{"id":8,"date":"2018-08-22T08:55:31","date_gmt":"2018-08-22T08:55:31","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=8"},"modified":"2025-12-11T07:12:44","modified_gmt":"2025-12-11T12:12:44","slug":"hogar","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/","title":{"rendered":"Hogar"},"content":{"rendered":"
\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n\n
\n\n

Creating a better world for everyone affected by rare, protein-spilling kidney disease<\/mark><\/h1>\n\n\n\n

Rare kidney disease (RKD) touches thousands of lives across the globe every day. NephCure is shaping the future of RKD by empowering patients to take charge of their health, while leading the revolution in research, new treatments, and care. Together, we\u2019re helping everyone affected by RKD thrive\u2014and each day, getting one step closer to a cure.<\/p>\n\n\n

\n\nGET INVOLVED<\/a>\n\n\n\nWHAT WE DO<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n
\n
\n
\n\n
\"Headline<\/figure>\n\n\n\n

Diagnosed with a rare, protein-spilling kidney disease? You\u2019re not alone.<\/h2>\n\n\n\n

If you or a loved one is coping with FSGS, IgA nephropathy, or another nephrotic syndrome, the path forward doesn\u2019t always seem clear. No matter where you are in your journey, NephCure is here to support you, and connect you with the right tools, resources, and care.<\/p>\n\n<\/div>\n\n

\n
\n
\n\n–<\/span>\n\n\n\n+<\/span>\n\n<\/div>\n\n\n
\"\"<\/figure>\n\n\n\n

Newly Diagnosed<\/p>\n\n\n

\n\n

Newly Diagnosed?<\/h3>\n\n\n\n

For so many people, coping with a recent diagnosis of rare kidney disease means feeling afraid, worried, or even alone. Take back your health and your hope by understanding your disease. We\u2019ve compiled these introductory resources to help get you started.<\/p>\n\n\n\nSTART HERE<\/a>\n\n<\/div>\n<\/div>\n\n

\n
\n\n–<\/span>\n\n\n\n+<\/span>\n\n<\/div>\n\n\n
\"\"<\/figure>\n\n\n\n

Find a Specialist<\/p>\n\n\n

\n\n

Find a Specialist<\/h3>\n\n\n\n

The understanding of rare kidney disease evolves every day. To provide the best care possible, NephCure Specialists stay on the cutting edge of the latest research, treatment options, and clinical trials, while sharing resources with the RKD community. Better care is only a click away.<\/p>\n\n\n\nFIND A SPECIALIST<\/a>\n\n<\/div>\n<\/div>\n\n

\n
\n\n–<\/span>\n\n\n\n+<\/span>\n\n<\/div>\n\n\n
\"\"<\/figure>\n\n\n\n

Clinical Trials<\/p>\n\n\n

\n\n

Explore Treatments Currently In Trial<\/h3>\n\n\n\n

The world of RKD therapies is evolving fast. As scientists and medical professionals learn more about rare, protein-spilling kidney diseases, patients everywhere gain access to clinical trials for the best care possible and latest treatment options. Learn more to see if you or a loved one would be a good fit for one of the current trial opportunities.<\/p>\n\n\n\nSEE CLINICAL TRIALS<\/a>\n\n<\/div>\n<\/div>\n\n

\n
\n\n–<\/span>\n\n\n\n+<\/span>\n\n<\/div>\n\n\n
\"\"<\/figure>\n\n\n\n

Get Support Now<\/p>\n\n\n

\n\n

Get Support Now<\/h3>\n\n\n\n

Not sure where to begin? For more than 20 years, NephCure has helped RKD patients and their loved ones navigate the ins and outs of these challenging diseases. Reach out today and we\u2019ll welcome you into our community, guiding you to the resources you need.<\/p>\n\n\n\nGet Support<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n

\n
\n\n
\"\"<\/figure>\n\n<\/div>\n\n
\n\n
\"\"<\/figure>\n\n\n\n

For Rare Kidney Disease. For a Brighter Future.<\/h2>\n\n\n\n

Since 2000, NephCure has led the charge in creating a better reality for everyone affected by RKD by funding and advancing research, supporting patients, advocating for change, and creating a community. Learn more about the history, mission, and team behind our organization.<\/p>\n\n\n\nABOUT US<\/a>\n\n<\/div>\n<\/div>\n\n

\n
\n\n
\"\"<\/figure>\n\n\n\n

Become a Volunteer<\/h2>\n\n\n\n

Our volunteers help the Rare Kidney Disease (RKD) community thrive while advocating for important awareness and change. Explore open volunteering opportunities that need your support, and join us in our mission of empowering people with rare, protein-spilling kidney diseases to take back their health.<\/p>\n\n\n\nGET INVOLVED<\/a>\n\n<\/div>\n\n

\n\n
\"\"<\/figure>\n\n<\/div>\n<\/div>\n<\/section>\n\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n\n
\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n\n
\n\n

Your Support Isn\u2019t Just Help. It\u2019s Hope.<\/h2>\n\n\n\n

The enormous progress we\u2019ve made depends on the generous support of our community and donors. Give back today to help us create a world where all who are affected by rare, protein-spilling kidney diseases are connected to new and better treatments\u2014and one day, a cure.<\/p>\n\n\n\nGIVE TODAY<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n\n

\n\n
\"\"<\/figure>\n\n<\/div>\n<\/section>\n\n
\n\n
\"\"<\/figure>\n\n\n\n

Stories From Patients & Families<\/h2>\n\n\n
\n
\n
\n
\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n<\/div>\n\n
\n\n

Keyaira S.<\/h3>\n\n\n\n

At the age of 11, Keyaira was diagnosed with Nephrotic Syndrome. Before being diagnosed, she was a healthy child. One day, she woke up with puffiness around her eyes…<\/p>\n\n\n\n

Read More<\/a><\/p>\n\n<\/div>\n<\/div><\/div>\n\n

\n\n
\"\"<\/figure>\n\n\n
\n\n

\u201cAfter this storm in our life, NephCure is like a rainbow giving us hope and has also been an enormous reason for Sean\u2019s continued health despite his RKD diagnosis and its challenges. I am overwhelmed by all the gifts NephCure has brought to our life and that NephCure is Sean’s team now!\u201d<\/p>\n\n\n\n

Diane C.
<\/strong>Patient Parent<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n<\/div>\n\n
\n\n

Macy H.<\/h3>\n\n\n\n

Macy was diagnosed at the age of three with Nephrotic Syndrome in 2009, when she presented with swollen eyelids. Initially, she was misdiagnosed with allergies, but eventually the swelling spread…<\/p>\n\n\n\n

Read More<\/a><\/p>\n\n<\/div>\n<\/div><\/div>\n\n

\n\n
\"\"<\/figure>\n\n\n
\n\n

\u201cWhen NephCure became part of my journey, it was a big turning point for me mentally. I felt like I had a whole support group, a whole family, outside of my family.\u201d  <\/p>\n\n\n\n

Joshua A.
<\/strong>FSGS Patient<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

\n
\n
\n\n
\"\"<\/figure>\n\n<\/div>\n<\/div>\n\n
\n\n

Sean C.<\/h3>\n\n\n\n

Sean Converse is a 19-year-old Sophomore studying Communications at Saint Anselm College in Goffstown, New Hampshire. Sean was diagnosed with IgA Nephropathy (IgAN) after battling….<\/p>\n\n\n\n

Read More<\/a><\/p>\n\n<\/div>\n<\/div><\/div>\n\n

\n\n
\"\"<\/figure>\n\n\n
\n\n

\u201cWhen I found NephCure, I felt a sense of community, I felt a sense of hope. In all the research they are doing, they will help future children to eventually have better medications and to be able to find a cure.\u201d <\/p>\n\n\n\n

Cameo C.
<\/strong>Parent Patient<\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n\n

\n
\n\n
\"\"<\/figure>\n\n\n\n

Resources for Rare Kidney Diseases<\/h2>\n\n\n
\n\n
\n
\n
<\/a>\n
\n
\"Nephcure<\/figure>\n\n
\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Informational Documents<\/span>\n\n

Sparsentan\u00a0(FILSPARI) for FSGS:\u00a0FAQs<\/h4>\n<\/div>\n<\/div><\/div>\n\n
\n
<\/a>\n
\n
\"\"<\/figure>\n\n
\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Fact Sheet<\/span>\n\n

Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome<\/h4>\n<\/div>\n<\/div><\/div>\n\n
\n
<\/a>\n
\n
\"\"<\/figure>\n\n
\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Video<\/span>\n\n

A First for FSGS Patients: What the sparsentan Approval Means for You<\/h4>\n<\/div>\n<\/div><\/div>\n\n
\n
<\/a>\n
\n
\"\"<\/figure>\n\n
\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Educational Materials<\/span>\n\n

School Accomodations<\/h4>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n<\/div>\n\n\nALL RESOURCES<\/a>\n\n<\/div>\n\n
\n\n
\"\"<\/figure>\n\n\n\n

The Latest Events & News<\/h2>\n\n\n
\n
\n\n
\n
\n
<\/a>\n
\n

Membranous Nephropathy Awareness Day 2026<\/h2>\n\n
Patient Program<\/span><\/div>\n<\/div>\n\n
\nAugust<\/span>\n\n11<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n
\n
<\/a>\n
\n

NephCure Adult Support Group<\/h2>\n\n
Support Group<\/span><\/div>\n<\/div>\n\n
\nAugust<\/span>\n\n13<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n
\n\nALL EVENTS<\/a>\n\n<\/div>\n<\/div><\/div>\n\n
\n\n
\n
\n
<\/a>\n
\n

News<\/span><\/p>\n\n

The FDA Grants Accelerated Approval to Atacicept for Adults with IgAN<\/h2>\n\n

\n
<\/a>\n
\n

News<\/span><\/p>\n\n

NephCure\u00a0Celebrates FSGS Awareness Day on June 9th, 2026\u00a0<\/h2>\n\n

\n\nALL NEWS<\/a>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n
\n\n
\"\"<\/figure>\n\n\n
\n\n

Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\nSIGN UP<\/a>\n\n\n
\n