and more. NephCure community members also enjoyed plenty of time to meet and connect with other patients, families, and industry partners, and make memories in the Florida sun. We’re excited to provide recordings of these informative sessions and will continue to add new uploads. Stay tuned! State of NephCure Address 2022The Power of Patient AdvocacyPredictors of Disease Progression: Biomarkers & Treatment Response in AdultsPatient-Centered Clinical Trials PanelCOVID-19 & Rare Kidney Disease UpdatePlant-Based Diet & Kidney DiseaseMental Health and Chronic IllnessThe NephCure Action Network: A New Era of Kidney CareHow to Effectively Share Your Story PanelRace Inclusion in Kidney DiseasePredictors of Disease Progression: Biomarkers & Treatment Response in ChildrenMCD vs. FSGS: Breakdown of Diagnostics and Clinical CourseThe Role of the Complement System in IgA Nephropathy, C3G, & Membranous Nephropathy VIEW 2022 SUMMIT PHOTOS HERE 2021 NephCure Patient Summit The 2021 NephCure Patient Summit took place virtually on May 16, 2021. It was designed to provide a place for patients with all types of protein-spilling kidney disease to gather and learn. This Summit included teaching from specialists about protein-spilling kidney disease, presentations on advancements in glomerular disease, opportunities for patients and caregivers to ask questions, and a chance to connect with other patients and caregivers on similar journeys. In the past, the Patient Summit took place in-person over several days. We hope to bring an in-person format back in April 2022. We are thrilled to have the opportunity to provide recordings of the 2021 Patient Summit below: Doctor-Led Breakout Sessions Newly Diagnosed Adult Session – Learning the Basics of Glomerular DiseaseExploring Care Options and Trial Opportunities for MCD & FSGS PatientsMembranous Nephropathy: Sharing Breakthroughs and Recent DiscoveriesC3G Update: Addressing Innovation and New LearningsAdult Dialysis & Transplant Patients: Current Trends & OpportunitiesNewly Diagnosed Parents — Nephrotic Syndrome 101Experienced Parents and Caregivers – Extending the Life of Your Child’s KidneysPediatric Dialysis & Transplant Patients: An Update on New Interventions and Trends