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NephCure Participates in Black Health Matters Summit and Health Fair: Rare Kidney Disease Across Generations Panel

HOUSTON, TX (August 4, 2022) – NephCure Kidney International (NephCure) is hosting a panel discussion, “Men’s Health: Rare Kidney Disease Across Generations,” during the Black Health Matters Summit and Health Fair on August 6th in Houston, TX. Black Health Matters, a non-profit focused on improving the health and wellness of Black and BIPOC communities, hosts the largest public health forums on Black Health in the nation. This panel is sponsored by Travere Therapeutics.

The “Men’s Health: Rare Kidney Disease Across Generations” panel includes three Black men, from the NephCure community, from a range of ages and in different stages of their focal segmental glomerulosclerosis (FSGS) journey; four time Grammy-award winning producer, songwriter, and social entrepreneur, Brian Kennedy, NephCure Board member and Kappa Alpha Psi fraternity member, Kevin Mott, and advocate and Georgia State University student, Joshua Albright.

FSGS is a rare and progressive kidney disease that affects Black Americans at rates 4-5 times higher than white Americans. A mutation on the APOL1 gene, found in people of African descent, is associated with one of the most severe forms of FSGS.

“These three NephCure advocates bring an essential voice and awareness to the Black community, especially amongst Black men. There is often a stigma when it comes to discussing men’s health issues. Brian, Kevin, and Joshua each have unique experiences that will shed light on and start a very important dialogue,” Lauren Eva, NephCure’s Vice President of Professional Relations, said.

Each panelist will share their unique story with FSGS and discuss their experience pursuing an accurate diagnosis, navigating treatment options, and their mental health.

Kennedy, Mott, and Albright will also ignite the critical conversation around race-related concerns, the genetic link that increases Black Americans’ risk for kidney disease, and the important early warning signs of kidney disease that everyone, no matter their age or health, should be aware of.

The Black Health Matters Summit and Health Fair builds upon the collective strengths and shared goals of people and organizations seeking to disrupt the current medical establishment through preventative and intentional action that improves the quality of Black life. NephCure is proud to partner with Black Health Matters and Travere Therapeutics and raise awareness about rare, protein-spilling kidney diseases.

The Black Health Matters Summit and Health Fair is both an in-person and hybrid event held on Saturday, August 6th. To learn more and to register for the event, please visit https://blackhealthmatters.com.

About NephCure Kidney International

NephCure Kidney International’s mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome, and to provide education and support that will improve the lives of those affected by these protein-spilling kidney diseases. Founded in 2000 by a group of committed patient parents, NephCure has invested more than $40 million in kidney disease research and helped create a landscape where there are now more than 40 interventional drug trials for primary glomerular kidney diseases. NephCure is a U.S. tax exempt 501(c)(3) public charity.

 About Black Health Matters

Black Health Matters (BHM) was launched a decade ago, and is the leading health, wellness and chronic disease interactive digital platform dedicated to improving health outcomes among African Americans.   BHM has collaborated with a wide range of partners, including fraternities, sororities, and faith-based and civic organizations to raise awareness around chronic diseases, mental and physical health, and fitness in the Black community. The organization’s mission is to improve health literacy, which includes addressing health care, health policy, health equity, and health disparities for positive outcomes. For more information go to www.blackhealthmatters.com

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