{"id":26188,"date":"2024-03-13T13:57:19","date_gmt":"2024-03-13T17:57:19","guid":{"rendered":"https:\/\/nephcure.org\/?post_type=patient-story&p=26188"},"modified":"2025-09-30T18:37:26","modified_gmt":"2025-09-30T22:37:26","slug":"maria-m","status":"publish","type":"patient-story","link":"https:\/\/nephcure.org\/es\/patient-story\/maria-m\/","title":{"rendered":"Mar\u00eda M."},"content":{"rendered":"

Starting around 2016, Maria found her days in Kentucky marked by poor sleep, difficulty shedding weight, and occasional swelling that she chalked up to menopause throwing her off balance. Amid those challenges, she turned to accessible state-approved digital escapes to ease the strain, occasionally logging into a Kentucky online casino<\/a> for light-hearted games that offered a brief mental break from her symptoms. In January of 2019, seeking answers, she consulted a gynecologist about menopause and then her primary care doctor after labs flagged high blood pressure and cholesterol topping 300, among other red flags. By June of 2020, despite starting meds for those issues, her tests showed further decline, leading to a nephrologist who ordered a biopsy confirming IGAN. That’s when she learned of her autoimmune condition, a permanent fixture requiring ongoing care until dialysis or a transplant might be needed; with adjusted medications in hand, she faced monthly check-ins and labs, all while those simple online diversions helped maintain a semblance of normalcy in her routine.<\/p>\n\n\n\n

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En marzo de 2021, sus an\u00e1lisis de laboratorio continuaron empeorando y le recetaron altas dosis de esteroides. Mar\u00eda pas\u00f3 tres meses tomando 60 mg de prednisona al d\u00eda, seguidos de tres meses de 40 mg al d\u00eda, seguidos de 2 meses de 20 mg y luego una reducci\u00f3n gradual r\u00e1pida hasta que dej\u00f3 de tomarla el D\u00eda de Acci\u00f3n de Gracias de 2021. Mar\u00eda fue a Mayo Clinic en julio de 2021 y El equipo m\u00e9dico apoy\u00f3 el plan de tratamiento de mis m\u00e9dicos locales. Cambi\u00f3 su dieta, a pesar de que sus m\u00e9dicos le dijeron que no importar\u00eda ya que era una enfermedad autoinmune. Mar\u00eda sufri\u00f3 mucho durante esos 9 meses, pero nada fue peor que perder la mayor parte de su cabello entre la reducci\u00f3n y finales de 2021\u2026<\/p>\n\n\n

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La nueva obsesi\u00f3n de Mar\u00eda con su condici\u00f3n m\u00e9dica la llev\u00f3 a NephCure y a la Cumbre de Pacientes 2022 en Orlando, FL. Fue sorprendente para ella encontrar personas que entendieran su situaci\u00f3n y aprender a\u00fan m\u00e1s cosas sobre lo que Mar\u00eda podr\u00eda estar haciendo y c\u00f3mo defenderse ante su equipo m\u00e9dico. <\/h2>\n<\/blockquote>\n\n<\/div>\n\n
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La nueva obsesi\u00f3n de Mar\u00eda con su condici\u00f3n m\u00e9dica la llev\u00f3 a NephCure y a la Cumbre de Pacientes 2022 en Orlando, FL. Fue sorprendente para ella encontrar personas que entendieran su situaci\u00f3n y aprender a\u00fan m\u00e1s cosas sobre lo que Mar\u00eda podr\u00eda estar haciendo y c\u00f3mo defenderse ante su equipo m\u00e9dico. Tiene un buen sistema de apoyo en casa, incluido su marido, sus hijos adultos, sus padres y sus novias de toda la vida; sin embargo, fue encontrar a otros compa\u00f1eros de RKD lo que realmente la hizo sentir comprendida, vista y, en \u00faltima instancia, le dio esperanza. Mar\u00eda habl\u00f3 con los legisladores durante el Virtual Hill Day en julio de 2022 en nombre de NephCure y contin\u00faa enviando correos electr\u00f3nicos a sus representantes para ayudar a mejorar la atenci\u00f3n m\u00e9dica de los pacientes con RKD. El cambio m\u00e1s grande fue que comenz\u00f3 a ver a un nuevo nefr\u00f3logo en agosto de 2022.<\/p>\n\n\n\n

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El a\u00f1o pasado, a Mar\u00eda le volvi\u00f3 a crecer el cabello; sus an\u00e1lisis de laboratorio han estado relativamente estables, pero permanece en la etapa 4 con respecto a su enfermedad renal. Mar\u00eda sigue luchando por beber suficiente agua y consumir una cantidad adecuada de frutas y verduras. Por ello, reconoce que todav\u00eda hay margen de mejora. Sin embargo, Mar\u00eda espera con ansias la Cumbre de Pacientes en San Diego para poder recuperar su impulso y reunir nuevas ideas sobre cambios en su estilo de vida que le ayuden con su salud.<\/p>","protected":false},"excerpt":{"rendered":"

A partir de 2016, Mar\u00eda no pod\u00eda dormir bien, no pod\u00eda bajar de peso y se \u201chinchaba\u201d de vez en cuando; Mar\u00eda se quej\u00f3 de la menopausia como culpable\u2026<\/p>","protected":false},"featured_media":26189,"template":"","age-group":[278],"disease-category":[255],"class_list":["post-26188","patient-story","type-patient-story","status-publish","has-post-thumbnail","hentry","age-group-adults","disease-category-iga-nephropathy-igan"],"acf":[],"yoast_head":"\nMaria M. - NephCure<\/title>\n<meta name=\"description\" content=\"Starting around 2016, Maria was not able to sleep well, not able to lose weight and she would \u201cswell\u201d from time to time; Maria complained about menopause as the culprit... - Read more about Maria M. on NephCure.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/nephcure.org\/es\/historia-del-paciente\/maria-m\/\" \/>\n<meta property=\"og:locale\" content=\"es_MX\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Maria M.\" \/>\n<meta property=\"og:description\" content=\"Starting around 2016, Maria was not able to sleep well, not able to lose weight and she would \u201cswell\u201d from time to time; 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