{"id":28655,"date":"2024-04-10T16:20:45","date_gmt":"2024-04-10T20:20:45","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=28655"},"modified":"2024-05-03T13:27:26","modified_gmt":"2024-05-03T17:27:26","slug":"voz-de-pacientes-voluntarios","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/get-involved\/volunteer\/voice-of-patient-volunteers\/","title":{"rendered":"La voz de los pacientes voluntarios"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/\">Get Involved<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/get-involved\/volunteer\/\">Volunteer<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Voice of Patient Volunteers<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\">Voice of Patient Volunteers<\/h1>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Our Voice of Patient (VOP) Volunteers are storytellers, committed to sharing their journey, experiences and opinions with constituents such as pharmaceutical&nbsp; companies, researchers and even the FDA. They do so in various ways including, but not limited to: participating in interviews, joining patient committees, and even serving on patient panels.<\/p>\n\n<\/div>\n\n\n<a class=\"gb-button gb-button-52ab81c1 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.rosterfy.com\/login\" target=\"_blank\" rel=\"noopener noreferrer\">Volunteer Opportunities<\/a>\n\n\n<div class=\"gb-container gb-container-9849f448\"><\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-f66b43c9\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-6725fec2\">\n<div class=\"gb-grid-column gb-grid-column-b0e37461\"><div class=\"gb-container gb-container-b0e37461\">\n\n<figure class=\"gb-block-image gb-block-image-8f07cf6d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-8f07cf6d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\" id=\"h-you-are-valued\" style=\"font-size:25px\"><strong>You Are Valued!<\/strong><\/h4>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">We value our&nbsp;Voice of Patient Volunteers because they:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Provide a wealth of knowledge and first-hand experiences<\/li>\n\n\n\n<li>Are located all across the world<\/li>\n\n\n\n<li>Can share what has worked and what hasn\u2019t<\/li>\n\n\n\n<li>Wish to help research and clinical trials succeed and be more patient-focused<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">Our VOP program is designed to connect individual patients or caregivers with constituents looking to learn and better understand what it is like living with glomerular disease. This gives our VOP volunteers the chance to share their story and help shape clinical trials to be more patient-centric.<\/p>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-e1412847\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-99257537\">\n<div class=\"gb-grid-column gb-grid-column-d36be1c1\"><div class=\"gb-container gb-container-d36be1c1\">\n\n<figure class=\"gb-block-image gb-block-image-f54100e5\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-f54100e5\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h4 class=\"wp-block-heading\" id=\"h-what-we-are-looking-for\" style=\"font-size:25px\"><strong>What We Are Looking For<\/strong><\/h4>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"wp-block-paragraph\">Criteria for Voice of Patient Volunteers:<strong>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Diagnosed with or caretaker of someone with FSGS or a disease causing Nephrotic Syndrome for at least 1 yea<\/li>\n\n\n\n<li>Knowledgeable about their or their loved one\u2019s disease<\/li>\n\n\n\n<li>Have access to email<\/li>\n\n\n\n<li>Reliable and responsive<\/li>\n\n\n\n<li>Able to communicate well with others and with NephCure<\/li>\n\n\n\n<li>Willing to share detailed information about their health condition<\/li>\n\n\n\n<li>Attend a web based training<\/li>\n<\/ul>\n\n\n\n<div style=\"height:42px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-42105b23 news-letter-sec alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container gb-container-2b968bcb news-letter-field\">\n    <script type=\"text\/javascript\">\n    jQuery(document).ready(function($) {\n        const disposableDomains = [\n         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m\u00e1s<\/a><\/p>","protected":false},"author":12083,"featured_media":0,"parent":27505,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"disease-category":[],"topic":[],"treatment-option":[],"hf_cat_page":[351],"class_list":["post-28655","page","type-page","status-publish"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.2 (Yoast SEO v28.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Voice of Patient Volunteers - NephCure<\/title>\n<meta name=\"description\" content=\"Voice of Patient Volunteers Our Voice of Patient (VOP) Volunteers are storytellers, committed to sharing their journey, experiences and opinions with - Read more about Voice of Patient Volunteers on NephCure.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link 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