Frequently Asked Questions

• What is the prognosis for Nephrotic Syndrome?
• What are common lifestyle modifications for patients with Nephrotic Syndrome
• When do I need a biopsy?
• What is the most efficient way to monitor symptoms at home?
• Can I take over the counter (OTC) medications?

What is the prognosis for Nephrotic Syndrome?

There are many factors that influence the long-term outcomes such as gender, severity, responsiveness, and age.  Every case is different and your doctor will know your prognosis best.  However, there are a few things known about the prognosis.  Pediatric kidney transplants are rare.  FSGS and MCD patients usually respond relatively well to initial therapies.  Children with later onset (age 6 and older) respond well to treatment.  With Membranous Nephropathy (MN), remission may take longer to reach (up to 2  years).

What are common lifestyle modifications for patients with Nephrotic Syndrome?

Common lifestyle modifications include switching to a renal-healthy diet, eliminating tobacco use, exercising, taking vitamins and supplements, and reducing stress.  It is also important to remember that wellness is physical, mental, and emotional so seeking additional support as needed is also common and recommended.  Always consult your doctor before making any major lifestyle changes.

When do I need a biopsy?

A biopsy must be done in adults to diagnose FSGS; a biopsy is usually not performed on children to reach a diagnosis.  It is important to discuss if a biopsy is necessary with your nephrologist.

What is the most efficient way to monitor symptoms at home?

It is helpful to make charts to track: first morning protein, weight, and blood pressure.  These values help to monitor daily kidney function in order to know if it is time to call your doctor.  In addition, having a large binder with all medical information is an efficient way to keep all documents in one place in case they are needed.  A separate appointments calendar can also be helpful with keeping times and dates in order.

Can I take over the counter (OTC) medications?

Before taking any OTC drugs it is always recommended that you ask your doctor about any possible drug interactions.  When you are prescribed a new medication, ask about the side effects and any possible interactions.  Also keep an up-to-date list of medications to help keep track of interactions.