{"id":34928,"date":"2025-01-15T00:49:17","date_gmt":"2025-01-15T05:49:17","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=34928"},"modified":"2026-07-13T16:46:22","modified_gmt":"2026-07-13T20:46:22","slug":"rare-kidneys-on-the-hill-day-2026","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/get-involved\/events\/rare-kidneys-on-the-hill-day-2026\/","title":{"rendered":"Ri\u00f1ones raros en el d\u00eda de la colina"},"content":{"rendered":"
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Home<\/a><\/span> \/ Get Involved<\/a><\/span> \/ Events<\/a><\/span> \/ Rare Kidneys on the Hill Day<\/span><\/span><\/div>\n\n
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Rare Kidneys on the Hill Day<\/h1>\n\n\n\n

<\/path> <\/svg><\/span>Hilton Washington DC Capitol Hill: Washington, DC
525 New Jersey Ave NW, Washington, DC 20001<\/span><\/p>\n\n\n\n

July 22nd-23rd, 2026<\/strong>
Registration is now Closed!<\/strong><\/h4>\n\n\n
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Share your Rare Kidneys on the Hill Day experience on social media, use #NephCureHillDay2026<\/strong> and follow us @NephCure.<\/p>\n\n\n

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Uniting Voices for Change on Capitol Hill<\/h2>\n\n\n\n

Rare Kidneys on the Hill Day is an opportunity for advocates to raise awareness about rare kidney disease (RKD) and to make their voices heard by their members of Congress on issues that impact their lives. Anyone impacted by RKD is invited to join us – patients, caregivers, physicians, and researchers are welcome!<\/p>\n\n\n\n

NephCure takes care of scheduling your meetings with your members of Congress and will help prepare you for these meetings in advance. All you have to do is bring your personal story.<\/p>\n\n\n\n

The event kicks off with a Rally Dinner on Wednesday, July 22nd<\/em> <\/strong>where you will network with fellow advocates from around the country and work in teams to prepare for your meetings on Capitol Hill. Thursday, July 2<\/strong>3rd<\/em> starts with a group photo on the steps of the Capitol Building. Then, it’s off to meet with your members of Congress. You will have up to eight meetings in various buildings around Capitol Hill. The day can be tiring, but you can relax and celebrate that evening at a reception where food and beverages will be served.<\/p>\n\n\n\n

Attendance at the ‘Know Before You Go’ training webinar on July 7th or July 8th is mandatory. <\/em><\/strong>This webinar includes an overview of the event schedule and logistics, a civics refresh, a review of suggested policy asks, guidance on how to connect your story to policy asks, and tips on how to amplify your advocacy using social media. <\/p>\n\n<\/div>\n\n

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Why should you participate in NephCure’s Rare Kidneys on the Hill Day?<\/strong><\/strong><\/h2>\n\n\n\n

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As a constituent, voter, and, most importantly, a person impacted by rare kidney disease (RKD), your voice matters. Rare Kidneys on the Hill Day provides an opportunity for you to educate your members of Congress and put a face to RKD. By sharing your story, you can help advance policies critical to the RKD community, including research funding, improved diagnostics, and access to treatments and care. <\/p>\n\n\n\n

Rare Kidneys on the Hill Day is also a great way to connect with other people impacted by RKD and to be empowered!<\/p>\n\n\n\n

Limited scholarships are available so please sign up here<\/a> to apply for one today.<\/p>\n\n<\/div><\/div>\n\n

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Know Before You Go Webinar<\/strong><\/strong><\/h2>\n\n\n\n

View our Know Before You Go webinar to help you prepare for Rare Kidneys on the Hill Day. This webinar provides valuable insights into our goals for the event and equip you with the tools to effectively advocate for yourself and rare kidney patients. Please click on the link below to watch the webinar.<\/p>\n\n\n

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<\/a>\n\nWatch webinar<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n
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