We\u2019ve tried steroids, tacrolimus, and retuximab, but he has yet to reach remission. Anthony has had two biopsies and genetic testing done, but his condition remained unchanged. He continues to spill 300+ protein daily and somehow stays strong. Despite all this, we\u2019ve refused to let the disease control his life. He\u2019s active, goes to school, and enjoys life just like any other kid. Whether it\u2019s eating at parties or playing sports, we do our best to let him be himself.\u00a0<\/p>\n\n<\/div>\n\n
<\/div>\n<\/div>\n\n\n
Our hope lies in new research and treatments and in our decision to give tacrolimus another shot. So far, he has had minimal side effects. We\u2019re also exploring new avenues, including Boston Children\u2019s Hospital, where we\u2019re contributing to the Big Kids Study research efforts. <\/p>\n\n\n\n
Through it all, Anthony has learned resilience. He wants to be a kids\u2019 doctor and a firefighter, showing a desire to help others even though he\u2019s been through so much himself. We\u2019re incredibly proud of his strength, his ability to inspire others, and his admirable and unwavering spirit. <\/p>\n\n\n\n
We are forever grateful for the support from his doctors, especially Dr. Stephanie Kerkvliet and Dr. Wei Tan. We will continue to fight this disease with love, hope, and determination, and pray that the challenges Anthony faces will soon be answers for the warriors of the future. <\/p>","protected":false},"excerpt":{"rendered":"
Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, he\u2019s become the \u201chead-scratcher\u201d for doctors due to … Leer m\u00e1s<\/a><\/p>","protected":false},"featured_media":36120,"template":"","age-group":[279],"disease-category":[251,252],"class_list":["post-36119","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-children","disease-category-minimal-change-disease-mcd","disease-category-nephrotic-syndrome"],"acf":[],"yoast_head":"\nAnthony S. - NephCure<\/title>\n<meta name=\"description\" content=\"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nephcure.org\/es\/historia-del-paciente\/anthony-s\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Anthony S.\" \/>\n<meta property=\"og:description\" content=\"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/nephcure.org\/es\/historia-del-paciente\/anthony-s\/\" \/>\n<meta property=\"og:site_name\" content=\"NephCure\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/nephcure\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-07-31T01:19:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/07\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"2560\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@nephcure\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/\",\"url\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/\",\"name\":\"Anthony S. - NephCure\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/nephcure.org\\\/wp-content\\\/uploads\\\/2025\\\/07\\\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg\",\"datePublished\":\"2025-07-31T01:19:15+00:00\",\"dateModified\":\"2025-07-31T01:19:20+00:00\",\"description\":\"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/#primaryimage\",\"url\":\"https:\\\/\\\/nephcure.org\\\/wp-content\\\/uploads\\\/2025\\\/07\\\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg\",\"contentUrl\":\"https:\\\/\\\/nephcure.org\\\/wp-content\\\/uploads\\\/2025\\\/07\\\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg\",\"width\":1920,\"height\":2560},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/patient-story\\\/anthony-s\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/nephcure.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Patient Stories\",\"item\":\"https:\\\/\\\/nephcure.org\\\/patient-stories\\\/\"},{\"@type\":\"ListItem\",\"position\":3,\"name\":\"Anthony S.\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/#website\",\"url\":\"https:\\\/\\\/nephcure.org\\\/\",\"name\":\"NephCure\",\"description\":\"For Rare Kidney Disease\",\"publisher\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/nephcure.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/#organization\",\"name\":\"NephCure\",\"url\":\"https:\\\/\\\/nephcure.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\\\/\\\/nephcure.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/nephcure.org\\\/wp-content\\\/uploads\\\/2023\\\/03\\\/cropped-NephCure-favicon-512x512-1.png\",\"contentUrl\":\"https:\\\/\\\/nephcure.org\\\/wp-content\\\/uploads\\\/2023\\\/03\\\/cropped-NephCure-favicon-512x512-1.png\",\"width\":512,\"height\":512,\"caption\":\"NephCure\"},\"image\":{\"@id\":\"https:\\\/\\\/nephcure.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/nephcure\\\/\",\"https:\\\/\\\/x.com\\\/nephcure\",\"https:\\\/\\\/www.instagram.com\\\/nephcure\\\/\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/nephcure\\\/\",\"https:\\\/\\\/www.youtube.com\\\/user\\\/Nephcure\"]}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Anthony S. - NephCure","description":"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/nephcure.org\/es\/historia-del-paciente\/anthony-s\/","og_locale":"es_MX","og_type":"article","og_title":"Anthony S.","og_description":"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.","og_url":"https:\/\/nephcure.org\/es\/historia-del-paciente\/anthony-s\/","og_site_name":"NephCure","article_publisher":"https:\/\/www.facebook.com\/nephcure\/","article_modified_time":"2025-07-31T01:19:20+00:00","og_image":[{"width":1920,"height":2560,"url":"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/07\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_site":"@nephcure","twitter_misc":{"Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/","url":"https:\/\/nephcure.org\/patient-story\/anthony-s\/","name":"Anthony S. - NephCure","isPartOf":{"@id":"https:\/\/nephcure.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/#primaryimage"},"image":{"@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/#primaryimage"},"thumbnailUrl":"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/07\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg","datePublished":"2025-07-31T01:19:15+00:00","dateModified":"2025-07-31T01:19:20+00:00","description":"Anthony, my 5-year-old son, has been battling minimal change nephrotic syndrome since he was 2. Diagnosed after a bizarre swelling episode post-COVID, - Read more about Anthony S. on NephCure.","breadcrumb":{"@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/nephcure.org\/patient-story\/anthony-s\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/#primaryimage","url":"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/07\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg","contentUrl":"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/07\/fc6762bb-7f90-43ce-8898-5484ec4c496a-upload_images-IMG_6684-scaled.jpeg","width":1920,"height":2560},{"@type":"BreadcrumbList","@id":"https:\/\/nephcure.org\/patient-story\/anthony-s\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/nephcure.org\/"},{"@type":"ListItem","position":2,"name":"Patient Stories","item":"https:\/\/nephcure.org\/patient-stories\/"},{"@type":"ListItem","position":3,"name":"Anthony S."}]},{"@type":"WebSite","@id":"https:\/\/nephcure.org\/#website","url":"https:\/\/nephcure.org\/","name":"NephCure","description":"Para enfermedades renales raras","publisher":{"@id":"https:\/\/nephcure.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/nephcure.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/nephcure.org\/#organization","name":"NephCure","url":"https:\/\/nephcure.org\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/nephcure.org\/#\/schema\/logo\/image\/","url":"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/03\/cropped-NephCure-favicon-512x512-1.png","contentUrl":"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/03\/cropped-NephCure-favicon-512x512-1.png","width":512,"height":512,"caption":"NephCure"},"image":{"@id":"https:\/\/nephcure.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/nephcure\/","https:\/\/x.com\/nephcure","https:\/\/www.instagram.com\/nephcure\/","https:\/\/www.linkedin.com\/company\/nephcure\/","https:\/\/www.youtube.com\/user\/Nephcure"]}]}},"_links":{"self":[{"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/patient-story\/36119","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/patient-story"}],"about":[{"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/types\/patient-story"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/media\/36120"}],"wp:attachment":[{"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/media?parent=36119"}],"wp:term":[{"taxonomy":"age-group","embeddable":true,"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/age-group?post=36119"},{"taxonomy":"disease-category","embeddable":true,"href":"https:\/\/nephcure.org\/es\/wp-json\/wp\/v2\/disease-category?post=36119"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}