{"id":26288,"date":"2024-03-14T16:45:54","date_gmt":"2024-03-14T20:45:54","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&p=26288"},"modified":"2024-03-14T16:45:56","modified_gmt":"2024-03-14T20:45:56","slug":"kimberly-q","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/kimberly-q\/","title":{"rendered":"kimberly q."},"content":{"rendered":"

A Kimberly le diagnosticaron glomeruloesclerosis focal y segmentaria (FSGS) a la edad de 25 a\u00f1os. Kimberly program\u00f3 una cita con su m\u00e9dico debido a una gran hinchaz\u00f3n en sus piernas. El m\u00e9dico orden\u00f3 una muestra de orina que mostr\u00f3 niveles altos de prote\u00ednas y la remiti\u00f3 a un nefr\u00f3logo. Al reunirse con el nefr\u00f3logo, a Kimberly le extrajeron sangre, le hicieron una ecograf\u00eda y, por \u00faltimo, le hicieron una biopsia de ri\u00f1\u00f3n que dio como resultado una respuesta. El primer paso fueron 60 mg de prednisona en un esfuerzo por combatir la FSGS. Desafortunadamente, Kimberly experiment\u00f3 diversos efectos secundarios negativos. Adem\u00e1s, durante todo este tiempo continu\u00f3 ense\u00f1ando prek\u00ednder, lo que provoc\u00f3 que contrajera faringitis estreptoc\u00f3cica mientras ten\u00eda un sistema inmunol\u00f3gico d\u00e9bil. Por ello, fue hospitalizada en una unidad de UCI. Kimberly, a su vez, estaba en la pelea de su vida. Pas\u00f3 dos semanas en la UCI y dos meses en total en el hospital. Adem\u00e1s, Kimberly sufri\u00f3 uno de los raros efectos secundarios de la prednisona, que es la miopat\u00eda por esteroides, lo que provoc\u00f3 que Kimberly perdiera toda la fuerza muscular. Todo esto en conjunto result\u00f3 en que Kimberly pasara m\u00e1s de un a\u00f1o aprendiendo a caminar nuevamente.<\/p>\n\n\n\n

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El 7 de noviembre de 2014, Kimberly recibi\u00f3 su primer trasplante de ri\u00f1\u00f3n de su hermano John. Desafortunadamente, la FSGS regres\u00f3 inmediatamente en el ri\u00f1\u00f3n reci\u00e9n trasplantado, devastando completamente a Kimberly. Luego, su equipo m\u00e9dico comenz\u00f3 a administrarle altos niveles de esteroides una vez m\u00e1s, con pocos resultados. Ella, adem\u00e1s, empez\u00f3 a realizar tratamientos de plasmaf\u00e9resis diariamente. Adem\u00e1s, Kimberly prob\u00f3 numerosos reg\u00edmenes de medicaci\u00f3n que inclu\u00edan: medicamentos para la presi\u00f3n arterial, infusiones e inyecciones. Al final, lo que result\u00f3 eficaz fue una combinaci\u00f3n de tratamientos de plasmaf\u00e9resis semanales, gel Acther (3 veces por semana), medicamentos para la presi\u00f3n arterial y medicamentos habituales para trasplantes. Kimberly complet\u00f3 m\u00e1s de 400 tratamientos de plasmaf\u00e9resis en 6 a\u00f1os y medio.<\/p>\n\n\n

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Kimberly trabaja duro para intentar no dejar que la di\u00e1lisis le impida disfrutar de la vida y recibir\u00e1 su segundo trasplante de ri\u00f1\u00f3n de un donante vivo el 14 de marzo de 2023.<\/h2>\n<\/blockquote>\n\n<\/div>\n\n
<\/div>\n<\/div>\n\n\n

Con el alto nivel de esteroides, Kimberly se enfermaba con frecuencia y tambi\u00e9n desarrollaba el raro efecto secundario de AVN (necrosis avascular). A la edad de 36 a\u00f1os, le reemplazaron ambas caderas, adem\u00e1s de muchas cirug\u00edas y procedimientos vasculares para mantener su f\u00edstula funcionando correctamente. En abril de 2021, el ri\u00f1\u00f3n trasplantado de Kimberly comenz\u00f3 a fallar, lo que provoc\u00f3 que fuera hospitalizada en la UCI debido a una sobrecarga de l\u00edquidos. Tuvo que iniciar di\u00e1lisis nuevamente, sin embargo, opt\u00f3 por hacer di\u00e1lisis peritoneal, lo que le permite dializarse en casa y viajar con su familia. Kimberly trabaja duro para intentar no dejar que la di\u00e1lisis le impida disfrutar de la vida y recibir\u00e1 su segundo trasplante de ri\u00f1\u00f3n de un donante vivo el 14 de marzo de 2023.<\/p>","protected":false},"excerpt":{"rendered":"

A Kimberly le diagnosticaron glomeruloesclerosis focal y segmentaria (FSGS) a la edad de 25 a\u00f1os. Kimberly concert\u00f3 una cita con su m\u00e9dico debido a una gran hinchaz\u00f3n en sus piernas...<\/p>","protected":false},"featured_media":26291,"template":"","age-group":[278],"disease-category":[253],"class_list":["post-26288","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-adults","disease-category-focal-segmental-glomerulosclerosis-fsgs"],"acf":[],"yoast_head":"\nKimberly Q. - NephCure<\/title>\n<meta name=\"description\" content=\"Kimberly was diagnosed with Focal Segmental Glomerulosclerosis (FSGS) at the age of 25. 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