{"id":37842,"date":"2026-04-08T15:14:26","date_gmt":"2026-04-08T19:14:26","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=37842"},"modified":"2026-05-12T15:27:08","modified_gmt":"2026-05-12T19:27:08","slug":"igan-awareness-day-2026","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/igan-awareness-day-2026\/","title":{"rendered":"IgAN Awareness Day 2026"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">IgAN Awareness Day 2026<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n<div class=\"gb-container gb-container-d9a66771\">\n\n<figure class=\"gb-block-image gb-block-image-d03cca16\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"370\" class=\"gb-image gb-image-d03cca16\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3.png\" alt=\"\" title=\"Logo's for event tile cards3\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3.png 1200w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3-300x93.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3-1024x316.png 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3-768x237.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3-18x6.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/04\/Logos-for-event-tile-cards3-600x185.png 600w\" sizes=\"auto, (max-width: 1200px) 100vw, 1200px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-87fdd514\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\"><strong>IgAN Awareness Day 2026<\/strong><br>May 14th<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>&nbsp;<\/strong>On May 14, 2026,&nbsp;NephCure celebrates IgAN Awareness Day \u2014 a dedicated time to raise our voices and drive real progress for those affected by IgA nephropathy (IgAN).&nbsp;IgAN&nbsp;is a rare kidney disease in which a protein called Immunoglobulin A (IgA), part of the body\u2019s immune system, builds up in the kidneys, causing&nbsp;inflammation&nbsp;and overtime, scarring that can lead to kidney failure.&nbsp;For the first time, there are FDA-approved treatments&nbsp;that&nbsp;may help those&nbsp;impacted&nbsp;by&nbsp;IgAN!&nbsp;<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Whether you are living with&nbsp;IgAN, caring for someone who is, or a kidney disease advocate, we encourage you to join our&nbsp;live town hall\/panel&nbsp;on May 14<em>th<\/em>&nbsp;at 4:15pm CST to&nbsp;learn more about what&#8217;s next for IgAN, new treatment options, and more.&nbsp;<\/p>\n\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-317b8d32\">\n<div class=\"gb-grid-column gb-grid-column-60fda4e9\"><div class=\"gb-container gb-container-60fda4e9\">\n\n<a class=\"gb-button gb-button-e9fe023a gb-button-text gb-button-primary button free-handbook\" href=\"https:\/\/5n3q6.share.hsforms.com\/22uG0d8aFRaWb78r5jg8XyA\" target=\"_blank\" rel=\"noopener noreferrer\">sign up for livestream<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-b45e9505\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-d4ac8e2d\">\n<div class=\"gb-grid-column gb-grid-column-252bc541\"><div class=\"gb-container gb-container-252bc541\">\n\n<figure class=\"gb-block-image gb-block-image-4ac64150\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-4ac64150\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18.png\" alt=\"\" title=\"18\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18-18x10.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/18-600x332.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-93bfef93\"><div class=\"gb-container gb-container-93bfef93\">\n\n<figure class=\"gb-block-image gb-block-image-d95bd0b8\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-d95bd0b8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-8b25774b gb-headline-text\"><strong><strong>What is IgA Nephropathy?<\/strong><\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-aab7cdfb\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">IgA nephropathy (IgAN) is a kidney disease in which Immunoglobulin A (IgA) builds up in the kidney. IgA is a protein in the blood and is also part of the immune system. Excess IgA can cause inflammation in the kidney and over time, this leads to scarring in the kidney tissue. The severity of kidney disease caused by&nbsp;IgAN&nbsp;varies from person to person. As&nbsp;IgAN&nbsp;progresses, it reduces the kidneys\u2019 ability to filter waste from the blood.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Because symptoms can be subtle, many people are diagnosed late, making&nbsp;awareness&nbsp;and&nbsp;early action&nbsp;critical!&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-a587dc2f gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/intro-to-rkd\/types-of-rkd\/iga-nephropathy-igan\/\" target=\"_blank\" rel=\"noopener noreferrer\">LEARN MORE<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-66a1f6a3 hero-copy\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-4cb074f0\">\n<div class=\"gb-grid-column gb-grid-column-8e2391f8\"><div class=\"gb-container gb-container-8e2391f8\">\n\n<figure class=\"gb-block-image gb-block-image-f7f82062\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-f7f82062\" src=\"https:\/\/nephcuredev.wpengine.com\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-3d4808ec gb-headline-text\">The IgAN Journey Can be a Difficult One&nbsp;<\/h2>\n\n\n\n<p class=\"has-text-align-left wp-block-paragraph\">Hear the compelling stories of four IgA nephropathy patients from various backgrounds and lifestyles who have navigated the challenges of this condition.<\/p>\n\n\n\n<p class=\"has-text-align-left wp-block-paragraph\">Their experiences highlight the resilience, difficulties, and triumphs that come with managing a rare kidney disease. <\/p>\n\n\n\n<p class=\"has-text-align-left wp-block-paragraph\">Through their voices, we gain a deeper understanding of what it means to live with IgAN, and the importance of awareness, support, and research in improving the lives of those affected.<\/p>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-152f8901\"><div class=\"gb-container gb-container-152f8901 video-wrapper\">\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Living with IgA Nephropathy: The Personal Stories of Four Rare Kidney Disease Patients\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/Q8p1TNS2rds?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-5de60af0\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-526210ee\">\n<div class=\"gb-grid-column gb-grid-column-9143a54a\"><div class=\"gb-container gb-container-9143a54a\">\n\n<figure class=\"gb-block-image gb-block-image-85f831fd\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" class=\"gb-image gb-image-85f831fd\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-scaled.jpg\" alt=\"\" title=\"Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-scaled.jpg 2560w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-300x200.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-1024x683.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-768x512.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-1536x1024.jpg 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-2048x1365.jpg 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-18x12.jpg 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Portraits_PatientSummit_NephCure_May9_2024-PRINT-6-8670-600x400.jpg 600w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-3760d7df\"><div class=\"gb-container gb-container-3760d7df\">\n\n<figure class=\"gb-block-image gb-block-image-3344c83d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-3344c83d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-e6ff67c1 gb-headline-text\"><strong>New Treatments Are Changing What\u2019s Possible<\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-05f2c0d4\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">For decades, patients had limited treatment options. There are now multiple FDA-approved treatments for&nbsp;IgAN&nbsp;that target the disease in&nbsp;different ways, from reducing inflammation to lowering protein in the urine. Understanding these options and knowing the&nbsp;questions&nbsp;to ask your doctor can make a meaningful difference in your kidney health.&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-d774c79a gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/managing-rkd\/treatment-options\/\" target=\"_blank\" rel=\"noopener noreferrer\">LEARN MORE<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-703346ae\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-542c04e0\">\n<div class=\"gb-grid-column gb-grid-column-cc8ee133\"><div class=\"gb-container gb-container-cc8ee133\">\n\n<figure class=\"gb-block-image gb-block-image-b4ae0301\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-b4ae0301\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16.png\" alt=\"\" title=\"16\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16-18x10.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/16-600x332.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-bccfd069\"><div class=\"gb-container gb-container-bccfd069\">\n\n<figure class=\"gb-block-image gb-block-image-178a792a\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-178a792a\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-aaa60fb9 gb-headline-text\"><strong><strong><strong>Understanding and Navigating&nbsp;IgAN: An Essential Handbook<\/strong><\/strong><\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-73927d0f\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">Take charge of your journey with&nbsp;NephCure\u2019s&nbsp;comprehensive&nbsp;IgAN&nbsp;Patient Handbook\u2014an essential resource for anyone living with IgA nephropathy. This in-depth guide walks you through every stage, from diagnosis and treatment options to lifestyle guidance and important questions to discuss with your care team.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Access this valuable tool to better manage your rare kidney disease and feel more confident in your care. Complete the form to download your free copy and start taking control of your health today.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<a class=\"gb-button gb-button-f5357ae9 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/intro-to-rkd\/types-of-rkd\/iga-nephropathy-igan\/navigating-igan\/getmyiganhandbook\/\" target=\"_blank\" rel=\"noopener noreferrer\">Get Your Free handbook<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-0273e0bc\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-8b82c2c1\">\n<div class=\"gb-grid-column gb-grid-column-303c1cbd\"><div class=\"gb-container gb-container-303c1cbd\">\n\n<figure class=\"gb-block-image gb-block-image-69b9c140\"><img loading=\"lazy\" decoding=\"async\" width=\"1500\" height=\"1000\" class=\"gb-image gb-image-69b9c140\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324.jpg\" alt=\"\" title=\"Nephcure-Patient-Summit-NYC-2025-324\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324.jpg 1500w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324-300x200.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324-1024x683.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324-768x512.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324-18x12.jpg 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/05\/Nephcure-Patient-Summit-NYC-2025-324-600x400.jpg 600w\" sizes=\"auto, (max-width: 1500px) 100vw, 1500px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-3c0e9ab8\"><div class=\"gb-container gb-container-3c0e9ab8\">\n\n<figure class=\"gb-block-image gb-block-image-74ff18c7\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-74ff18c7\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-67067e9a gb-headline-text\"><strong>Help Spread Awareness<\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-02ae836f\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">Spread the word about IgAN Awareness Day! Share our downloadable graphics on your social media and use your voice to raise awareness. Be sure to check out the IgAN Awareness Day Toolkit\u2014it\u2019s packed with templates and tips to make posting easy and impactful. Don\u2019t forget to use #NephCureIgAN and tag @NephCure in your posts!<\/p>\n\n\n\n<a class=\"gb-button gb-button-6a4e8dea gb-button-text gb-button-primary button\" href=\"\/wp-content\/uploads\/2026\/05\/IgAN-Awareness-Day-Toolkit-1.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Download Toolkit<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<section class=\"gb-container gb-container-849b86a7\">\n<div class=\"gb-container gb-container-639129a5\">\n\n<figure class=\"gb-block-image gb-block-image-e5defb8d\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-e5defb8d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/top-curve.svg\" alt=\"\" title=\"top-curve\"\/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-84b68dd5\">\n<div class=\"gb-container gb-container-682d97c1 difference-wrapper\">\n<div class=\"gb-container gb-container-826754f7\">\n\n<h2 class=\"gb-headline gb-headline-a7e64ccd gb-headline-text difference-title\"><strong>Join the&nbsp;IgAN&nbsp;Live: Hear Directly from Experts<\/strong><\/h2>\n\n\n\n<p class=\"difference-copy wp-block-paragraph\">This&nbsp;IgAN&nbsp;Awareness Day, be part of the conversation. Join&nbsp;NephCure&nbsp;live from the&nbsp;IgAN&nbsp;Alliance Workshop&nbsp;that will bring together leading researchers, physicians, and patient voices for a live panel event.&nbsp;&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This is your opportunity to listen, learn and ask questions.&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-ff13e942 gb-button-text gb-button-primary button button-secondary\" href=\"https:\/\/5n3q6.share.hsforms.com\/22uG0d8aFRaWb78r5jg8XyA\" target=\"_blank\" rel=\"noopener noreferrer\">save your spot<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-a59b33c7\">\n\n<figure class=\"gb-block-image gb-block-image-d05c8035\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-d05c8035\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/bottom-curve.svg\" alt=\"\" title=\"bottom-curve\"\/><\/figure>\n\n<\/div>\n<\/section>\n\n\n\n\n\n<div class=\"gb-container gb-container-c233d5c3\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2e9362a0\">\n<div class=\"gb-grid-column gb-grid-column-e0ce7c56\"><div class=\"gb-container gb-container-e0ce7c56\">\n\n<figure class=\"gb-block-image gb-block-image-dc80a858\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1707\" class=\"gb-image gb-image-dc80a858\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-scaled.jpg\" alt=\"\" title=\"Doctor Taking Notes with Patient\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-scaled.jpg 2560w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-300x200.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-1024x683.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-768x512.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-1536x1024.jpg 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-2048x1365.jpg 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-18x12.jpg 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/Doctor-Taking-Notes-with-Patient-600x400.jpg 600w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-d9c58d43\"><div class=\"gb-container gb-container-d9c58d43\">\n\n<figure class=\"gb-block-image gb-block-image-ddef1990\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-ddef1990\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-f445ca2f gb-headline-text\"><strong>IgAN Alliance White Paper<\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-e81ea0ef\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">Explore the inaugural IgAN Alliance White Paper, <em>Overcoming the Barriers to Diagnosis and Treatment of IgA Nephropathy<\/em>, a report bringing together patients, caregivers, clinicians, advocacy organizations, and industry leaders to address the biggest challenges facing the IgAN community. This report highlights the urgent need for earlier diagnosis, faster access to kidney biopsy and specialist care, improved treatment access, stronger patient education, and better support for navigating insurance and clinical trials.<\/p>\n\n\n\n<a class=\"gb-button gb-button-12941479 gb-button-text gb-button-primary button\" href=\"\/wp-content\/uploads\/2026\/05\/NephCure_IgAN_WorkshopPaper_Final-2.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Read NOW<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-ccbd9285\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-e4c73048\">\n<div class=\"gb-grid-column gb-grid-column-44988657\"><div class=\"gb-container gb-container-44988657\">\n\n<figure class=\"gb-block-image gb-block-image-1c989387\"><img loading=\"lazy\" decoding=\"async\" width=\"2000\" height=\"1333\" class=\"gb-image gb-image-1c989387\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690.jpg\" alt=\"\" title=\"Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690.jpg 2000w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-300x200.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-1024x682.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-768x512.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-1536x1024.jpg 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-18x12.jpg 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/Portraits_PatientSummit_NephCure_May9_2024-WEB-42-9690-600x400.jpg 600w\" sizes=\"auto, (max-width: 2000px) 100vw, 2000px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-d32c8be2\"><div class=\"gb-container gb-container-d32c8be2\">\n\n<figure class=\"gb-block-image gb-block-image-057e348c\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-057e348c\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-7e26f006 gb-headline-text\"><strong><strong><strong>IgAN&nbsp;Alliance 2025 Workshop Summary<\/strong><\/strong><\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-16bd0c0a\"><\/div>\n\n\n<p class=\"wp-block-paragraph\">The first&nbsp;IgAN&nbsp;Alliance convening brought together a diverse group of stakeholders for an intensive workshop focused on&nbsp;identifying&nbsp;the most significant barriers in&nbsp;IgAN&nbsp;care.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Discussions highlighted delays in diagnosis, the need for stronger coordination between patients and providers, and ongoing access and evidence gaps that limit&nbsp;early treatment. Addressing these challenges will require collaboration across the community. Click below to view the full report.&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-5723ea11 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/intro-to-rkd\/types-of-rkd\/iga-nephropathy-igan\/the-igan-alliance\/#workshop-1-summary\" target=\"_blank\" rel=\"noopener noreferrer\">learn more<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"gb-container gb-container-b373ff11\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-8b43b737\">\n<div class=\"gb-grid-column gb-grid-column-6ce89e03\"><div class=\"gb-container gb-container-6ce89e03\">\n<div class=\"gb-container gb-container-ae106672\">\n\n<figure class=\"gb-block-image gb-block-image-5448e4e5\"><img loading=\"lazy\" decoding=\"async\" width=\"696\" height=\"788\" class=\"gb-image gb-image-5448e4e5\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/igan-awareness-shop-image2.png\" alt=\"\" title=\"igan awareness shop image2\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/igan-awareness-shop-image2.png 696w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/igan-awareness-shop-image2-265x300.png 265w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/igan-awareness-shop-image2-11x12.png 11w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/igan-awareness-shop-image2-600x679.png 600w\" sizes=\"auto, (max-width: 696px) 100vw, 696px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-355b5591\">\n\n<h2 class=\"gb-headline gb-headline-6f8b3340 gb-headline-text\"><strong>Wear Your Support<\/strong><\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-f52fd292 gb-headline-text\">Show your support and spark conversations this&nbsp;IgAN&nbsp;Awareness Day with our limited-edition t-shirt. Every shirt helps raise awareness of IgA nephropathy and supports efforts to improve patient care and research. Designed for comfort and impact,&nbsp;it\u2019s&nbsp;an easy way&nbsp;to stand with the&nbsp;IgAN&nbsp;community. Get yours today and wear your voice proudly.&nbsp;<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-22cf50d4\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/shop\/igan-awareness-day-t-shirt\/\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-3a61379c\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-9d014602\">\n\n<figure class=\"gb-block-image gb-block-image-7bb989a2\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-7bb989a2\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-49130464 gb-headline-text\">IgAN Patient Stories and Resources<\/h2>\n\n\n<div class=\"gb-container gb-container-ba1c109e wp-embed-aspect-16-9 wp-has-aspect-ratio gb-container-default\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-14c5bf0e\" id=\"stories\">\n<div class=\"gb-grid-column gb-grid-column-13817c96\"><div class=\"gb-container gb-container-13817c96 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/maria-m\/\"><\/a>\n<div class=\"gb-container gb-container-b7fe2ef9 resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/maria-m\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-15e21073\">\n<p class=\"gb-headline gb-headline-1269c67d disease-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-iga-nephropathy-igan\">IgA Nephropathy (IgAN)<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-6a2f7945 gb-headline-text\">Maria M.<\/h4>\n\n<p class=\"gb-headline gb-headline-8ce77a28 read-more-icon gb-headline-text\">Starting around 2016, Maria was not able to sleep well, not able to lose weight and she would \u201cswell\u201d from time to time; Maria complained about menopause as the culprit&#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-12432eca\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-f3a246ad\"><div class=\"gb-container gb-container-f3a246ad recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/talk-to-your-doctor-about-your-kidney-health-igan\/\"><\/a>\n<div class=\"gb-container gb-container-dbe4b47a resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/talk-to-your-doctor-about-your-kidney-health-igan\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-a82752e0\">\n<p class=\"gb-headline gb-headline-61b91f26 resource-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-informational-documents\">Informational Documents<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-83bd4891 gb-headline-text\">Talk to Your Doctor About Your Kidney Health: IgAN<\/h4>\n\n<p class=\"gb-headline gb-headline-35d05dc0 read-more-icon gb-headline-text\">Symptoms of rare kidney diseases are often invisible or not obvious. It is important to talk to your doctor to know the symptoms to look out for and questions to &#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-68213c4a\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-1a18257d\"><div class=\"gb-container gb-container-1a18257d recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/sean-c\/\"><\/a>\n<div class=\"gb-container gb-container-f822638c resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/sean-c\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-4cfd6402\">\n<p class=\"gb-headline gb-headline-d78511a8 disease-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-iga-nephropathy-igan\">IgA Nephropathy (IgAN)<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-d7ac84d2 gb-headline-text\">Sean C.<\/h4>\n\n<p class=\"gb-headline gb-headline-cff8fb35 read-more-icon gb-headline-text\">Sean Converse is a 19-year-old Sophomore studying Communications at Saint Anselm College in Goffstown, New Hampshire&#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-3b8112e3\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-eaec0c34\"><div class=\"gb-container gb-container-eaec0c34 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/iga-nephropathy\/\"><\/a>\n<div class=\"gb-container gb-container-8d2b854a resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/iga-nephropathy\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-db51c342\">\n<p class=\"gb-headline gb-headline-07c0693a resource-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-fact-sheet\">Fact Sheet<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-ff189652 gb-headline-text\">IgA Nephropathy (IgAN)<\/h4>\n\n<p class=\"gb-headline gb-headline-77f49fbb read-more-icon gb-headline-text\">Overview and Symptoms: IgA Nephropathy (IgAN) is an autoimmune disease that affects the filters (glomeruli) of the kidneys. IgA is an immunoglobulin that is part of an individual\u2019s healthy immune &#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-5090f830\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-c2030a83\"><div class=\"gb-container gb-container-c2030a83 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/paul-b\/\"><\/a>\n<div class=\"gb-container gb-container-76e3e799 resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/paul-b\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-ecd36ab8\">\n<p class=\"gb-headline gb-headline-9a597949 disease-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-iga-nephropathy-igan\">IgA Nephropathy (IgAN)<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-5afbad91 gb-headline-text\">Paul B.<\/h4>\n\n<p class=\"gb-headline gb-headline-7e178824 read-more-icon gb-headline-text\">Paul Billedo is a 31-year-old Filipino-American who was diagnosed with IGAN in 2018 and it changed his life in many ways. Although he has to make many changes&#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-18cb29a6\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-64a75a0d\"><div class=\"gb-container gb-container-64a75a0d recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/fireside-chat-with-nord-on-igan-patient-assistance-program\/\"><\/a>\n<div class=\"gb-container gb-container-1f0f25f1 resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/fireside-chat-with-nord-on-igan-patient-assistance-program\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-653c7ff9\">\n<p class=\"gb-headline gb-headline-e316fa1f resource-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-video\">Video<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-f0e6b723 gb-headline-text\">Fireside Chat with NORD on the IgAN Patient Assistance Program<\/h4>\n\n\n\n\n<h2 class=\"gb-headline gb-headline-1979d433\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-2bd4bf16\"><div class=\"gb-container gb-container-2bd4bf16 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/igan-patient-empowerment-sean-converses-story\/\"><\/a>\n<div class=\"gb-container gb-container-8c804ae5 resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/igan-patient-empowerment-sean-converses-story\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-01390a50\">\n<p class=\"gb-headline gb-headline-ae71e44e resource-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-video\">Video<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-3c315c6e gb-headline-text\">IgAN Patient Empowerment  |  Sean Converse&#8217;s Story<\/h4>\n\n<p class=\"gb-headline gb-headline-723ff4db read-more-icon gb-headline-text\">Listen to Sean&#8217;s story and his journey with IgA Nephropathy and how patient empowerment has shaped his experience.<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-0d502b97\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-3114c93d\"><div class=\"gb-container gb-container-3114c93d recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/anthony-p\/\"><\/a>\n<div class=\"gb-container gb-container-21ed5cc5 resource-terms-play post-card-thumbnail\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/anthony-p\/\"><\/a><\/div><style>.post-37842 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<div class=\"gb-container gb-container-448d81b3\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/patient-story\/anthony-p\/\"><\/a>\n<p class=\"gb-headline gb-headline-05a39ca5 disease-categories-terms-label gb-headline-text\"><span class=\"post-term-item term-iga-nephropathy-igan\">IgA Nephropathy (IgAN)<\/span><\/p>\n\n<h4 class=\"gb-headline gb-headline-a39d60b7 gb-headline-text\">Anthony P.<\/h4>\n\n<p class=\"gb-headline gb-headline-577a4cde read-more-icon gb-headline-text\">Anthony Pisa was officially diagnosed with IGAN at 51 years old through a kidney biopsy completed in August 2019. His condition presented itself during a high blood pressure episode which &#8230;<\/p>\n\n\n<h2 class=\"gb-headline gb-headline-4eed3586\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 14 9\" height=\"9\" width=\"14\"> <path fill=\"#00556B\" d=\"M9.948 0.178983L13.8217 4.0679C14.0594 4.30654 14.0594 4.69346 13.8217 4.9321L9.948 8.82102C9.71029 9.05966 9.32489 9.05966 9.08718 8.82102C8.84947 8.58237 8.84947 8.19546 9.08718 7.95681L11.9218 5.11108H0V3.88892H11.9218L9.08718 1.04319C8.84947 0.804543 8.84947 0.417626 9.08718 0.178983C9.32489 -0.0596608 9.71029 -0.0596608 9.948 0.178983Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><\/h2>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-1b9e4415\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2d95e10a\">\n<div class=\"gb-grid-column gb-grid-column-86d57f30\"><div class=\"gb-container gb-container-86d57f30\">\n\n<a class=\"gb-button gb-button-aef6e02f gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/patient-stories\/\">All Patient stories<\/a>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-70a16203\"><div class=\"gb-container gb-container-70a16203\">\n\n<a class=\"gb-button gb-button-0ffdfb29 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/resources\/\">All Resources<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-5f18cf75\">\n<div class=\"gb-container gb-container-edd86ca6\">\n<div class=\"gb-container gb-container-4ed401dd\">\n\n<figure class=\"gb-block-image gb-block-image-f04b9551\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-f04b9551\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h3 class=\"gb-headline gb-headline-a97ce8a1 gb-headline-text\"><strong>Thank You to Our IgAN Awareness Day 2026 Sponsors<\/strong><\/h3>\n\n\n<div class=\"gb-container gb-container-7f01b710 alignwide\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-86a64ae0\">\n<div class=\"gb-grid-column gb-grid-column-8ae2170a\"><div class=\"gb-container gb-container-8ae2170a\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-efdd7a2b\"><div class=\"gb-container gb-container-efdd7a2b\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-8f95982a\"><div class=\"gb-container gb-container-8f95982a\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-d53a205f\"><div class=\"gb-container gb-container-d53a205f\"><\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-943ffc18 alignwide\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-9527e750\">\n<div class=\"gb-grid-column gb-grid-column-0e6882c8\"><div class=\"gb-container gb-container-0e6882c8\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-55646fda\"><div class=\"gb-container gb-container-55646fda\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-353056e7\"><div class=\"gb-container gb-container-353056e7\"><\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-c7966d90\">\n<div class=\"gb-container gb-container-4d8a4fe1\">\n\n<figure class=\"gb-block-image gb-block-image-9ab43e4d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-9ab43e4d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-afffeb92 gb-headline-text\">Ways to Give<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-14d28465 gb-headline-text\">This IgAN Awareness Day, you can make a difference in the future of care. Every donation expands awareness, supports patients and families, and fuels the research needed to change lives. Join us. Give today.<br><a href=\"https:\/\/give.nephcure.org\/campaign\/781658\/donate\" target=\"_blank\" rel=\"noreferrer noopener\"><\/a><\/p>\n\n\n\n<a class=\"gb-button gb-button-98c960d9 gb-button-text gb-button-primary button\" href=\"https:\/\/give.nephcure.org\/campaign\/782648\/donate\" target=\"_blank\" rel=\"noopener noreferrer\">donate today<\/a>\n\n<\/div>\n\n\n<figure class=\"gb-block-image gb-block-image-5eb3ff4b\"><img loading=\"lazy\" decoding=\"async\" width=\"584\" height=\"583\" class=\"gb-image gb-image-5eb3ff4b\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/get-involved-page-photoicon.png\" alt=\"\" title=\"get-involved-page-photoicon\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/get-involved-page-photoicon.png 584w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/get-involved-page-photoicon-300x300.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/get-involved-page-photoicon-150x150.png 150w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/get-involved-page-photoicon-12x12.png 12w\" sizes=\"auto, (max-width: 584px) 100vw, 584px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-42105b23 news-letter-sec alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container gb-container-2b968bcb news-letter-field\">\n    <script type=\"text\/javascript\">\n    jQuery(document).ready(function($) {\n        const disposableDomains = [\n            'mailinator.com', 'yopmail.com', 'tempmail.com', 'guerrillamail.com',\n            'throwawaymail.com', 'fakeinbox.com', 'trashmail.com', 'sharklasers.com',\n            'tempinbox.com', '10minutemail.com'\n        ];\n        const majorProviders = [\n            'gmail.com', 'yahoo.com', 'hotmail.com', 'outlook.com',\n            'aol.com', 'icloud.com', 'protonmail.com'\n        ];\n        const suspiciousUsernames = [\n            'test', 'example', 'user', 'admin', 'info', 'mail', 'email',\n            'noreply', 'no-reply', 'donotreply', 'do-not-reply', 'fake',\n            'abc', '123', 'xyz', 'asdf', 'qwerty', 'demo', 'sample',\n            'spam', 'temp', 'dummy', 'foobar', 'anonymous', 'disposable'\n        ];\n        const keyboardPatterns = ['qwerty', 'asdfgh', 'zxcvbn', '123456'];\n\n        function isValidEmailFormat(email) {\n            const regex = \/^[^\\s@]+@[^\\s@]+\\.[^\\s@]+$\/;\n            return regex.test(email);\n        }\n\n        function hasSuspiciousPattern(username) {\n            if (suspiciousUsernames.includes(username)) return true;\n            if (username.length <= 2) return true;\n            if (\/^(.)\\1{3,}$\/.test(username)) return true;\n            for (const pattern of keyboardPatterns) {\n                if (username.includes(pattern)) return true;\n            }\n            return false;\n        }\n\n        function usernameMatchesDomain(username, domain) {\n            const domainBase = domain.split('.')[0];\n            return username === domainBase;\n        }\n\n        $('.ginput_container_email input').on('blur', function() {\n            const emailField = $(this);\n            const email = emailField.val().trim().toLowerCase();\n            const errorContainer = emailField.siblings('.validation_message');\n\n            \/\/ Clear any previous messages\n            if (errorContainer.length) errorContainer.remove();\n            emailField.removeClass('gfield_error gfield_warning');\n\n            if (email === '') return;\n\n            const username = email.substring(0, email.lastIndexOf('@'));\n            const domain = email.substring(email.lastIndexOf('@') + 1);\n\n            if (!isValidEmailFormat(email)) {\n                emailField.after('<div class=\"validation_message\">Please enter a valid email address.<\/div>');\n                emailField.addClass('gfield_error');\n                return;\n            }\n\n            if (disposableDomains.includes(domain)) {\n                emailField.after('<div class=\"validation_message\">Disposable email addresses are not allowed.<\/div>');\n                emailField.addClass('gfield_error');\n                return;\n            }\n\n            if (usernameMatchesDomain(username, domain)) {\n                emailField.after('<div class=\"validation_message\">This email looks suspicious (username matches domain). 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