{"id":26334,"date":"2024-03-15T14:30:01","date_gmt":"2024-03-15T18:30:01","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&p=26334"},"modified":"2024-04-29T20:28:07","modified_gmt":"2024-04-30T00:28:07","slug":"seferiana-d","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/seferiana-d\/","title":{"rendered":"Seferiana D."},"content":{"rendered":"

A Seferiana Day le diagnosticaron nefropat\u00eda membranosa primaria y enfermedad renal cr\u00f3nica en etapa 1 en febrero de 2016. Seferiana, una mujer de 30 a\u00f1os por lo dem\u00e1s activa y saludable, consult\u00f3 a su m\u00e9dico despu\u00e9s de notar una hinchaz\u00f3n inusual en sus tobillos. Una serie de pruebas descartaron lupus, VIH y otras enfermedades autoinmunes, y tres meses despu\u00e9s de que comenzara la inflamaci\u00f3n inicial, una biopsia de ri\u00f1\u00f3n concluy\u00f3 su diagn\u00f3stico de MN.<\/p>\n\n\n

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Seferiana pas\u00f3 de ser una \u00e1vida corredora de media marat\u00f3n, a no poder caminar c\u00f3modamente debido a una fuerte hinchaz\u00f3n en sus piernas y abdomen. A los seis meses de su diagn\u00f3stico, Seferiana gan\u00f3 30 libras de peso de agua y ya no pod\u00eda correr largas distancias c\u00f3modamente. En un buen d\u00eda, trotaba una milla o hasta que el agua le llenaba los tobillos y las rodillas. Busc\u00f3 acupuntura y masajes linf\u00e1ticos para aliviar la hinchaz\u00f3n, con poco \u00e9xito. Se pon\u00eda un par de calcetines de compresi\u00f3n y descansaba con las piernas apoyadas en la pared para un respiro temporal. Asist\u00eda a eventos de trabajo y networking profesional, s\u00f3lo para salir temprano debido a la extrema hinchaz\u00f3n y dolor en sus piernas y pies. Mientras intentaba hacer las cosas que alguna vez am\u00f3, MN estaba obstaculizando su vida diaria.<\/p>\n\n\n

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Seferiana comparte su historia para resaltar la necesidad de encontrar una cura para la MN y tiene la esperanza de que la remisi\u00f3n est\u00e9 en el horizonte.<\/h2>\n<\/blockquote>\n\n<\/div>\n\n
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Mientras tomaba ciclosporina, Seferiana realiz\u00f3 la prueba del anticuerpo PLA2R, que result\u00f3 positivo. Despu\u00e9s de no ver una mejora real en la p\u00e9rdida de prote\u00ednas, su nefr\u00f3logo orden\u00f3 tratamientos con Rituximab a fines de 2017. Rituximab finalmente redujo sus niveles de PLA2R a un rango indetectable y su hinchaz\u00f3n disminuy\u00f3 significativamente. Con un plan de tratamiento m\u00ednimo de Losart\u00e1n durante el primer a\u00f1o y medio de la pandemia, los niveles de prote\u00edna de Seferiana aumentaron una vez m\u00e1s y una nueva biopsia mostr\u00f3 cicatrices adicionales y que su enfermedad renal hab\u00eda progresado a la Etapa 3.<\/p>\n\n\n\n

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Luego se le recomend\u00f3 a Seferiana ciclofosfamida como la siguiente opci\u00f3n viable, porque nunca hab\u00eda logrado la remisi\u00f3n con tratamientos anteriores. Ella rechaz\u00f3 el tratamiento debido al probable efecto secundario de infertilidad. A los 35 a\u00f1os deseaba formar una familia y no pod\u00eda imaginar correr ese riesgo. Una ronda reciente de Rituximab en octubre de 2022 hizo que los niveles de alb\u00famina en sangre de Seferiana alcanzaran niveles verdes por primera vez en siete a\u00f1os, y su p\u00e9rdida de prote\u00ednas es menos grave y est\u00e1 disminuyendo lentamente. La enfermedad de Seferiana no es evidente en apariencia y la hinchaz\u00f3n es menos frecuente, pero los efectos f\u00edsicos internos y de salud mental de los \u00faltimos siete a\u00f1os son muy reales. Seferiana comparte su historia para resaltar la necesidad de encontrar una cura para la MN y tiene la esperanza de que la remisi\u00f3n est\u00e9 en el horizonte.<\/p>","protected":false},"excerpt":{"rendered":"

A Seferiana Day le diagnosticaron nefropat\u00eda membranosa primaria y enfermedad renal cr\u00f3nica en etapa 1 en febrero de 2016. Una mujer de 30 a\u00f1os, por lo dem\u00e1s activa y saludable...<\/p>","protected":false},"featured_media":26335,"template":"","age-group":[278],"disease-category":[254],"class_list":["post-26334","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-adults","disease-category-membranous-nephropathy-mn"],"acf":[],"yoast_head":"\nSeferiana D. - NephCure<\/title>\n<meta name=\"description\" content=\"Seferiana Day was diagnosed with Primary Membranous Nephropathy and Stage 1 Chronic Kidney Disease in February 2016. 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