{"id":28090,"date":"2021-06-01T14:36:49","date_gmt":"2021-06-01T18:36:49","guid":{"rendered":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/"},"modified":"2025-12-11T07:26:56","modified_gmt":"2025-12-11T12:26:56","slug":"tiene-glomeruloesclerosis-focal-y-segmentaria-fsgs","status":"publish","type":"post","link":"https:\/\/nephcure.org\/es\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/","title":{"rendered":"\u00bfTiene glomeruloesclerosis focal y segmentaria (FSGS)?"},"content":{"rendered":"<p><strong>\u00bfA usted o a su ser querido le han diagnosticado GEFS? Tenemos recursos para usted.<\/strong><\/p>\n<p>Las tasas de enfermedad renal grave son altas en personas afroamericanas, hispanas negras, afrocaribe\u00f1as o de ascendencia africana. Esto podr\u00eda deberse a diferencias en la composici\u00f3n gen\u00e9tica del gen APOL1 que se encuentra t\u00edpicamente en individuos con ascendencia africana, caribe\u00f1a o latinoamericana reciente. Estas diferencias en la composici\u00f3n gen\u00e9tica se asocian con mayores tasas de insuficiencia renal asociada a hipertensi\u00f3n, GEFS, enfermedad renal asociada al VIH y otras formas de enfermedad renal no diab\u00e9tica.<\/p>\n<p><strong>Datos breves sobre APOL1 FSGS:<\/strong><\/p>\n<ul>\n<li><em>Los afroamericanos representan 32% de toda la insuficiencia renal en EE. UU.<\/em><\/li>\n<li><em>Los estadounidenses negros tienen cuatro veces m\u00e1s probabilidades de desarrollar insuficiencia renal que los estadounidenses blancos <\/em><\/li>\n<li><em>Aproximadamente 4 de cada 10 afroamericanos en di\u00e1lisis tienen insuficiencia renal causada por cambios en el gen APOL1<\/em><\/li>\n<li><em>Aproximadamente 1 de cada 5 personas con dos copias de cambios en el gen APOL1 desarrollar\u00e1 enfermedad renal<\/em><\/li>\n<li><em>El genotipo APOL1 de alto riesgo est\u00e1 presente en 75% de pacientes negros con GEFS <\/em><\/li>\n<\/ul>\n<p><strong>A continuaci\u00f3n se detallan los recursos que hemos recopilado y que podr\u00edan resultarle \u00fatiles:<\/strong><\/p>\n<p>Este <strong>folleto informativo sobre APOL1 FSGS<\/strong> analiza los conceptos b\u00e1sicos y le ayuda a comprender mejor esta enfermedad.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-7481\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21-791x1024.png\" alt=\"\" width=\"650\" height=\"841\" \/><\/p>\n<p>Para descargar la hoja informativa completa, haga clic <a href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21.png\">aqu\u00ed<\/a>.<\/p>\n<p>En junio de 2020, organizamos una <strong>Sesi\u00f3n de NephCure U<\/strong> espec\u00edficamente en FSGS asociados a APOL1. Dr. Jeffrey Kopp del l\u00edder NIDDK, <strong>\u201cEnfermedad renal en pacientes afrodescendientes: enfermedad asociada a APOL1<\/strong>\u201dY discuti\u00f3 m\u00e1s sobre el diagn\u00f3stico, las opciones de tratamiento y los ensayos cl\u00ednicos. Escuche el seminario web educativo de una hora de duraci\u00f3n a continuaci\u00f3n.<\/p>\n<p><iframe title=\"NephCure U: APOL1\" width=\"1200\" height=\"900\" src=\"https:\/\/www.youtube.com\/embed\/h_-UBtS6f6E?start=4&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>NephCure fue coanfitri\u00f3n de una sesi\u00f3n de la serie de conferencias sobre ensayos cl\u00ednicos de GlomCon sobre <em>Avances en la terap\u00e9utica APOL1 <\/em>el 14 de febrero de 2021, con el Dr. Ogo Egbuna, el Dr. Opeyemi Olabisi y el Dr. David J. Friedman. Hacer clic <a href=\"https:\/\/www.youtube.com\/watch?v=j2273OFpqHQ&amp;feature=youtu.be\">aqu\u00ed<\/a> para ver la grabaci\u00f3n de esta sesi\u00f3n.<\/p>\n<p>Adem\u00e1s de estos recursos, tambi\u00e9n hay <strong>ensayos cl\u00ednicos<\/strong> disponible para <strong><em>FSGS asociado a APOL1 <\/em><\/strong>pacientes. Los ensayos cl\u00ednicos analizan la seguridad y eficacia de posibles nuevos tratamientos. Los principales objetivos de los ensayos cl\u00ednicos son encontrar nuevas formas de prevenir, detectar (encontrar) o tratar enfermedades o afecciones de salud, y garantizar que nuevos tratamientos o terapias potenciales funcionen bien y sean seguros para las personas. Consulte algunas preguntas previas a la evaluaci\u00f3n a continuaci\u00f3n, proporcionadas por <a href=\"https:\/\/www.vrtx.com\/#https:\/\/www.vrtx.com\/\">V\u00e9rtice<\/a>, para ver si su ensayo cl\u00ednico podr\u00eda ser adecuado para usted o su ser querido.<\/p>\n<ul>\n<li>Los participantes elegibles deben cumplir con los siguientes criterios:<\/li>\n<li>Ser adulto hombre o mujer entre 18 y 65 a\u00f1os (inclusive)<\/li>\n<li>Las participantes femeninas no deben estar embarazadas ni en per\u00edodo de lactancia.<\/li>\n<li>Ser de ascendencia africana, caribe\u00f1a o latinoamericana.<\/li>\n<li>Se le ha realizado una biopsia de ri\u00f1\u00f3n que ha encontrado glomeruloesclerosis focal y segmentaria (FSGS)<\/li>\n<li>No haber tenido un diagn\u00f3stico de enfermedad renal distinta a la FSGS.<\/li>\n<li>Estar dispuesto a completar la apolipoprote\u00edna L1 en investigaci\u00f3n (<em>APOL1<\/em>) prueba gen\u00e9tica<\/li>\n<li>Estar dispuesto y ser capaz de seguir las instrucciones del estudio.<\/li>\n<\/ul>\n<p>Para obtener m\u00e1s informaci\u00f3n sobre el ensayo cl\u00ednico de Vertex, haga clic <a href=\"https:\/\/nephcure.org\/es\/2020\/07\/una-mirada-al-interior-del-estudio-de-vertices-en-apol1-fsgs\/\">aqu\u00ed<\/a>. Si cumple con los criterios preliminares enumerados anteriormente, <a href=\"https:\/\/kidneyhealthgateway.com\/trials\/study-of-vx19-147-101-in-adults-of-african-or-caribbean-descent-with-fsgs-6\/#https:\/\/kidneyhealthgateway.com\/trials\/study-of-vx19-147-101-in-adults-of-african-or-caribbean-descent-with-fsgs-6\/\">encuentra la ubicaci\u00f3n m\u00e1s cercana a ti<\/a> y haga clic en el bot\u00f3n &quot;Estoy interesado&quot; para ponerse en contacto con un investigador para una evaluaci\u00f3n adicional de elegibilidad.<\/p>\n<p>Puede encontrar una lista completa de ensayos cl\u00ednicos para todas las enfermedades renales que derraman prote\u00ednas en <a href=\"https:\/\/kidneyhealthgateway.com\/\">KidneyHealthGateway.com<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>\u00bfA usted o a su ser querido le han diagnosticado GEFS? Tenemos recursos para usted. Las tasas de enfermedad renal grave son altas en personas afroamericanas, hispanas... <a title=\"\u00bfTiene glomeruloesclerosis focal y segmentaria (FSGS)?\" class=\"read-more\" href=\"https:\/\/nephcure.org\/es\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/\" aria-label=\"Leer m\u00e1s sobre \u00bfTiene Glomeruloesclerosis Focal Segmentaria (FSGS)?\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":222,"featured_media":28091,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[354],"tags":[],"disease-category":[],"resource-type":[260],"treatment-option":[],"hf_cat_post":[],"class_list":["post-28090","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recent-news","resource-type-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.3 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>FSGS Kidney Disorder Disease: Symptoms, Causes &amp; Treatment<\/title>\n<meta name=\"description\" content=\"Learn about FSGS kidney disorder disease causes, symptoms, and treatment. NephCure supports patients who have focal segmental glomerulosclerosis syndrome.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nephcure.org\/es\/tiene-glomeruloesclerosis-focal-y-segmentaria-fsgs\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Do you have Focal Segmental Glomerulosclerosis (FSGS)?\" \/>\n<meta property=\"og:description\" content=\"Learn about FSGS kidney disorder disease causes, symptoms, and treatment. NephCure supports patients who have focal segmental glomerulosclerosis syndrome.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/nephcure.org\/es\/tiene-glomeruloesclerosis-focal-y-segmentaria-fsgs\/\" \/>\n<meta property=\"og:site_name\" content=\"NephCure\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/nephcure\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-06-01T18:36:49+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-11T12:26:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1275\" \/>\n\t<meta property=\"og:image:height\" content=\"1650\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Lauren Eva\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@nephcure\" \/>\n<meta name=\"twitter:site\" content=\"@nephcure\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Lauren Eva\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutos\" \/>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"FSGS Kidney Disorder Disease: Symptoms, Causes & Treatment","description":"Learn about FSGS kidney disorder disease causes, symptoms, and treatment. NephCure supports patients who have focal segmental glomerulosclerosis syndrome.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/nephcure.org\/es\/tiene-glomeruloesclerosis-focal-y-segmentaria-fsgs\/","og_locale":"es_MX","og_type":"article","og_title":"Do you have Focal Segmental Glomerulosclerosis (FSGS)?","og_description":"Learn about FSGS kidney disorder disease causes, symptoms, and treatment. NephCure supports patients who have focal segmental glomerulosclerosis syndrome.","og_url":"https:\/\/nephcure.org\/es\/tiene-glomeruloesclerosis-focal-y-segmentaria-fsgs\/","og_site_name":"NephCure","article_publisher":"https:\/\/www.facebook.com\/nephcure\/","article_published_time":"2021-06-01T18:36:49+00:00","article_modified_time":"2025-12-11T12:26:56+00:00","og_image":[{"width":1275,"height":1650,"url":"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21.png","type":"image\/png"}],"author":"Lauren Eva","twitter_card":"summary_large_image","twitter_creator":"@nephcure","twitter_site":"@nephcure","twitter_misc":{"Escrito por":"Lauren Eva","Tiempo de lectura":"3 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/#article","isPartOf":{"@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/"},"author":{"name":"Lauren Eva","@id":"https:\/\/nephcure.org\/#\/schema\/person\/434bf0351b94952973f03e725afea9b7"},"headline":"Do you have Focal Segmental Glomerulosclerosis (FSGS)?","datePublished":"2021-06-01T18:36:49+00:00","dateModified":"2025-12-11T12:26:56+00:00","mainEntityOfPage":{"@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/"},"wordCount":529,"publisher":{"@id":"https:\/\/nephcure.org\/#organization"},"image":{"@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/#primaryimage"},"thumbnailUrl":"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21.png","articleSection":["Recent News"],"inLanguage":"es"},{"@type":"WebPage","@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/","url":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/","name":"FSGS Kidney Disorder Disease: Symptoms, Causes & Treatment","isPartOf":{"@id":"https:\/\/nephcure.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/#primaryimage"},"image":{"@id":"https:\/\/nephcure.org\/do-you-have-focal-segmental-glomerulosclerosis-fsgs\/#primaryimage"},"thumbnailUrl":"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/APOL1-3.30.21.png","datePublished":"2021-06-01T18:36:49+00:00","dateModified":"2025-12-11T12:26:56+00:00","description":"Learn about FSGS kidney disorder disease causes, symptoms, and treatment. 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