Meet Illinois Regional Leader: Kevin Mott

Kevin Mott is an FSGS patient living in the Chicago area. Early on, he had a tough time finding doctors who would take his symptoms seriously. He saw four medical professionals before finding his nephrologist who diagnosed him properly. Kevin has also received a kidney transplant in 2017. He is a member of NephCure’s Board of Directors. You can connect directly with Kevin at

What’s your personal connection to NephCure?

I discovered the NephCure message board after my FSGS diagnosis years ago. I found it to be a helpful source of information. After some time volunteering with the organization, I was invited to sit on the Board of Directors.

Why do you volunteer with NephCure?

I volunteer with NephCure because I want to be supportive of the entire community dealing with rare kidney diseasespatients, parents, family, loved ones, doctors, caregivers, researchers, etc. I want to do what I can to help others on this journey have positive outcomes.

Kevin and his kidney donor.

What projects are you working on right now?

Currently, I am scheduled to speak to two groups whom I would not have met without being involved with NephCure. In particular, we are discussing issues of diversity and inclusion as it relates to the experience of dealing with rare kidney disease. It makes me very proud to advocate for all patients, but especially African American men who are disproportionately affected.


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