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Mental Health Awareness Town Hall 2024

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Montrez Lucas, NephCure’s Associate Director of Patient Navigation, recently led a heartfelt discussion with patients on the mental health challenges of living with rare kidney disease.

This powerful panel dives deep into the emotional toll of their journeys, offering candid insights into the struggles they face. Through their shared vulnerabilities, these patients provide a compelling reminder of the unseen battles that accompany rare kidney diseases.

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Support

Get help coping with the challenges of living with FSGS through support groups like NephCure. Learn more about our how we can support you.

Nutrition

Eat a diet low in salt and processed foods to manage your blood pressure and reduce strain on your kidneys. Learn more about a kidney-friendly diet and get our cookbook.

Latest Resources

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Informational Documents

Sparsentan (FILSPARI) for FSGS: FAQs

Fact Sheet

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome

Video

A First for FSGS Patients: What the sparsentan Approval Means for You

Educational Materials

School Accomodations

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