NephCure Kidney International ®
Saving Kidneys, Saving Lives
Organizational Mission
NephCure Kidney International’s ® mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome, and to provide education and support that will improve the lives of those affected by these protein-spilling kidney diseases.
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NephCure Kidney International.
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150 S. Warner Road
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King of Prussia, PA 19406
1.866 NephCure (637-4287)
info@nephcure.org
EIN: 38-3569922
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Thank you for all the information of living with kidney disease.
I noticed you advise to read food labels and to eat herbs/spices that don’t include salt – such as onion powder not onion salt. I have been advised lately by an Australian herb company that food laws do not require companies to list if they have used salt in the drying/processing of herbs/spices which means the food label is not useful to those who have kidney disease .
I have type 1 Membranoproliferative Glomerulonephritis and are interested if you have any recipes which may help.
Thanks
Frances McDonald
Australia
I am interested in applying for the NephCure Kidney International-NEPTUNE Ancillary Studies Grant Program (see attached). Per the Review Time Line, receipt of final NEPTUNE Ancillary Study Application is due 3/16/18. However, the deadline to NephCure Kidney International is 6/8/18. Can you please explain the difference in these deadlines?
Review Time Line
• Deadline to submit a letter of intent /NEPTUNE Ancillary Study Concept Sheet to NEPTUNE (email NEPTUNE-STUDY@umich.edu for more information): February 8, 2018.
• Deadline for receipt of final NEPTUNE Ancillary Study Application (email NEPTUNE-STUDY@umich.edu for more information) : March 16, 2018
• Deadline for application to NephCure Kidney International (email research@nephcure.org for more information): June 8, 2018, 8 PM Eastern Time (no exceptions)
• Announcement of preliminary intent to award project: October 2018
• Completion of Just-In-Time process (necessary IRB approval/amendment): December 2018
• Notice of Award
• Project Start Date: January, 2019
Do you have any dates for the nephrotic syndrome symposium for this year
Thanks
Hi! I believe I fill all the criteria of a support volunteer and I would love to apply for that. How would you go about doing that(the link presented doesn’t work). Thank you! Alvaro
Hi, my name is Ciara Dillon and I was diagnosed with Nephrotic Syndrome at a young age. I loose a lot of protein and would severly get sick. I suffered many years and would like to help boost awareness and medicine. I am currently trying to raise $5,000 to help donate and fund an awareness or medical center to help find ways to help. Please email me back if you are interested in me going forth in my project.
I am interested in applying for the NephCure Kidney International-NEPTUNE Ancillary Studies Grant Program
Hi my name is Sarah and I would like to recieve emails about upcoming Nephcare events globally. Im not sure your sign up page is working.
Hi Sarah! Thanks for your comment; we did receive your submission and will add you to our email list. I also wanted to make sure you are aware of this research opportunity: https://nephcure.org/research/apply-for-research-grants/
Thank you!
Could you please direct us to integrative doctors that specialize in kidney disease located in either the Alabama or Southern California area?
Hello Kelly thanks for the response I have stage3 renal, its tough finding something to eat. Dr.s are not doing anything that helps diet related and really nothing much of medical advice. Diet is the big problem thanks for the response again
Help🤔
Hi I was wondering if any of you know a app for Android or devolp one that can track the protine levels, kidney function,surgery’s, meditation and dosages weight, hospitalization, appointment,Dr contacts,and maybe even have a digital version of insurance has anyone seen something like this
I watched the first session on Facebook of the Clinical Trial Recruitment Collaborative. Kevin Fowler did a wonderful job and the panel as well. Could stop stay and watch all of the day and wondered if there will be a condensed version or print of it later?
I sent previous comment wondering if the broadcast on Facebook of the Clinical Trial Recruitment will be published for view? could not view all on Facebook.
Hello Charlene. The livestream of the entire Clinical Trial Collaborative Meeting is up on our YouTube channel. The link is here: https://www.youtube.com/watch?v=EcPy6r_YDsU If you click on ‘show more’ in the description below the video, you’ll be able to jump to different sections/portions of the day… all you have to do is click on the time stamp.