{"id":34928,"date":"2025-01-15T00:49:17","date_gmt":"2025-01-15T05:49:17","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=34928"},"modified":"2026-09-14T14:24:01","modified_gmt":"2026-09-14T18:24:01","slug":"rinones-raros-en-el-dia-de-la-colina-2","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/get-involved\/events\/rare-kidneys-on-the-hill-day\/","title":{"rendered":"Ri\u00f1ones raros en el d\u00eda de la colina"},"content":{"rendered":"<section class=\"gb-container gb-container-941ff025\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/\">Get Involved<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/events\/\">Events<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Rare Kidneys on the Hill Day<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-04364c37 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-8c7cca64 gb-headline-text hero-content\">Rare Kidneys on the Hill Day<\/h1>\n\n\n\n<p class=\"gb-headline gb-headline-cfce0c2e\"><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" fill=\"none\" viewBox=\"0 0 15 22\" height=\"22\" width=\"15\"> <path fill=\"#FFB342\" d=\"M13.5009 9.86087C13.8778 8.9981 14.087 8.04521 14.087 7.04348C14.087 3.15347 10.9335 0 7.04348 0C3.15347 0 0 3.15347 0 7.04348C0 8.04521 0.209117 8.9981 0.586079 9.86087H0.579619L0.61251 9.9206C0.770428 10.273 0.956467 10.6101 1.16777 10.929L7.04345 21.6L12.9395 10.8982C13.1351 10.5996 13.3087 10.2852 13.4579 9.95731L13.511 9.86087H13.5009ZM7.04351 10.3305C8.85884 10.3305 10.3305 8.85884 10.3305 7.04351C10.3305 5.22817 8.85884 3.75655 7.04351 3.75655C5.22817 3.75655 3.75655 5.22817 3.75655 7.04351C3.75655 8.85884 5.22817 10.3305 7.04351 10.3305Z\" clip-rule=\"evenodd\" fill-rule=\"evenodd\"><\/path> <\/svg><\/span><span class=\"gb-headline-text\">Washington, DC<\/span><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>See you at NephCure Hill Day 2027!<\/strong><\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Rare Kidneys on the Hill Day is an opportunity for advocates to raise awareness about rare kidney disease (RKD) and to make their voices heard by their members of Congress on issues that impact their lives.&nbsp;Anyone impacted by RKD is&nbsp;invited to join us &#8211; patients, caregivers, physicians, and researchers are welcome!<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">NephCure takes care of scheduling your meetings with your members of Congress and will help prepare you for these meetings in advance. All you have to do is bring your personal story. <\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><strong>Are you interested in joining us next year? Click the button below.<\/strong><\/p>\n\n<\/div>\n\n\n<a class=\"gb-button gb-button-cefc5930 gb-button-text gb-button-primary button\" href=\"https:\/\/form.jotform.com\/262285107320045\" target=\"_blank\" rel=\"noopener noreferrer\">I&#8217;m Interested<\/a>\n\n\n<div class=\"gb-container gb-container-9849f448\"><\/div>\n\n<div class=\"gb-container gb-container-ba1c109e wp-embed-aspect-16-9 wp-has-aspect-ratio\">\n<div class=\"gb-container gb-container-6a949805 hero-copy gb-container-default\">\n\n<figure class=\"gb-block-image gb-block-image-5aa76847\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-5aa76847\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-6f3b40e8 gb-headline-text hero-content\">Thank You for Participating in NephCure&#8217;s Rare Kidneys on the Hill Day 2026 <\/h2>\n\n<\/div>\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-14c5bf0e\" id=\"stats-block\">\n<div class=\"gb-grid-column gb-grid-column-389d3878\"><div class=\"gb-container gb-container-389d3878\">\n<div class=\"gb-container gb-container-c66d1347\">\n\n<p class=\"gb-headline gb-headline-7d2cf98e gb-headline-text\"><o-anim-count>81<\/o-anim-count>+<\/p>\n\n\n\n<p class=\"gb-headline gb-headline-cb0b09b0 gb-headline-text\">Advocates actively participated this year<\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-dc688d5f\"><div class=\"gb-container gb-container-dc688d5f\">\n<div class=\"gb-container gb-container-4227ed63\">\n\n<p class=\"gb-headline gb-headline-b63ef637 gb-headline-text\"><o-anim-count>115<\/o-anim-count>+<\/p>\n\n\n\n<p class=\"gb-headline gb-headline-31cbe581 gb-headline-text\">Congressional offices <strong>engaged in our advocacy efforts<\/strong><\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-ff0f8ce5\"><div class=\"gb-container gb-container-ff0f8ce5\">\n<div class=\"gb-container gb-container-a9317308\">\n\n<p class=\"gb-headline gb-headline-95f53665 gb-headline-text o-count-delay-100ms\"><o-anim-count>2<\/o-anim-count>+<\/p>\n\n\n\n<p class=\"gb-headline gb-headline-81fa3c57 gb-headline-text\">New NephCure<strong> cosponsors for the New Era Act<\/strong> <\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-90573cf5\"><div class=\"gb-container gb-container-90573cf5\">\n<div class=\"gb-container gb-container-828ffd55\">\n\n<p class=\"gb-headline gb-headline-a4679a3e gb-headline-text\"><o-anim-count>31<\/o-anim-count>+<\/p>\n\n\n\n<p class=\"gb-headline gb-headline-0c4cd91a gb-headline-text\">States actively participated on the Hill this year<\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-d94a51db\">\n<div class=\"gb-container gb-container-c0377b85 image-left\">\n<div class=\"gb-container gb-container-90dd5f56 animated slideInLeft left-img\">\n\n<figure class=\"gb-block-image gb-block-image-4f06d047\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-4f06d047\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday.png\" alt=\"\" title=\"alternating columnshillday\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday-18x10.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/12\/alternating-columnshillday-600x332.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-26789e39 animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-88d91f86\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-88d91f86\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-91ec0656 gb-headline-text\"><strong><strong>Know Before You Go Webinar<\/strong><\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">View our Know Before You Go webinar to help you prepare for Rare Kidneys on the Hill Day. This webinar provides valuable insights into our goals for the event and equip you with the tools to effectively advocate for yourself and rare kidney patients. Please click on the link below to watch the webinar.<\/p>\n\n\n<div class=\"gb-container gb-container-c97d29a4\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-c35dc7a0\">\n<div class=\"gb-grid-column gb-grid-column-e3764a02\"><div class=\"gb-container gb-container-e3764a02\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.box.com\/s\/blums242w6vj8fkpvtlt6ecdzmo34xpo\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<a class=\"gb-button gb-button-d262eb81 gb-button-text gb-button-primary button\" href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_VA6lGbF0TbO_-PzMvA29Cg\" target=\"_blank\" rel=\"noopener noreferrer\">Watch webinar<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-0d50d053\">\n<div class=\"gb-container gb-container-213279ee\">\n<div class=\"gb-container gb-container-b165695f\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-8980ada4\">\n<div class=\"gb-grid-column gb-grid-column-5ce34b11\"><div class=\"gb-container gb-container-5ce34b11 video-wrapper animated slideInLeft\">\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"NephCure&amp;apos;s Rare Kidneys on the Hill Day 2026\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/Ven2zfeBzzI?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-2adfa6b3\"><div class=\"gb-container gb-container-2adfa6b3 animated fadeInRight\">\n\n<figure class=\"gb-block-image gb-block-image-86bcd2a9\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-86bcd2a9\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-4bb9c3a5 gb-headline-text\"><strong>Witness the Impact, Join Rare Kidneys on the Hill Day<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Step into the heart of advocacy.&nbsp;This video provides a glimpse into the power of collective voices and the meaningful impact created by those who advocated. Advocates united to raise awareness about rare kidney disease, share compelling stories, and make their voices resonate on Capitol Hill.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Be part of a movement that transforms stories into advocacy, leaving a lasting impact on the fight against rare kidney diseases.<\/p>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-ea296a6a image-right\">\n<div class=\"gb-container gb-container-49354752 animated fadeInLeft promo-copy-left\">\n\n<figure class=\"gb-block-image gb-block-image-4c52295f\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-4c52295f\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-110db0dc gb-headline-text\"><strong><strong><strong>From Patient to Advocate: My First Rare Kidneys on the Hill Day<\/strong><\/strong><\/strong><\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-6b31675a gb-headline-text\">Read Berkleigh Kennedy\u2019s powerful firsthand story of attending her very first Rare Kidneys on the Hill Day as a high school student living with minimal change disease (MCD). From nervous first meetings to discovering the power of advocacy and community, her journey is a reminder that every voice can make a difference for rare kidney patients.<\/p>\n\n\n\n<a class=\"gb-button gb-button-6ee9c22f gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/from-patient-to-advocate-my-first-rare-kidneys-on-the-hill-day\/\" target=\"_blank\" rel=\"noopener noreferrer\">Read Now<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-3403eea2 animated slideInRight right-img\">\n\n<figure class=\"gb-block-image gb-block-image-a82eb333\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-a82eb333\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/15.png\" alt=\"\" title=\"advocacy hill day alternating size\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/15.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/15-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/15-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/15-18x10.png 18w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-02e11ddf image-right\">\n<div class=\"gb-container gb-container-768eb4f1 animated fadeInLeft promo-copy-left\">\n\n<figure class=\"gb-block-image gb-block-image-c6e163cc\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-c6e163cc\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-75335cd3 gb-headline-text\"><strong><strong>Scholarships Available<\/strong><\/strong><\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-0519ab83 gb-headline-text\">NephCure is pleased to offer a limited number of scholarships to help advocates attend Rare Kidneys on the Hill Day. These scholarships cover the cost of airfare and hotel accommodations in Washington, D.C., for the individual named on the scholarship application. Scholarships will be awarded on a first-come, first-served basis, so we encourage you to apply as soon as possible. Please note that only one application per family will be accepted.<\/p>\n\n\n\n<a class=\"gb-button gb-button-768dc5c9 gb-button-text gb-button-primary button\" href=\"https:\/\/share.hsforms.com\/1WJKu8U5cQR6sQBt9NvyvUQ5n3q6\" target=\"_blank\" rel=\"noopener noreferrer\">Apply now<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-b1c7202f animated slideInRight right-img\">\n\n<figure class=\"gb-block-image gb-block-image-67b57bd7\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-67b57bd7\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024.png\" alt=\"\" title=\"hill day 2024\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024-18x10.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2025\/01\/hill-day-2024-600x332.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-44c24719 image-left\">\n<div class=\"gb-container gb-container-0f8c6fe6 animated slideInLeft left-img\">\n\n<figure class=\"gb-block-image gb-block-image-c1868643\"><img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"498\" class=\"gb-image gb-image-c1868643\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns.png\" alt=\"\" title=\"advocacy.alternating columns\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns.png 900w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns-300x166.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns-768x425.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns-18x10.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/09\/advocacy.alternating-columns-600x332.png 600w\" sizes=\"auto, (max-width: 900px) 100vw, 900px\" \/><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-29791c8f animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-484c70a0\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-484c70a0\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-f90f240c gb-headline-text\"><strong><strong>S<\/strong><\/strong>upport H.R. 1518<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Can\u2019t join us on Capitol Hill? You can still make your voice heard from anywhere by calling your elected officials and urging them to support H.R. 1518.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Using our online advocacy tool, you can quickly find your representatives\u2019 contact information and access a simple phone script to help guide your call.<\/p>\n\n\n<div class=\"gb-container gb-container-de8faab3\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-e3b5e6bf\">\n<div class=\"gb-grid-column gb-grid-column-2aecfeee\"><div class=\"gb-container gb-container-2aecfeee\">\n\n<a class=\"gb-button gb-button-caf87a9c gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.quorum.us\/campaign\/164095\/\" target=\"_blank\" rel=\"noopener noreferrer\">call your representative<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-0935d845 wp-embed-aspect-16-9 wp-has-aspect-ratio\">\n<div class=\"gb-container gb-container-1d2c6f1c hero-copy gb-container-default\">\n\n<figure class=\"gb-block-image gb-block-image-4796df72\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-4796df72\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-a46c94ef gb-headline-text hero-content\">Rare Kidneys on the Hill Day Past Events Photo&#8217;s<\/h2>\n\n<\/div>\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-8ba6b34c\" id=\"photo-gallery\">\n<div class=\"gb-grid-column gb-grid-column-957149c7\"><div class=\"gb-container gb-container-957149c7\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-e3e26bf3\"><div class=\"gb-container gb-container-e3e26bf3\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-fe360df4\"><div class=\"gb-container gb-container-fe360df4\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-5a0eb0ca\"><div class=\"gb-container gb-container-5a0eb0ca\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-1ad98d5e\"><div class=\"gb-container gb-container-1ad98d5e\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-b231ac5f\"><div class=\"gb-container gb-container-b231ac5f\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-5b6a93f1\"><div class=\"gb-container gb-container-5b6a93f1\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-376d5c1e\"><div class=\"gb-container gb-container-376d5c1e\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-d06f5b62\"><div class=\"gb-container gb-container-d06f5b62\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-249f2d75\"><div class=\"gb-container gb-container-249f2d75\"><\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-2350c840 hero-copy gb-container-default\">\n\n<figure class=\"gb-block-image gb-block-image-6b85aef2\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-6b85aef2\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-1eac81db gb-headline-text hero-content\">Sample Agenda<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-dc77746d gb-headline-text hero-content\">See below an example of Rare Kidneys on the Hill Day schedule.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-d77296f0 gb-container-default\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-86d0d358\">\n<div class=\"gb-grid-column gb-grid-column-e8dd89b6\"><div class=\"gb-container gb-container-e8dd89b6\">\n<div class=\"gb-container gb-container-db40037f\">\n\n<h2 class=\"gb-headline gb-headline-377bf651 gb-headline-text\">Wednesday, July 24th<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-fbab4c87 gb-headline-text\"><em>Arrival in Washington, D.C. and Hill Day Rally Dinner (Attendance at the Hill Day Rally Dinner is MANDATORY)<\/em><\/p>\n\n\n\n<p class=\"gb-headline gb-headline-39489e68 gb-headline-text\"><strong>6:00 &#8211; 8:30 p.m.<\/strong>&nbsp;Rare Kidneys on the Hill Rally Dinner:&nbsp;Meet with advocates from your state or region, practice for your meetings, and fuel up with a kidney-friendly dinner.<\/p>\n\n\n\n<p class=\"has-global-color-30-color has-text-color has-link-color wp-elements-1 wp-block-paragraph\"><strong>Location:<\/strong> Hilton Washington, D.C. Capitol Hill<br>525 New Jersey Ave., NW, Washington, D.C., 20001<\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-f3bda236\"><div class=\"gb-container gb-container-f3bda236\">\n<div class=\"gb-container gb-container-5f0f57e0\">\n\n<h2 class=\"gb-headline gb-headline-3ff701e6 gb-headline-text\">Thursday, July 25th<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-1b3d19e3 gb-headline-text\"><em>Meetings on Capitol Hill and Congressional Reception<\/em><\/p>\n\n\n\n<p class=\"has-global-color-30-color has-text-color has-link-color wp-elements-2 wp-block-paragraph\"><strong>8:30 a.m.<\/strong> Group photo on the U.S. Capitol steps (northeast corner)<br><strong>9:00 a.m. &#8211; 12:00 p.m. <\/strong>Meetings with your members of Congress.<br><strong>12:15 &#8211; 1:15 p.m.<\/strong> Lunch break. Food is available for purchase on the&nbsp;<a href=\"https:\/\/thehouse.misofi.net\/\">House<\/a>&nbsp;side,&nbsp;<a href=\"https:\/\/www.senate.gov\/visiting\/common\/generic\/senate_dining_areas.htm\">Senate<\/a>&nbsp;side, or in the&nbsp;<a href=\"https:\/\/www.visitthecapitol.gov\/visit\/shopping-and-dining\">Capitol Building<\/a>.<br><strong>1:30 &#8211; 5:00 p.m. <\/strong>Meetings with your members of Congress.<br><strong>5:30 p.m.<\/strong> Congressional Reception&nbsp;(location TBD)<\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-4d1463aa\">\n<div class=\"gb-container gb-container-74393da6 gb-container-default\">\n\n<figure class=\"gb-block-image gb-block-image-40625f55\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-40625f55\" src=\"https:\/\/kidneydevelop.wpengine.com\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-da0504fc gb-headline-text\">Related Resources<\/h2>\n\n\n<div class=\"gb-container gb-container-248081fc\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2c8e5502\">\n<div class=\"gb-grid-column gb-grid-column-a2ae0ba4\"><div class=\"gb-container gb-container-a2ae0ba4\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n<div class=\"gb-container gb-container-92f2b7b5\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-ad2601fb gb-headline-text\">JOURNEY OF RKD PATIENTS<\/p>\n\n\n\n<h4 class=\"gb-headline gb-headline-a86fde35 gb-headline-text\">Read stories of how RKD has impacted individuals<\/h4>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-3ed73c0f\"><div class=\"gb-container gb-container-3ed73c0f\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n<div class=\"gb-container gb-container-29f75453\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-f16333bf gb-headline-text\">SUMMARY OF THE BILL<\/p>\n\n\n\n<h4 class=\"gb-headline gb-headline-0adaa20d gb-headline-text\">H.R. 6790 The New Era of Preventing End-Stage Kidney Disease Act <\/h4>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-f86a8c73\"><div class=\"gb-container gb-container-f86a8c73\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n<div class=\"gb-container gb-container-7782dab1\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/08\/NephCure-Handout-The-Journey-of-RKD-Patients-branded-2.pdf\" rel=\"noopener noreferrer\" target=\"_blank\"><\/a>\n\n<p class=\"gb-headline gb-headline-d6e6c2d0 gb-headline-text\">POLICY ACTION FLYER<\/p>\n\n\n\n<h4 class=\"gb-headline gb-headline-d8b04d67 gb-headline-text\">Learn why policy action is needed to improve the state of kidney care<\/h4>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n\n<a class=\"gb-button gb-button-6e95c8e2 gb-button-text gb-button-primary button\" href=\"\/resources\/\">ALL RKD RESOURCES<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-c0370ae6\">\n\n<figure class=\"gb-block-image gb-block-image-d9db7b24\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-d9db7b24\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-e74d2e68 gb-headline-text\">Frequently Asked Questions<\/h2>\n\n\n<div class=\"gb-container gb-container-0b844e98 gb-accordion\">\n<div class=\"gb-container gb-container-7108dae6 gb-accordion__item\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-3d355fa7 gb-accordion__toggle\" id=\"gb-accordion-toggle-3d355fa7\"><span class=\"gb-button-text\">How do I get around DC on Hill Day?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-05a8e7a8\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-05a8e7a8\">\n\n<p class=\"wp-block-paragraph\">Advocates are responsible for their own transportation. Uber, Lyft or taxis are available. Advocates have varied schedules based on their appointments. Most offices are walking distance from each other. The hotel where we have a room block (the Hilton Washington DC Capitol Hill) is located about a half mile from where meetings will begin on Capitol Hill.&nbsp;<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-aa996d99 gb-accordion__item\" id=\"gb-accordion-content-f7b6ce65\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-4883ba56 gb-accordion__toggle\" id=\"gb-accordion-toggle-4883ba56\"><span class=\"gb-button-text\">What if I have never been to a Hill Day and I don\u2019t know my way around?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-e69b61d4\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-e69b61d4\">\n\n<p class=\"wp-block-paragraph\">Don\u2019t worry! Each group will have a Team Leader who is well-versed in Rare Kidneys on the Hill Day and they will guide you each step of the way. You will be walking from one office to another for up to 8 meetings.<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-e186dcb1 gb-accordion__item\" id=\"gb-accordion-content-f7b6ce65\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-0d86f282 gb-accordion__toggle\" id=\"gb-accordion-toggle-0d86f282\"><span class=\"gb-button-text\">How should I dress for Rare Kidneys on the Hill Day?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-c1d185ed\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-c1d185ed\">\n\n<p class=\"wp-block-paragraph\">The dress code for Rare Kidneys on the Hill Day is business or business casual. The weather in July in DC can be very hot and humid, but indoors is air conditioned. We will also be doing a lot of walking so be sure to wear comfortable shoes!&nbsp;<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-6a0135c9 gb-accordion__item\" id=\"gb-accordion-content-f7b6ce65\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-b62b6d1c gb-accordion__toggle\" id=\"gb-accordion-toggle-b62b6d1c\"><span class=\"gb-button-text\">With whom will I be meeting in each congressional office?&nbsp;<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-a63e57bb\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-a63e57bb\">\n\n<p class=\"wp-block-paragraph\">Most likely you will be meeting with congressional staffers. These staffers are important because the actions that they recommend are usually adopted by the members of Congress for whom they work. It is also possible that you may meet directly with your congressional representative, but this will be based on his or her availability that day.<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-60cec25e gb-accordion__item\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-4b1e0002 gb-accordion__toggle\" id=\"gb-accordion-toggle-4b1e0002\"><span class=\"gb-button-text\">How should I plan my meals during Rare Kidneys on the Hill Day?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-fbbbf35b\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-fbbbf35b\">\n\n<p class=\"wp-block-paragraph\">NephCure will be providing a low-sodium dinner at the Rally Dinner at 6:00 p.m. ET on Wednesday and low-sodium appetizers and beverages during the Congressional Reception at 5:30 p.m. on Thursday. All other meals will be your responsibility.<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-f284491d gb-accordion__item\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-dc136914 gb-accordion__toggle\" id=\"gb-accordion-toggle-dc136914\"><span class=\"gb-button-text\">What do we hope to accomplish during Hill Day?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-0d6cf544\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-0d6cf544\">\n\n<p class=\"wp-block-paragraph\">Hill Day is an opportunity for you to build relationships with your Members of Congress. They work for you and want to know about the issues that matter to you. This Hill Day, we hope to gain support for&nbsp;<a href=\"https:\/\/nephcure.org\/getinvolved\/advocacy\/the-new-era-of-preventing-end-stage-kidney-disease-act\/\" target=\"_blank\" rel=\"noreferrer noopener\">H.R. 6790<\/a>&nbsp;the New Era of Preventing End-Stage Kidney Disease Act (the New Era Act). The New Era Act has the potential to bring about significant positive changes in how we understand, treat, and study RKD. This legislation aims to help people with RKD by finding and treating diseases earlier, enhancing education of doctors and patients, and conducting more research. This could lessen the impact of RKD on people\u2019s lives and reduce costs for patients and the health care system in the long run. We may also ask for congressional support on other bills.&nbsp;&nbsp;<\/p>\n\n<\/div><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-28b6e541 gb-accordion__item\" data-transition=\"slide\">\n\n<button class=\"gb-button gb-button-afa1954d gb-accordion__toggle\" id=\"gb-accordion-toggle-afa1954d\"><span class=\"gb-button-text\">What happens after Hill Day?<\/span><span class=\"gb-icon\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 448 512\" width=\"1em\" height=\"1em\" ariahidden=\"true\" role=\"img\" class=\"gb-accordion__icon-open\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\" fill=\"currentColor\"><\/path><\/svg><\/span><\/button>\n\n\n<div id=\"gb-accordion-content-34f1d3d9\" class=\"gb-accordion__content\"><div class=\"gb-container gb-container-34f1d3d9\">\n\n<p class=\"wp-block-paragraph\">Advocacy is most effective when you build and maintain relationships over time. That is why it is important that you stay in contact with your members throughout the year. To help you stay in touch,&nbsp;<a href=\"https:\/\/nephcure.org\/getinvolved\/advocacy\/the-nephcure-action-network\/\" target=\"_blank\" rel=\"noreferrer noopener\">join NephCure&#8217;s Action Network<\/a>, or NCAN, if you haven&#8217;t already. That way, you will receive real-time action alerts, advocacy campaign updates, and educational information throughout the year.<\/p>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-edd86ca6\">\n<div class=\"gb-container gb-container-4ed401dd gb-container-default\">\n\n<figure class=\"gb-block-image gb-block-image-f7a9d787\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-f7a9d787\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h3 class=\"gb-headline gb-headline-a97ce8a1 gb-headline-text\"><strong>Sponsors<\/strong><\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Thank you to our generous sponsors for supporting Rare Kidneys on the Hill Day 2024!<\/p>\n\n\n<div class=\"gb-container gb-container-7f01b710 alignwide\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-86a64ae0\">\n<div class=\"gb-grid-column gb-grid-column-5669b669\"><div class=\"gb-container gb-container-5669b669\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-8f95982a\"><div class=\"gb-container gb-container-8f95982a\"><\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-efdd7a2b\"><div class=\"gb-container gb-container-efdd7a2b\"><\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-bd393d45\">\n<div class=\"gb-container gb-container-dde82ea4 gb-container-default\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-f66db4c2\">\n<div class=\"gb-grid-column gb-grid-column-d484d0e8\"><div class=\"gb-container gb-container-d484d0e8\">\n<div class=\"gb-container gb-container-58436f57\">\n\n<h2 class=\"gb-headline gb-headline-0432cc55 gb-headline-text\">Volunteer<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-e2f604fc gb-headline-text\">Discover the power of volunteering with NephCure through our Volunteer Hub, your ultimate destination for all things volunteering. Whether your passion lies in fundraising, advocacy, patient support, event planning, or outreach, there\u2019s a meaningful role waiting for you. Check out our volunteer opportunities and be a part of making a difference.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-866ea5fb\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/get-involved\/volunteer\/\"><\/a>\n\n<p class=\"gb-headline gb-headline-6a98c4dc\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-634c60e9\"><div class=\"gb-container gb-container-634c60e9\">\n<div class=\"gb-container gb-container-997747d1\">\n\n<h2 class=\"gb-headline gb-headline-cfcd76dc gb-headline-text\">Advocate<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-05c5460f gb-headline-text\">NephCure is committed to advocating for policies that improve the lives of rare kidney disease patients and their families. Learn more about our advocacy efforts and policy priorities, including our support for the New Era Bill and other legislative initiatives aimed at advancing research and access to care. Join the NephCure Action Network and be a voice for change.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-b6e6892b\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/get-involved\/advocacy\/\"><\/a>\n\n<p class=\"gb-headline gb-headline-ec577a12\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-65ed503b\">\n\n<figure class=\"gb-block-image gb-block-image-184a9268\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-184a9268\" src=\"https:\/\/nephcuredev.wpengine.com\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-3f466382 gb-headline-text\">The Latest Events &amp; News<\/h2>\n\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-a1150fe7\">\n<div class=\"gb-grid-column gb-grid-column-ebe1c75d\"><div class=\"gb-container gb-container-ebe1c75d\">\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-ec1c10f7 events-loop gb-query-loop-wrapper\">\n<div class=\"gb-grid-column gb-grid-column-addae303 gb-query-loop-item post-38603 tribe_events type-tribe_events status-publish has-post-thumbnail hentry tag-c3g tribe_events_cat-patient-program cat_patient-program\"><div class=\"gb-container gb-container-addae303\">\n<div class=\"gb-container gb-container-b4bfe92e post-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/event\/c3g-awareness-day-2026\/\"><\/a>\n<div class=\"gb-container gb-container-d1344a94\">\n<h2 class=\"gb-headline gb-headline-b535e661 news-copy gb-headline-text\" data-count=\"50\">C3G Awareness Day 2026<\/h2>\n\n<div class=\"event-terms-label\"><span style=\"color: #3456e8 !important; background-color: #ffffff !important;\" class=\"event-term\">Patient Program<\/span><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-a35078f1\">\n<span class=\"event-month\">September<\/span>\n\n<span class=\"event-date\">25<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-addae303 gb-query-loop-item post-38360 tribe_events type-tribe_events status-publish has-post-thumbnail hentry tag-rkc tribe_events_cat-patient-program cat_patient-program\"><div class=\"gb-container gb-container-addae303\">\n<div class=\"gb-container gb-container-b4bfe92e post-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/event\/houston-community-day\/\"><\/a>\n<div class=\"gb-container gb-container-d1344a94\">\n<h2 class=\"gb-headline gb-headline-b535e661 news-copy gb-headline-text\" data-count=\"50\">Houston Community day<\/h2>\n\n<div class=\"event-terms-label\"><span style=\"color: #3456e8 !important; background-color: #ffffff !important;\" class=\"event-term\">Patient Program<\/span><\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-a35078f1\">\n<span class=\"event-month\">September<\/span>\n\n<span class=\"event-date\">26<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div class=\"gb-container gb-container-b6908bfc\">\n\n<a class=\"gb-button gb-button-267af5c4 gb-button-text gb-button-primary button button-secondary\" href=\"https:\/\/nephcuredev.wpengine.com\/events\/\">ALL EVENTS<\/a>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-78c3dcc8\"><div class=\"gb-container gb-container-78c3dcc8\">\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-41e6d000 news-loop gb-query-loop-wrapper\">\n<div class=\"gb-grid-column gb-grid-column-cd828af4 gb-query-loop-item post-39005 post type-post status-publish format-standard hentry category-press-release tag-c3g tag-c3g-awareness-day disease-category-c3-glomerulopathy-c3g resource-type-news\"><div class=\"gb-container gb-container-cd828af4\">\n<div class=\"gb-container gb-container-2928ecff post-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/nephcure-celebrates-c3g-awareness-day-on-september-25-2026\/\"><\/a>\n<div class=\"gb-container gb-container-0e1f98bd\">\n<p class=\"gb-headline gb-headline-8b0fb623 gb-headline-text\"><span class=\"post-term-item term-news\">News<\/span><\/p>\n\n<h2 class=\"gb-headline gb-headline-16cfeaf7 news-copy gb-headline-text\" data-count=\"50\">NephCure\u00a0Celebrates C3G Awareness Day on September 25, 2026<\/h2>\n\n<p class=\"gb-headline gb-headline-f9e95cef gb-headline-text\"><time class=\"entry-date published\" datetime=\"2026-09-14T09:30:00-04:00\">septiembre 14, 2026<\/time><\/p>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-cd828af4 gb-query-loop-item post-39027 post type-post status-publish format-standard has-post-thumbnail hentry category-recent-news tag-nephcure-specialist-of-the-month tag-nephcure-spotlight resource-type-news\"><div class=\"gb-container gb-container-cd828af4\">\n<div class=\"gb-container gb-container-2928ecff post-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/nephcure-specialist-of-the-month-dr-rupali-avasare\/\"><\/a>\n<div class=\"gb-container gb-container-0e1f98bd\">\n<p class=\"gb-headline gb-headline-8b0fb623 gb-headline-text\"><span class=\"post-term-item term-news\">News<\/span><\/p>\n\n<h2 class=\"gb-headline gb-headline-16cfeaf7 news-copy gb-headline-text\" data-count=\"50\">NephCure Specialist of the Month: Dr. Rupali Avasare<\/h2>\n\n<p class=\"gb-headline gb-headline-f9e95cef gb-headline-text\"><time class=\"entry-date published\" datetime=\"2026-09-14T09:16:12-04:00\">septiembre 14, 2026<\/time><\/p>\n<\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div class=\"gb-container gb-container-e54d8107\">\n\n<a class=\"gb-button gb-button-cf0e87c3 gb-button-text gb-button-primary button button-secondary\" href=\"https:\/\/nephcuredev.wpengine.com\/news\/\">ALL NEWS<\/a>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-42105b23 news-letter-sec alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container gb-container-2b968bcb news-letter-field\">\n    <script type=\"text\/javascript\">\n    jQuery(document).ready(function($) {\n        const disposableDomains = [\n            'mailinator.com', 'yopmail.com', 'tempmail.com', 'guerrillamail.com',\n            'throwawaymail.com', 'fakeinbox.com', 'trashmail.com', 'sharklasers.com',\n            'tempinbox.com', '10minutemail.com'\n        ];\n        const majorProviders = [\n            'gmail.com', 'yahoo.com', 'hotmail.com', 'outlook.com',\n            'aol.com', 'icloud.com', 'protonmail.com'\n        ];\n        const suspiciousUsernames = [\n            'test', 'example', 'user', 'admin', 'info', 'mail', 'email',\n            'noreply', 'no-reply', 'donotreply', 'do-not-reply', 'fake',\n            'abc', '123', 'xyz', 'asdf', 'qwerty', 'demo', 'sample',\n 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