Spread the word about trials in Nephrotic Syndrome/FSGS. Read articles and share them with us. Donate your data through our patient registry. Ask your doctor about studies. Use your personal experience to advance our mission of finding better treatments and a cure.
Clinical Trials Ambassador
A Clinical Trials Ambassador educates fellow patients or patient parents about the clinical research process and opportunities to participate in research.
Participate in Research
Participating in research is an invaluable way to get involved in the pursuit of better treatments and a cure for Nephrotic Syndrome diseases. No amount of funding or other resources can make up for a lack of volunteers. Participation could mean completing a survey, joining a patient registry, participating in a clinical trial, or even mailing a saliva sample to a genetic research project. Click here to learn about research opportunities near you
Join the NKN Patient Registry
Today, there are no FDA-approved treatments for FSGS and other Pimary Nephrotic Syndrome diseases. We want to change that, but we need your help. By making a data donation, you provide researchers with information that could lead to groundbreaking discoveries for chronic kidney diseases.