{"id":28386,"date":"2024-04-05T13:31:25","date_gmt":"2024-04-05T17:31:25","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=28386"},"modified":"2025-11-20T15:10:08","modified_gmt":"2025-11-20T20:10:08","slug":"que-hacemos","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/about\/what-we-do\/","title":{"rendered":"Qu\u00e9 hacemos"},"content":{"rendered":"
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Home<\/a><\/span> \/ About<\/a><\/span> \/ What We Do<\/span><\/span><\/div>\n\n
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What We Do<\/h1>\n\n\n\n

NephCure is the only kidney organization focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. We\u2019re creating a new reality where more rare kidney disease (RKD) therapies exist, and more patients get the care they need.<\/p>\n\n<\/div>\n\n

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The Four Pillars of Our Mission<\/h2>\n\n\n
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1<\/p>\n\n<\/div>\n\n

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Funding & Advancing Research<\/p>\n\n\n\n

To date, NephCure has invested $40 million into rare kidney disease research, growing the number of interventional drug trials for RKD from zero to more than 60 and counting.<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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2<\/p>\n\n<\/div>\n\n

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Supporting Patients<\/p>\n\n\n\n

Everything we do is for RKD patients. When they find themselves in the murky waters of a rare kidney disease diagnosis, we help connect them and their families to the best care, resources, and community support available.<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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3<\/p>\n\n<\/div>\n\n

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Advocating for Change<\/p>\n\n\n\n

NephCure collaborates directly with government officials and industry partners to pave the way for more clinical trials, drug approvals, and community awareness.<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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4<\/p>\n\n<\/div>\n\n

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Creating a Community<\/p>\n\n\n\n

We do everything better when we are together. By building bridges between patients, families, healthcare providers, and other key stakeholders, we lift everyone up under one common purpose: to find a cure for rare kidney disease.<\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/section>\n\n

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NephCure Statistics<\/h2>\n\n\n
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400<\/o-anim-count>+<\/p>\n\n\n\n

Members of our advocacy network creating change<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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$40M<\/o-anim-count>+<\/p>\n\n\n\n

NephCure funds invested to-date toward novel treatments<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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200+<\/p>\n\n\n\n

NephCure Specialists nationwide providing expert care<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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40<\/o-anim-count>K<\/p>\n\n\n\n

Patients & families reached yearly through our programs<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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50<\/o-anim-count>+<\/p>\n\n\n\n

Regional communities giving patients and families support<\/p>\n\n<\/div>\n<\/div><\/div>\n\n

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50<\/o-anim-count>+<\/p>\n\n\n\n

Annual events bringing together the RKD community nationwide<\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n

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How We’re Leading the RKD Revolution<\/h2>\n\n\n\n

Unique among other rare disease organizations, NephCure’s model engages every stakeholder group that touches the present and future of rare kidney disease. By building bridges between these groups, we transform lives: from connecting patients to expert NephCure specialists, to funding the next groundbreaking RKD therapy, and one day finding a cure. <\/p>\n\n\n

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Managing Rare Kidney Disease<\/strong><\/strong><\/h2>\n\n\n\n

If you\u2019re managing RKD, it\u2019s easy to feel lost and overwhelmed. Explore our expert-curated resources to help you navigate your or your loved one\u2019s disease. You\u2019ll find information on finding a NephCure specialist, active clinical trials, available treatments, and more. <\/p>\n\n\n\nLEARN MORE<\/a>\n\n<\/div><\/div>\n\n

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Latest Resources<\/h2>\n\n\n
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\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Informational Documents<\/span>\n\n

Sparsentan\u00a0(FILSPARI) for FSGS:\u00a0FAQs<\/h4>\n<\/div>\n<\/div><\/div>\n\n
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Congenital Nephrotic Syndrome & Infantile Nephrotic Syndrome<\/h4>\n<\/div>\n<\/div><\/div>\n\n
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A First for FSGS Patients: What the sparsentan Approval Means for You<\/h4>\n<\/div>\n<\/div><\/div>\n\n
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\n\n\n \n \n \n <\/g>\n \n \n \n \n \n \n \n \n \n \n <\/filter>\n <\/defs>\n<\/svg>\n\n<\/div>\n<\/div>Educational Materials<\/span>\n\n

School Accomodations<\/h4>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n<\/div>\n\n\nALL RESOURCES<\/a>\n\n<\/div>\n\n
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Supporting Patients Every Step of the Way<\/strong><\/h2>\n\n\n\n

The diagnosis of rare kidney disease can feel disorienting, scary, and lonely\u2014all at once. Helping patients and their families navigate their disease is our top priority. Through connecting patients to expert specialists, communities, resources, and more, we empower those affected by RKD to take charge of both their health and their life. <\/p>\n\n\n\nLEARN MORE<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n

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The Latest Events & News<\/h2>\n\n\n
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NephCure Parent Support Group<\/h2>\n\n
Support Group<\/span><\/div>\n<\/div>\n\n
\nMay<\/span>\n\n18<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n\n
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Clinical Trial Awareness Day 2026<\/h2>\n\n
Patient Program<\/span><\/div>\n<\/div>\n\n
\nMay<\/span>\n\n20<\/span>\n<\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n
\n\nALL EVENTS<\/a>\n\n<\/div>\n<\/div><\/div>\n\n
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News<\/span><\/p>\n\n

NephCure Celebrates IgA Nephropathy (IgAN) Awareness Day on May 14, 2026<\/h2>\n\n

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News<\/span><\/p>\n\n

FDA Approves\u00a0Sparsentan\u00a0for FSGS,\u00a0Marking\u00a0a Landmark\u00a0Achievement\u00a0for Patients Living with Rare Kidney Disease<\/h2>\n\n

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Volunteer for the RKD Community<\/h2>\n\n\n\n

Whether you\u2019re directly or indirectly affected by rare kidney disease, you can become a hero for those who need it. There are several ways to get involved: Learn more how you can support the RKD community, and help us build a better world for everyone touched by these diseases.<\/p>\n\n\n\nget involved<\/a>\n\n<\/div>\n\n\n

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Sign up to get NephCure\u2019s latest updates.<\/h2>\n\n\n\nSIGN UP<\/a>\n\n\n
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