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Rare Kidneys Connect
Local City Near You, USA
Gather with other individuals living with rare kidney diseases for an enlightening Rare Kidneys Connect event. These events, which are free to attend, offer valuable insights into the management of rare, protein-spilling kidney conditions. Attendees will have the opportunity to connect with others facing similar challenges and explore effective strategies for coping and thriving despite their diagnoses.
In addition to providing a welcoming environment for learning and sharing, these events will also feature a variety of topics including disease education, the latest advancements in treatments, ongoing research endeavors, and access to essential patient resources. Furthermore, participants can look forward to engaging with a patient panel, gaining firsthand perspectives on navigating life with rare kidney diseases.
We extend a warm invitation to individuals impacted by a range of rare kidney diseases including:
- Focal Segmental Glomerulosclerosis (FSGS)
- Nephrotic Syndrome
- IgA Nephropathy (IgAN)
- Membranous Nephropathy (MN)
- Minimal Change Disease (MCD)
- C3 Glomerulonephritis (C3G)/Membranoproliferative Glomerulonephritis (MPGN)
- IgM Nephropathy (IgMN)
Join us as we come together to learn, share, and support one another on our journeys towards improved health and well-being.
Sponsors
Volunteer
Discover the power of volunteering with NephCure through our Volunteer Hub, your ultimate destination for all things volunteering. Whether your passion lies in fundraising, advocacy, patient support, event planning, or outreach, there’s a meaningful role waiting for you. Check out our volunteer opportunities and be a part of making a difference.
Advocate
NephCure is committed to advocating for policies that improve the lives of rare kidney disease patients and their families. Learn more about our advocacy efforts and policy priorities, including our support for the New Era Bill and other legislative initiatives aimed at advancing research and access to care. Join the NephCure Action Network and be a voice for change.
