RESOURCES

/

FIND A SPECIALIST

/

CONTACT

Navigating Healthcare Systems & Support Programs

Headline decoration line

Click to watch…

Living with kidney disease often means navigating multiple providers, complex treatments, and insurance challenges. In this session, Adria Goldman Gross, FIPC, shares practical tools to help you take control of your care.

Learn how to work with case managers and patient navigators, prepare for appointments, organize medical records, appeal insurance denials, understand your rights under the ADA and FMLA, and navigate Medicare coverage. You’ll also discover resources and support to help you advocate for yourself with confidence.

Visit our Youtube page

Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

Navigating Nutrition in Protein-Spilling Kidney Disease

Educational Materials

School Accomodations

ALL RESOURCES

Sign up to get NephCure’s latest updates.

SIGN UP
This field is for validation purposes and should be left unchanged.