{"id":26214,"date":"2024-03-13T15:51:14","date_gmt":"2024-03-13T19:51:14","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&p=26214"},"modified":"2024-04-30T16:09:54","modified_gmt":"2024-04-30T20:09:54","slug":"kayaira","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/kayaira-s\/","title":{"rendered":"Keyaira S."},"content":{"rendered":"

A la edad de 11 a\u00f1os, a Keyaira le diagnosticaron s\u00edndrome nefr\u00f3tico. Antes de ser diagnosticada, era una ni\u00f1a sana. Un d\u00eda, se despert\u00f3 con los ojos hinchados y pens\u00f3 que simplemente estaba muy cansada. Luego, despu\u00e9s de unos d\u00edas m\u00e1s, la hinchaz\u00f3n progres\u00f3, lo que la hizo sentir muy inc\u00f3moda. Sus padres pensaron que padec\u00eda alergias. Despu\u00e9s de probar diferentes medicamentos de venta libre para aliviar los s\u00edntomas, notaron que el apetito de Keyaira disminu\u00eda cada vez m\u00e1s. Apenas com\u00eda pero ten\u00eda una sensaci\u00f3n de saciedad porque estaba reteniendo l\u00edquidos. Pronto, todo su cuerpo se hinch\u00f3 y continu\u00f3 quej\u00e1ndose de c\u00f3mo me sent\u00eda. Sus padres llevaron a Keyaira a urgencias y all\u00ed descubrieron que ten\u00eda s\u00edndrome nefr\u00f3tico.<\/p>\n\n\n\n

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Antes de ser diagnosticados, nunca hab\u00edan o\u00eddo hablar del s\u00edndrome nefr\u00f3tico. Pasaron uno o dos d\u00edas y Keyaira tuvo su primera biopsia de ri\u00f1\u00f3n. Despu\u00e9s de algunas semanas, los resultados indicaron que ten\u00eda la enfermedad de cambios m\u00ednimos (MCD). Su vida cambi\u00f3 instant\u00e1neamente. Cuando era ni\u00f1o, eso era mucho que procesar f\u00edsica y mentalmente. Ten\u00eda mucho miedo porque no sab\u00eda qu\u00e9 significaba todo esto para su vida\u2026<\/p>\n\n\n

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Tener esta enfermedad es una monta\u00f1a rusa, pero Keyaira siente mucha alegr\u00eda al compartir su historia con los dem\u00e1s. Aunque esta enfermedad es una lucha cotidiana, saber que su historia puede impactar a otros le hace querer seguir luchando.<\/h2>\n<\/blockquote>\n\n<\/div>\n\n
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Los m\u00e9dicos le recetaron prednisona en dosis altas y Keyaira respondi\u00f3 muy bien a este tratamiento. Aunque la prednisona ayud\u00f3, le provoc\u00f3 tantos otros efectos secundarios que muchas veces se sent\u00eda abrumada. Ella contin\u00faa siendo tratada con prednisona y tratar de dejar los esteroides ha sido una monta\u00f1a rusa porque su cuerpo se ha vuelto dependiente de ellos. Tambi\u00e9n ha probado m\u00faltiples medicamentos inmunosupresores para ayudar con el proceso de destete, pero todos los intentos han fracasado. El objetivo ha sido reducir la dosis a una dosis m\u00e1s baja o dejar de tomar prednisona por completo, pero cada vez que intentamos dejarla lentamente, ella recae.<\/p>\n\n\n\n

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Tener esta enfermedad ha provocado que Keyaira tambi\u00e9n tenga otras complicaciones, como embolias pulmonares, aumento excesivo de peso, desprendimiento de huesos y m\u00e1s. En 2020, contrajo Covid-19 y casi pierde la vida. Perdi\u00f3 la mitad de la sangre de su cuerpo y, al estar nuevamente en el hospital por millon\u00e9sima vez, se deprimi\u00f3. Entre la prednisona y sus propios pensamientos, la sensaci\u00f3n se volvi\u00f3 abrumadora. Sab\u00eda que no quer\u00eda permanecer en esa mentalidad y busc\u00f3 ayuda, fue a terapia y con el tiempo empez\u00f3 a sentirse mejor. Tener esta enfermedad es una monta\u00f1a rusa, pero Keyaira siente mucha alegr\u00eda al compartir su historia con los dem\u00e1s. Aunque esta enfermedad es una lucha cotidiana, saber que su historia puede impactar a otros le hace querer seguir luchando. Todos soportamos algo en la vida, pero depende de nosotros encontrar la belleza en nuestras historias. Ha decidido que esta enfermedad no la derribar\u00e1, sino que la utilizar\u00e1 como combustible para ayudar a los dem\u00e1s.<\/p>","protected":false},"excerpt":{"rendered":"

A la edad de 11 a\u00f1os, a Keyaira le diagnosticaron s\u00edndrome nefr\u00f3tico. Antes de ser diagnosticada, ella era una ni\u00f1a sana\u2026 <\/p>","protected":false},"featured_media":26215,"template":"","age-group":[278],"disease-category":[252],"class_list":["post-26214","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-adults","disease-category-nephrotic-syndrome"],"acf":[],"yoast_head":"\nKeyaira S. - NephCure<\/title>\n<meta name=\"description\" content=\"At the age of 11, Keyaira was diagnosed with Nephrotic Syndrome. 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