{"id":36150,"date":"2025-07-31T16:59:47","date_gmt":"2025-07-31T20:59:47","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&p=36150"},"modified":"2025-07-31T16:59:51","modified_gmt":"2025-07-31T20:59:51","slug":"dawn-d","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/dawn-d\/","title":{"rendered":"Dawn D."},"content":{"rendered":"

I was diagnosed in 2018, after thinking I had the flu. I went to the hospital\u2014kidney function was very low. They thought I was dehydrated, pumped me full of saline, and my function did not improve.<\/p>\n\n\n\n

I gained 40ish pounds of water weight in 24 hours. I was in the hospital for 2 weeks, full kidney failure, absolutely oblivious. I walked 4 miles a day and worked while in the hospital.<\/p>\n\n\n

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I became my own advocate and manager of my own health.<\/h2>\n<\/blockquote>\n\n\n\n

Luckily, my kidney failure was acute. I was put on high-dose prednisone and released.<\/p>\n\n\n\n

I relapsed on taper down 5 months later. Back up on high-dose prednisone\u2014added tacrolimus, based on my own research.<\/p>\n\n\n\n

I switched to an academic hospital\/nephrologist who is an FSGS\/MCD specialist. Game changer. A doctor who listens to me and partners with me.<\/p>\n\n<\/div>\n\n

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\"\"<\/figure>\n\n<\/div>\n<\/div>\n\n\n

I had significant side effects from prednisone, but also \u201caccepting my disease.\u201d Once I switched to my nephrologist\u2014who was real with me\u2014that was my turning point.<\/p>\n\n\n\n

I became my own advocate and manager of my own health. I learned all I could, and instead of resisting my disease, I accepted it.<\/p>\n\n\n\n

I\u2019ve had 4 relapses. At diagnosis and initial relapse, I was spilling 10\u201311 grams. I\u2019ve caught my last 2 relapses early and make my own recommendations to my nephrologist.<\/p>\n\n\n\n

I advocate as much as I can. I truly believe knowledge is power.<\/p>\n\n\n\n

I live my life with more intent and purpose. Life is too short to waste on those who aren\u2019t in your court.<\/p>","protected":false},"excerpt":{"rendered":"

I was diagnosed in 2018, after thinking I had the flu. I went to the hospital\u2014kidney function was very low. They thought I was dehydrated, pumped me full of saline, … Leer m\u00e1s<\/a><\/p>","protected":false},"featured_media":36151,"template":"","age-group":[278],"disease-category":[251],"class_list":["post-36150","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-adults","disease-category-minimal-change-disease-mcd"],"acf":[],"yoast_head":"\nDawn D. - NephCure<\/title>\n<meta name=\"description\" content=\"I was diagnosed in 2018, after thinking I had the flu. I went to the hospital\u2014kidney function was very low. 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