{"id":28668,"date":"2024-04-10T18:04:02","date_gmt":"2024-04-10T22:04:02","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=28668"},"modified":"2024-05-03T13:24:57","modified_gmt":"2024-05-03T17:24:57","slug":"voluntarios-de-apoyo-al-paciente","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/get-involved\/volunteer\/patient-support-volunteers\/","title":{"rendered":"Voluntarios de apoyo al paciente"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/\">Get Involved<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/volunteer\/\">Volunteer<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Patient Support Volunteers<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\">Patient Support Volunteers<\/h1>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Our&nbsp;Patient Connections support program&nbsp;consists of an organized network of patients and caretakers whose lives have been affected by rare, protein-spilling kidney diseases. Our Patient Support Volunteers are committed to offering support and sharing their experiences with others who are facing similar challenges associated with Nephrotic Syndrome or FSGS.<\/p>\n\n<\/div>\n\n\n<a class=\"gb-button gb-button-52ab81c1 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.rosterfy.com\/login\" target=\"_blank\" rel=\"noopener noreferrer\">Volunteer Opportunities<\/a>\n\n\n<div class=\"gb-container gb-container-9849f448\"><\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-f66b43c9\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-6725fec2\">\n<div class=\"gb-grid-column gb-grid-column-b0e37461\"><div class=\"gb-container gb-container-b0e37461\">\n\n<figure class=\"gb-block-image gb-block-image-8f07cf6d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-8f07cf6d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\" id=\"h-you-are-valued\" style=\"font-size:25px\"><strong>You Are Valued!<\/strong><\/h4>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">We value our Patient Support Volunteers because they:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Provide a wealth of knowledge, awareness, and first-hand experiences<\/li>\n\n\n\n<li>Are located all across the world<\/li>\n\n\n\n<li>Have resources at their fingertips<\/li>\n\n\n\n<li>Wish to help others by sharing their experiences in living and coping with Nephrotic Syndrome and FSGS<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">This program is designed to connect individuals via email or phone based upon any or all of the following: specific geographical area, diagnosis, symptoms, complications, or age of individuals. This gives volunteers the chance to help other patients using their experience in roles that they feel most comfortable with.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-e1412847\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-99257537\">\n<div class=\"gb-grid-column gb-grid-column-d36be1c1\"><div class=\"gb-container gb-container-d36be1c1\">\n\n<figure class=\"gb-block-image gb-block-image-f54100e5\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-f54100e5\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\" id=\"h-what-we-are-looking-for\" style=\"font-size:25px\"><strong>What We Are Looking For<\/strong><\/h4>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Criteria for Patient Support Volunteers:<strong>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Diagnosed with or caretaker of someone with FSGS or other disease causing Nephrotic Syndrome for at least 3 years<\/li>\n\n\n\n<li>Have access to email<\/li>\n\n\n\n<li>Reliable and responsive<\/li>\n\n\n\n<li>Able to communicate well with others and with NKI<\/li>\n\n\n\n<li>Empathetic, yet empowering<\/li>\n\n\n\n<li>Culturally sensitive and understanding<\/li>\n\n\n\n<li>Someone others can relate to, identify with and learn from<\/li>\n\n\n\n<li>Have a general understanding of FSGS\/NS<\/li>\n\n\n\n<li>Willing to complete an short application and share your story<\/li>\n\n\n\n<li>Attend a web based training<\/li>\n<\/ul>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-42105b23 news-letter-sec alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container 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Nuestros voluntarios de apoyo al paciente son... <a title=\"Voluntarios de apoyo al paciente\" class=\"read-more\" href=\"https:\/\/nephcure.org\/es\/get-involved\/volunteer\/patient-support-volunteers\/\" aria-label=\"Leer m\u00e1s sobre Voluntarios de Apoyo al Paciente\">Leer m\u00e1s<\/a><\/p>","protected":false},"author":12083,"featured_media":0,"parent":27505,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"disease-category":[],"topic":[],"treatment-option":[],"hf_cat_page":[351],"class_list":["post-28668","page","type-page","status-publish"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.2 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Patient Support Volunteers - NephCure<\/title>\n<meta name=\"description\" content=\"Patient Support Volunteers Our&nbsp;Patient Connections support program&nbsp;consists of an organized network of patients and caretakers whose lives have - 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