{"id":31154,"date":"2024-07-23T16:55:53","date_gmt":"2024-07-23T20:55:53","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&#038;p=31154"},"modified":"2024-07-23T16:55:59","modified_gmt":"2024-07-23T20:55:59","slug":"imani-m-4","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/ayeza-b\/","title":{"rendered":"Ayeza B."},"content":{"rendered":"<p class=\"wp-block-paragraph\">Mi hija se llama Ayeza. Le diagnosticaron s\u00edndrome del nervio ci\u00e1tico central cuando ten\u00eda apenas un mes y medio de edad. El m\u00e9dico nos dijo que los ni\u00f1os con esta enfermedad solo sobreviven hasta que tienen un m\u00e1ximo de dos a\u00f1os y medio. Inmediatamente le empezaron a administrar medicamentos y a los cuatro a\u00f1os le diagnosticaron enfermedad renal. Y la derivaron a di\u00e1lisis. Despu\u00e9s de cuatro meses de di\u00e1lisis, comenzamos su proceso de trasplante de ri\u00f1\u00f3n. <\/p>\n\n\n<div class=\"gb-container gb-container-c7dc7f60\">\n<div class=\"gb-container gb-container-cbd489c8 blockquote-custom\">\n\n<blockquote class=\"wp-block-quote blockquote-custom is-style-plain is-layout-flow wp-block-quote-is-layout-flow\" style=\"font-size:25px;font-style:normal;font-weight:400\">\n<h2 class=\"gb-headline gb-headline-3a632169 gb-headline-text\">Como su padre, tengo la esperanza de que pueda recibir el trasplante de ri\u00f1\u00f3n sin aumento de tama\u00f1o. Una vez que se cure el reflujo, espero poder donarle mi ri\u00f1\u00f3n. Mientras tanto, rezamos para que no haya m\u00e1s obst\u00e1culos.<\/h2>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\">Como padre, decid\u00ed donarle mi ri\u00f1\u00f3n y, por suerte, era compatible. Pero luego surgi\u00f3 otro obst\u00e1culo cuando la prueba de reflujo por sistoscopia dio resultados negativos y el hospital de Pakist\u00e1n se neg\u00f3 a realizar el trasplante antes de la reconstituci\u00f3n. Hace cuatro a\u00f1os que est\u00e1 en di\u00e1lisis. <\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-f0ac466d\"><\/div>\n<\/div>\n\n\n<p class=\"wp-block-paragraph\">Me dijeron que la cirug\u00eda de aumento tiene sus complicaciones y que habr\u00e1 que recurrir a medicamentos para solucionarlas con la ayuda de un tubo externo. Est\u00e1 muy d\u00e9bil. Como padre de la paciente, tengo la esperanza de que reciba el trasplante de ri\u00f1\u00f3n sin cirug\u00eda de aumento. Una vez que se cure el reflujo, espero poder donarle mi ri\u00f1\u00f3n. Mientras tanto, rezamos para que no haya m\u00e1s obst\u00e1culos.<\/p>","protected":false},"excerpt":{"rendered":"<p>My daughter&#8217;s name is Ayeza. She was diagnosed with CNS at only 1.5 months old. The doctor told us that children with this disease only survive until they are maximum &#8230; <a title=\"Ayeza B.\" class=\"read-more\" href=\"https:\/\/nephcure.org\/es\/patient-story\/ayeza-b\/\" aria-label=\"Leer m\u00e1s sobre Ayeza B.\">Leer m\u00e1s<\/a><\/p>","protected":false},"featured_media":31155,"template":"","age-group":[279],"disease-category":[252],"class_list":["post-31154","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-children","disease-category-nephrotic-syndrome"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.1 (Yoast SEO v28.1) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Ayeza B. - NephCure<\/title>\n<meta name=\"description\" content=\"My daughter&#039;s name is Ayeza. She was diagnosed with CNS at only 1.5 months old. 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