{"id":28312,"date":"2024-04-03T17:02:26","date_gmt":"2024-04-03T21:02:26","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=28312"},"modified":"2025-07-17T17:15:03","modified_gmt":"2025-07-17T21:15:03","slug":"salud-mental","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/managing-rkd\/rkd-mental-health\/","title":{"rendered":"RKD y salud mental"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/managing-rkd\/\">Managing RKD<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">RKD &#038; Mental Health<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\">RKD &amp; Mental Health<\/h1>\n\n\n\n<p class=\"has-text-align-center\">NephCure believes it&#8217;s important for people with rare kidney diseases to start talking about mental health early on in their disease journey. This helps in many ways, like getting help sooner, taking charge of your well-being, and creating a supportive community. NephCure is committed to making sure everyone we serve feels empowered to take charge of their health.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-2484f45d\">\n\n<figure class=\"gb-block-image gb-block-image-4bed8593\"><img loading=\"lazy\" decoding=\"async\" width=\"3840\" height=\"1580\" class=\"gb-image gb-image-4bed8593\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image.png\" alt=\"\" title=\"Curved-Image\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image.png 3840w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-300x123.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-1024x421.png 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-768x316.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-1536x632.png 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-2048x843.png 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Curved-Image-18x7.png 18w\" sizes=\"auto, (max-width: 3840px) 100vw, 3840px\" \/><\/figure>\n\n<\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-70f35cee\">\n<div class=\"gb-container gb-container-0b0c93a2 gb-container-default\">\n<div class=\"gb-container gb-container-be1ed572 image-left\">\n<div class=\"gb-container gb-container-340e9e61 animated slideInLeft left-img\">\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Mental Health and Rare Kidney Disease: The Hope that Lies Ahead\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/GSooCbWfN4E?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-00c26c7c animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-de8c9e4d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-de8c9e4d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-378310fe gb-headline-text\">Mental Health Patient Panel<\/h2>\n\n\n\n<p>Our patient panelists shed light on the mental health struggles that many RKD patients experience, but also share the hope laced throughout their journeys.<\/p>\n\n\n\n<p>This mental health discussion spotlights the panelists&#8217; coping skills, support systems, and how they continue to brave their physical health battles in the midst of anxiety, depression, and stressors.<\/p>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<a class=\"gb-button gb-button-8f582cdf gb-button-text gb-button-primary button\" href=\"https:\/\/www.youtube.com\/watch?v=GSooCbWfN4E\" target=\"_blank\" rel=\"noopener noreferrer\">Watch on Youtube<\/a>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-30dc6aae image-right\">\n<div class=\"gb-container gb-container-58668973 animated fadeInLeft promo-copy-left\">\n\n<figure class=\"gb-block-image gb-block-image-76d5d608\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-76d5d608\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-8c5cfd9b gb-headline-text\">Mental Health and Chronic Illness Webinar<\/h2>\n\n\n\n<p>The challenges of living with a rare and chronic kidney disease can affect not only the patient, but the patient\u2019s entire family and support system. <\/p>\n\n\n\n<p>This talk highlights the importance of mental health and the steps you can take to positively impact your quality of life.<\/p>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<a class=\"gb-button gb-button-7a614b1b gb-button-text gb-button-primary button\" href=\"https:\/\/www.youtube.com\/watch?v=__Y_M3e-IAw\" target=\"_blank\" rel=\"noopener noreferrer\">watch on youtube<\/a>\n\n<\/div>\n\n<div class=\"gb-container gb-container-d0d623c0 animated slideInRight right-img\">\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Mental Health and Chronic Illness\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/__Y_M3e-IAw?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-abdfdaa8 image-left\">\n<div class=\"gb-container gb-container-0a49fd3c animated slideInLeft left-img\">\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"NephCure&#039;s Mental Health Awareness Townhall 2024\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/lZroalG9o1k?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n<\/div>\n\n<div class=\"gb-container gb-container-2629ae67 animated fadeInRight promo-copy-right\">\n\n<figure class=\"gb-block-image gb-block-image-8fe4d0d5\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-8fe4d0d5\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-eb79892d gb-headline-text\">Mental Health Awareness Town Hall<\/h2>\n\n\n\n<p>Montrez Lucas, NephCure&#8217;s Associate Director of Patient Navigation, recently led a heartfelt discussion with patients on the mental health challenges of living with rare kidney disease. <\/p>\n\n\n\n<p>This powerful panel dives deep into the emotional toll of their journeys, offering candid insights into the struggles they face. Through their shared vulnerabilities, these patients provide a compelling reminder of the unseen battles that accompany rare kidney diseases.<\/p>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<a class=\"gb-button gb-button-50275615 gb-button-text gb-button-primary button\" href=\"https:\/\/www.youtube.com\/watch?v=lZroalG9o1k\" target=\"_blank\" rel=\"noopener noreferrer\">Watch on Youtube<\/a>\n\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-d02429a7\">\n<div class=\"gb-container gb-container-dd8c1861 gb-container-default\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-1b427885\">\n<div class=\"gb-grid-column gb-grid-column-d0b2a632 gb-grid-column-default\"><div class=\"gb-container gb-container-d0b2a632 gb-container-default\">\n\n<h3 class=\"gb-headline gb-headline-e4918120 gb-headline-text\"><strong>It\u2019s incredibly important for people with rare kidney disease (RKD) to start talking about mental health from the very beginning of their RKD journey.<\/strong><\/h3>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-75b75574\">\n<div class=\"gb-container gb-container-f0addb23\">\n\n<figure class=\"gb-block-image gb-block-image-6cc92eb4\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-6cc92eb4\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h4 class=\"gb-headline gb-headline-7b8a4c8d gb-headline-text\"><strong>Some Reasons Why Addressing Mental Health Early on is Crucial for Everyone Affected by RKD:&nbsp;<\/strong><\/h4>\n\n\n\n<div style=\"height:10px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p class=\"has-text-align-center\">Click on each arrow below to learn more.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-70713ab2\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-a0a5fb5d\">\n<div class=\"gb-grid-column gb-grid-column-aa9c368b\"><div class=\"gb-container gb-container-aa9c368b\">\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Early Intervention<\/strong><\/summary>\n<p>Detecting mental health concerns in their initial stages enables timely support and reduces the risk of these issues escalating over time.&nbsp;<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Patient Education<\/strong><\/strong><\/summary>\n<p>Starting mental health discussions early gives you a chance to learn more about how your condition can affect your feelings. You can also find out about the available resources and learn about coping mechanisms that can enhance their overall well-being.<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Long-Term Resilience<\/strong><\/strong><\/summary>\n<p>Developing mental health awareness and coping strategies early can contribute to long-term resilience. RKD often involves ongoing care management, and taking care of your mental health from the start helps you handle challenges over time.<\/p>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-a8774160\"><div class=\"gb-container gb-container-a8774160\">\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Building Coping Strategies<\/strong><\/summary>\n<p>Talking about mental health early helps you learn ways to handle tough feelings and develop coping strategies right from the start. This helps give you the proper tools you need to deal with the emotional challenges that come with a rare kidney disease.<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Holistic Care Planning<\/strong><\/strong><\/summary>\n<p>Talking about mental health early means mental health can be part of your overall care plan. This way, both your physical and mental health needs are considered when planning your treatment strategies and support services.&nbsp;<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Family and Social Support<\/strong><\/strong><\/summary>\n<p>Early conversations about mental health can also involve family members and caregivers, creating a supportive network from the beginning. This team approach helps create an environment where individuals feel surrounded by understanding and help.&nbsp;<\/p>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-5dc6f759\"><div class=\"gb-container gb-container-5dc6f759\">\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Empowering Patients<\/strong><\/strong><\/summary>\n<p>Encouraging patients to take an active role in discussing mental health empowers them to be advocates for their own well-being. It helps them speak up for what they need and encourages individuals to get the support they need throughout their RKD journey.<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Normalizing Mental Health Conversations<\/strong><\/summary>\n<p>NephCure encourages patients to talk about mental health early, making it a normal thing to discuss. This can help reduced the stigma and feeling of shame, and create a supportive environment where people feel comfortable seeking help.<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Preventing Mental Health Complications<\/strong><\/strong><\/summary>\n<p>Some mental health challenges may arise as a reaction to the stress and uncertainties associated with a RKD diagnosis. By addressing mental health early, there is a potential to prevent or mitigate the development of more severe mental health complications.<\/p>\n<\/details>\n\n<\/div><\/div>\n<\/div>\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n<\/div>\n\n<div class=\"gb-container gb-container-04370f24\">\n<div class=\"gb-container gb-container-0018102f\">\n\n<figure class=\"gb-block-image gb-block-image-a960ab34\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-a960ab34\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-33d24afb gb-headline-text\">Latest Resources<\/h2>\n\n\n<div class=\"gb-container gb-container-8a0bd972\">\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2bf95862 resource-cards-loop discount-sticky gb-query-loop-wrapper\" data-posts=\"post\">\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38008 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized disease-category-focal-segmental-glomerulosclerosis-fsgs resource-type-informational-documents\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/sparsentan-filspari-for-fsgs-faqs\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"675\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image.jpg\" class=\"gb-image-ca750b16\" alt=\"Nephcure Site Image\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image.jpg 1200w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-300x169.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-1024x576.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-768x432.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-18x10.jpg 18w\" sizes=\"auto, (max-width: 1200px) 100vw, 1200px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter 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class=\"resource-terms-label\">Informational Documents<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Sparsentan\u00a0(FILSPARI) for FSGS:\u00a0FAQs<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-27575 post type-post status-publish format-standard has-post-thumbnail hentry category-printable-resource tag-cns tag-ins tag-rare-kidney-disease tag-support disease-category-congenital-infantile-nephrotic-syndrome-cns-ins resource-type-fact-sheet\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/congenital-nephrotic-syndrome-infantile-nephrotic-syndrome\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"340\" height=\"211\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png 340w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-300x186.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-18x12.png 18w\" sizes=\"auto, (max-width: 340px) 100vw, 340px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 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.video-btn { display : none } <\/style>\n\n<span style=\"color: #951f97 !important;\" class=\"resource-terms-label\">Fact Sheet<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Congenital Nephrotic Syndrome &amp; Infantile Nephrotic Syndrome<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38012 post type-post status-publish format-standard has-post-thumbnail hentry category-video tag-fsgs tag-video resource-type-video\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/a-first-for-fsgs-patients-what-the-sparsentan-approval-means-for-you\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img 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