{"id":28519,"date":"2024-04-09T13:30:28","date_gmt":"2024-04-09T17:30:28","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=28519"},"modified":"2025-12-03T11:42:43","modified_gmt":"2025-12-03T16:42:43","slug":"comparte-tu-historia","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/share-your-story\/","title":{"rendered":"Comparte tu historia"},"content":{"rendered":"<section class=\"gb-container gb-container-d8347813\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Share Your Story<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-68c0c9f1 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-80aa51d6 gb-headline-text hero-content\">Share Your Story<\/h1>\n\n\n\n<p class=\"wp-block-paragraph\">Every person&#8217;s journey with rare kidney disease is unique, but there is one thing that we all have in common: the power of our stories.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">By sharing our experiences, we can inspire hope, create awareness, and make a real difference in the lives of others. Whether you are a patient, caregiver, or supporter, your story matters. It can help others understand what it&#8217;s like to live with rare kidney disease, connect with those who are going through similar challenges, and advocate for better care and treatments.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Share your story with us, and help make a difference!<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-457f3daa\">\n\n<figure class=\"gb-block-image gb-block-image-6ad67fdc\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"790\" class=\"gb-image gb-image-6ad67fdc\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo.png\" alt=\"\" title=\"team-photo\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo.png 1920w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo-300x123.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo-1024x421.png 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo-768x316.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2023\/12\/team-photo-1536x632.png 1536w\" sizes=\"auto, (max-width: 1920px) 100vw, 1920px\" \/><\/figure>\n\n<\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-d94a51db gb-container-default\">\n<div class=\"gb-container gb-container-d18d67a8 gb-container-default\">\n\n<script src=\"https:\/\/js.hsforms.net\/forms\/embed\/9475998.js\" defer><\/script>\n<div class=\"hs-form-frame\" data-region=\"na1\" data-form-id=\"33dd29ad-3e2f-45ff-b0f8-d7533f24b387\" data-portal-id=\"9475998\"><\/div>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-0018102f\">\n\n<figure class=\"gb-block-image gb-block-image-a960ab34\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-a960ab34\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-33d24afb gb-headline-text\">Latest Resources<\/h2>\n\n\n<div class=\"gb-container gb-container-8a0bd972\">\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2bf95862 resource-cards-loop discount-sticky gb-query-loop-wrapper\" data-posts=\"post\">\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38008 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized disease-category-focal-segmental-glomerulosclerosis-fsgs resource-type-informational-documents\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/sparsentan-filspari-for-fsgs-faqs\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"464\" height=\"441\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/C1q-1.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/C1q-1.png 464w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/C1q-1-300x285.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/C1q-1-13x12.png 13w\" sizes=\"auto, (max-width: 464px) 100vw, 464px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter 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class=\"resource-terms-label\">Informational Documents<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Sparsentan\u00a0(FILSPARI) for FSGS:\u00a0FAQs<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-27575 post type-post status-publish format-standard has-post-thumbnail hentry category-printable-resource tag-cns tag-ins tag-rare-kidney-disease tag-support disease-category-congenital-infantile-nephrotic-syndrome-cns-ins resource-type-fact-sheet\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/congenital-nephrotic-syndrome-infantile-nephrotic-syndrome\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"340\" height=\"211\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png 340w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-300x186.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-18x12.png 18w\" sizes=\"auto, (max-width: 340px) 100vw, 340px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 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.video-btn { display : none } <\/style>\n\n<span style=\"color: #951f97 !important;\" class=\"resource-terms-label\">Fact Sheet<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Congenital Nephrotic Syndrome &amp; Infantile Nephrotic Syndrome<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38724 post type-post status-publish format-standard has-post-thumbnail hentry category-video tag-diet-and-nutrition resource-type-video\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/navigating-nutrition-in-protein-spilling-kidney-disease\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"340\" height=\"211\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/low-sodium.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/low-sodium.png 340w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/low-sodium-300x186.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/low-sodium-18x12.png 18w\" sizes=\"auto, (max-width: 340px) 100vw, 340px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 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#3ac2ba } <\/style>\n\n<span style=\"color: #3ac2ba !important;\" class=\"resource-terms-label\">Video<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Navigating Nutrition in Protein-Spilling Kidney Disease<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-28407 post type-post status-publish format-standard has-post-thumbnail hentry category-printable-resource tag-children tag-navigating-school tag-parents resource-type-educational-materials\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/school-accomodations\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" 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gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter id=\"filter0_d_172_269\" x=\"0\" y=\"0\" width=\"149\" height=\"149\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\">\n      <feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/>\n      <feColorMatrix in=\"SourceAlpha\" type=\"matrix\" values=\"0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 127 0\" result=\"hardAlpha\"\/>\n      <feOffset dy=\"12\"\/>\n      <feGaussianBlur stdDeviation=\"6\"\/>\n      <feComposite 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alignfull\">\n\n<figure class=\"gb-block-image gb-block-image-b3f3ccb8\"><img loading=\"lazy\" decoding=\"async\" width=\"1920\" height=\"120\" class=\"gb-image gb-image-b3f3ccb8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/purple-curve.svg\" alt=\"\" title=\"purple-curve\"\/><\/figure>\n\n\n<div class=\"gb-container gb-container-41717e70 alignwide\">\n\n<h2 class=\"gb-headline gb-headline-1760ac29 gb-headline-text\">Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\n<a class=\"gb-button gb-button-753f318a gb-button-text gb-button-primary button\" href=\"\/newsletter\/\">SIGN UP<\/a>\n\n\n<div class=\"gb-container gb-container-2b968bcb news-letter-field\">\n    <script type=\"text\/javascript\">\n    jQuery(document).ready(function($) {\n        const disposableDomains = [\n            'mailinator.com', 'yopmail.com', 'tempmail.com', 'guerrillamail.com',\n            'throwawaymail.com', 'fakeinbox.com', 'trashmail.com', 'sharklasers.com',\n            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