{"id":27512,"date":"2024-03-28T13:46:56","date_gmt":"2024-03-28T17:46:56","guid":{"rendered":"https:\/\/nephcure.org\/?page_id=27512"},"modified":"2025-12-11T08:31:16","modified_gmt":"2025-12-11T13:31:16","slug":"atencion-pediatrica","status":"publish","type":"page","link":"https:\/\/nephcure.org\/es\/intro-to-rkd\/pediatric-care\/","title":{"rendered":"Atenci\u00f3n pedi\u00e1trica"},"content":{"rendered":"<section class=\"gb-container gb-container-ba2e2dcb\">\n<div class=\"yoast-breadcrumbs breadcrumb\"><span><span><a href=\"https:\/\/nephcure.org\/\">Home<\/a><\/span> \/ <span><a href=\"https:\/\/nephcure.org\/intro-to-rkd\/\">Intro to RKD<\/a><\/span> \/ <span class=\"breadcrumb_last\" aria-current=\"page\">Pediatric Care<\/span><\/span><\/div>\n\n<div class=\"gb-container gb-container-80071c84 hero-copy\">\n\n<h1 class=\"gb-headline gb-headline-6cf43bd0 gb-headline-text hero-content\">Pediatric Care<\/h1>\n\n\n\n<p class=\"has-text-align-center\">Navigating the path of a child diagnosed with a rare, protein spilling kidney disease brings unique challenges for parents. Many questions may arise about the future, treatment options, and the impact of rare kidney disease (RKD) on their child\u2019s future. The pediatric journey is unique and may have special considerations. NephCure is here to provide guidance, resources, and information to support parents through this process.&nbsp;<br><\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-9849f448\"><\/div>\n<\/section>\n\n<div class=\"gb-container gb-container-a6126eda\">\n\n<figure class=\"gb-block-image gb-block-image-bef1b5a3\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-bef1b5a3\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-88096344 gb-headline-text\"><strong>RKD Symptoms in Children<\/strong>&nbsp;<\/h2>\n\n\n\n<p>Rare kidney disease in children can present with different symptoms, and they can vary based on&nbsp; the specific type and stage of the condition. Some children may not have noticeable symptoms until the disease has gotten worse.&nbsp;&nbsp;<\/p>\n\n\n\n<p>Common symptoms associated with RKD in children:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Swelling (edema) in the face, hands, feet, stomach, or groin&nbsp;<\/li>\n\n\n\n<li>Foamy urine&nbsp;&nbsp;<\/li>\n\n\n\n<li>Protein in urine (proteinuria) detected through a laboratory test&nbsp;<\/li>\n\n\n\n<li>Blood in urine (hematuria) detected through a laboratory test or cola colored urine&nbsp;<\/li>\n\n\n\n<li>Unexplained fatigue&nbsp;<\/li>\n\n\n\n<li>High blood pressure&nbsp;<\/li>\n\n\n\n<li>High cholesterol&nbsp;<\/li>\n\n\n\n<li>Decreased urination&nbsp;<\/li>\n\n\n\n<li>Abdominal pain&nbsp;<\/li>\n\n\n\n<li>Decreased appetite or weight loss&nbsp;<\/li>\n<\/ul>\n\n\n\n<figure class=\"gb-block-image gb-block-image-888d6464\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-888d6464\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-3de92b95 gb-headline-text\"><strong>Diagnosis of Rare Kidney Disease in Children<\/strong>&nbsp;<\/h2>\n\n\n\n<p>Diagnosing rare kidney disease in children can be difficult and often takes time. Many children with RKD are mis-diagnosed with allergies when they present with swelling around the eyes. To ensure your child is diagnosed properly, it\u2019s important to see a pediatrician who considers family history, a physical examination, blood work, and urinalysis. Early diagnosis and intervention are crucial for managing RKD in children.&nbsp;<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-5dba5269\">\n\n<figure class=\"gb-block-image gb-block-image-94739cf9\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-94739cf9\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-6144db93 gb-headline-text\"><strong>Here are the Key Steps in the Diagnosis of RKD in Children:<\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center\">Click on each step to learn more.<\/p>\n\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-fe7cf882\">\n<div class=\"gb-grid-column gb-grid-column-247ae24e\"><div class=\"gb-container gb-container-247ae24e\">\n<div class=\"gb-container gb-container-1cdfbb1e\">\n\n<p class=\"gb-headline gb-headline-27c48ae9 gb-headline-text\">1<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Medical History &amp; Physical Examination<\/strong><\/summary>\n<ul class=\"wp-block-list\">\n<li>The healthcare provider will gather information about the child&#8217;s symptoms, overall health, and any family history of kidney disease.&nbsp;<\/li>\n\n\n\n<li>A physical examination may be conducted to check for signs such as swelling, high blood pressure, or abdominal pain.&nbsp;&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-3d60863e\"><div class=\"gb-container gb-container-3d60863e\">\n<div class=\"gb-container gb-container-25f6bb51\">\n\n<p class=\"gb-headline gb-headline-8f8acf80 gb-headline-text\">2<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Urine Test<\/strong>s and Analysis<\/strong><br><\/summary>\n<ul class=\"wp-block-list\">\n<li>Urinalysis: A simple urine test can detect the presence of protein, blood or infection in the urine.&nbsp;<\/li>\n\n\n\n<li>Urine protein-to-creatinine ratio (UPCR): This test measures the amount of protein in the urine, helping to identify proteinuria.<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-432719e6\"><div class=\"gb-container gb-container-432719e6\">\n<div class=\"gb-container gb-container-38d8c35f\">\n\n<p class=\"gb-headline gb-headline-3320d17e gb-headline-text\">3<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Blood Tests<\/strong><\/strong>                                                  <\/summary>\n<ul class=\"wp-block-list\">\n<li>Blood urea nitrogen (BUN) and creatinine: Elevated levels of these substances in the blood can indicate impaired kidney function.&nbsp;<\/li>\n\n\n\n<li>Estimated Glomerular filtration rate (eGFR): an estimated measure of kidney function.&nbsp;<\/li>\n\n\n\n<li>Lipid panel: high cholesterol can be a sign of kidney dysfunction.&nbsp;<\/li>\n\n\n\n<li>Electrolyte levels: Imbalances in electrolytes, such as potassium and sodium, may occur with kidney dysfunction.&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-460812ae\"><div class=\"gb-container gb-container-460812ae\">\n<div class=\"gb-container gb-container-7b307f52\">\n\n<p class=\"gb-headline gb-headline-a4f04696 gb-headline-text\">4<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Blood Pressure Monitoring<\/strong><\/strong>                  <\/summary>\n<ul class=\"wp-block-list\">\n<li>Regular monitoring of blood pressure is important, as high blood pressure or hypertension is a common complication of kidney disease.&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-338660a4\"><div class=\"gb-container gb-container-338660a4\">\n<div class=\"gb-container gb-container-d7151e98\">\n\n<p class=\"gb-headline gb-headline-3f7430b6 gb-headline-text\">5<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Kidney Biopsy<\/strong>                                    <\/summary>\n<ul class=\"wp-block-list\">\n<li>If your child is less than 12 months or older than 12 years or does not respond to prednisone, a kidney biopsy may be recommended to obtain a small sample of kidney tissue for detailed examination.&nbsp;&nbsp;<\/li>\n\n\n\n<li>A biopsy may be performed later in the RKD journey to help guide treatment options, check for treatment specific information or determine if the RKD is progressing.&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-b0cc26c7\"><div class=\"gb-container gb-container-b0cc26c7\">\n<div class=\"gb-container gb-container-88db40ad\">\n\n<p class=\"gb-headline gb-headline-5314658d gb-headline-text\">6<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Genetic Testing<\/strong><\/strong>                                         <\/summary>\n<ul class=\"wp-block-list\">\n<li>If a genetic or hereditary component is suspected, genetic testing may be performed to identify specific gene mutations associated with certain kidney diseases. This can also help guide treatment options.&nbsp;&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-c4e20aee\"><div class=\"gb-container gb-container-c4e20aee\">\n<div class=\"gb-container gb-container-fcc1cff1\">\n\n<p class=\"gb-headline gb-headline-36fd23c8 gb-headline-text\">7<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Imaging Studies<\/strong><\/strong>                                  <\/summary>\n<ul class=\"wp-block-list\">\n<li>Ultrasound: An ultrasound of the kidneys can provide images to evaluate the size, shape, and structure of the kidneys or detect abnormalities.&nbsp;&nbsp;&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-06de451a\"><div class=\"gb-container gb-container-06de451a\">\n<div class=\"gb-container gb-container-8ba9339a\">\n\n<p class=\"gb-headline gb-headline-b9061e87 gb-headline-text\">8<\/p>\n\n<\/div>\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong><strong>Consultation with a Pediatric Nephrologist<\/strong><\/strong><\/summary>\n<ul class=\"wp-block-list\">\n<li>A pediatric nephrologist, a doctor specialized in kidney disorders in children, should be consulted for a comprehensive evaluation and management plan.&nbsp;&nbsp;<\/li>\n<\/ul>\n<\/details>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-b45e9505\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-d4ac8e2d\">\n<div class=\"gb-grid-column gb-grid-column-252bc541\"><div class=\"gb-container gb-container-252bc541\">\n\n<figure class=\"gb-block-image gb-block-image-4ac64150\"><img loading=\"lazy\" decoding=\"async\" width=\"464\" height=\"441\" class=\"gb-image gb-image-4ac64150\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/37.png\" alt=\"\" title=\"37\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/37.png 464w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/37-300x285.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/37-13x12.png 13w\" sizes=\"auto, (max-width: 464px) 100vw, 464px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-93bfef93\"><div class=\"gb-container gb-container-93bfef93\">\n\n<figure class=\"gb-block-image gb-block-image-d95bd0b8\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-d95bd0b8\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-8b25774b gb-headline-text\"><strong>Treating RKD<\/strong>&nbsp;<\/h2>\n\n\n<div class=\"gb-container gb-container-aab7cdfb\"><\/div>\n\n\n<p>Treating rare kidney diseases in children often involves a team of experts working together. The specific treatment plan will depend on the type RKD, its severity, and the individual needs of the child. Every child\u2019s treatment journey is unique. The goal of treatment in RKD should be to stop or lower the amount of protein in the urine while balancing all the other symptoms that come along with RKD. Ongoing follow-ups and adjustments to the treatment plan are often necessary as the child grows and the disease evolves.&nbsp;&nbsp;<\/p>\n\n\n\n<p><strong>Medications:<\/strong><\/p>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Immunosuppressive Drugs<\/strong><\/summary>\n<p>Most children start out on prednisone. Depending on their response to steroids, second line immunosuppressive medications may be prescribed.&nbsp;<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Blood Pressure Medications<\/strong><\/summary>\n<p>If the child has high blood pressure, blood pressure medications may be prescribed to control blood pressure and reduce the risk of further kidney damage. Specific types of blood pressure medications called ACE Inhibitors or ARBs may also be prescribed to help low the amount of protein spilling into the urine.&nbsp;<\/p>\n<\/details>\n\n\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary><strong>Other Medications and Supplements<\/strong><\/summary>\n<p>RKD can cause other conditions such as high cholesterol that require medication or deficiencies like low vitamin d or iron levels that may require supplements. Always check with your doctor before adding new medications or supplements.&nbsp;<\/p>\n<\/details>\n\n\n\n<a class=\"gb-button gb-button-10cda369 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/managing-rkd\/treatment-options\/\">learn more about treatment options<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-703346ae\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-542c04e0\">\n<div class=\"gb-grid-column gb-grid-column-cc8ee133\"><div class=\"gb-container gb-container-cc8ee133\">\n\n<figure class=\"gb-block-image gb-block-image-b4ae0301\"><img loading=\"lazy\" decoding=\"async\" width=\"464\" height=\"441\" class=\"gb-image gb-image-b4ae0301\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/38.png\" alt=\"\" title=\"38\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/38.png 464w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/38-300x285.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/38-13x12.png 13w\" sizes=\"auto, (max-width: 464px) 100vw, 464px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-bccfd069\"><div class=\"gb-container gb-container-bccfd069\">\n\n<figure class=\"gb-block-image gb-block-image-178a792a\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-178a792a\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-aaa60fb9 gb-headline-text\"><strong>Diet &amp; Nutrition<\/strong>&nbsp;<\/h2>\n\n\n<div class=\"gb-container gb-container-73927d0f\"><\/div>\n\n\n<p>Your child&#8217;s doctor might suggest changes to their diet to help with symptoms and protect the kidneys from further damage. This could mean limiting salt and controlling how much liquid your child drinks. The pediatric nephrologist will let you know what your child\u2019s specific dietary needs are based on their condition.&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-78bed1f1 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/managing-rkd\/diet-and-nutrition\/\">Explore More on Diet &amp; Nutrition<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-4e7ff4c1\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-4d625fd9\">\n<div class=\"gb-grid-column gb-grid-column-994d0c1f\"><div class=\"gb-container gb-container-994d0c1f\">\n\n<figure class=\"gb-block-image gb-block-image-6f59eb0d\"><img loading=\"lazy\" decoding=\"async\" width=\"464\" height=\"441\" class=\"gb-image gb-image-6f59eb0d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/36.png\" alt=\"\" title=\"36\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/36.png 464w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/36-300x285.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/36-13x12.png 13w\" sizes=\"auto, (max-width: 464px) 100vw, 464px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-5934d6c6\"><div class=\"gb-container gb-container-5934d6c6\">\n\n<figure class=\"gb-block-image gb-block-image-68012e19\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-68012e19\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-a64841b8 gb-headline-text\"><strong>Mental Health Support<\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-77d897d9\"><\/div>\n\n\n<p>Mental health support, including counseling and support groups, can help individuals cope with the emotional and social aspects of the condition and should be a part of your child\u2019s care plan.&nbsp;&nbsp;<\/p>\n\n\n\n<a class=\"gb-button gb-button-2de01ecf gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/managing-rkd\/rkd-mental-health\/\">Mental Health and RKD<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-32866bb4\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-75afd314\">\n<div class=\"gb-grid-column gb-grid-column-c231e5a0\"><div class=\"gb-container gb-container-c231e5a0\">\n\n<figure class=\"gb-block-image gb-block-image-13dfc150\"><img loading=\"lazy\" decoding=\"async\" width=\"464\" height=\"441\" class=\"gb-image gb-image-13dfc150\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/39.png\" alt=\"\" title=\"39\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/39.png 464w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/39-300x285.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/39-13x12.png 13w\" sizes=\"auto, (max-width: 464px) 100vw, 464px\" \/><\/figure>\n\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-cacc7dab\"><div class=\"gb-container gb-container-cacc7dab\">\n\n<figure class=\"gb-block-image gb-block-image-6130f120\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-6130f120\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-fc85832b gb-headline-text\"><strong>Monitoring and Supportive Care<\/strong><\/h2>\n\n\n<div class=\"gb-container gb-container-a493f6b0\"><\/div>\n\n\n<ul class=\"wp-block-list\">\n<li>Regular monitoring of kidney function, blood pressure, protein levels and other parameters is important. Supportive care may include interventions to address complications and maintain overall health and quality of life.&nbsp;<\/li>\n\n\n\n<li>In cases where the rare kidney disease has a genetic basis, genetic counseling may be offered to the family. This can provide information about the likelihood of the disease recurring in future generations and help families make informed decisions.&nbsp;<\/li>\n<\/ul>\n\n\n\n<a class=\"gb-button gb-button-9b2cd446 gb-button-text gb-button-primary button\" href=\"https:\/\/nephcure.org\/support\/support-groups\/\">Join a Support Group Today<\/a>\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-0056447f gb-container-default\">\n<div class=\"gb-grid-wrapper gb-grid-wrapper-f5f75bf0\">\n<div class=\"gb-grid-column gb-grid-column-96dea33f\"><div class=\"gb-container gb-container-96dea33f\">\n<div class=\"gb-container gb-container-8c112205\">\n\n<h2 class=\"gb-headline gb-headline-502487ea gb-headline-text\">Hear From Other Patients<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-710d6f21 gb-headline-text\">Each story is a beacon of courage and solidarity. Explore a range of experiences, insights, and triumphs, fostering empathy and empowerment within our community.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-5fe04f4b\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/support\/patient-stories\/\"><\/a>\n\n<p class=\"gb-headline gb-headline-1225e0b4\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-e37c2bbf\"><div class=\"gb-container gb-container-e37c2bbf\">\n<div class=\"gb-container gb-container-bc0ff6c3\">\n\n<h2 class=\"gb-headline gb-headline-d237c6e7 gb-headline-text\">NephCure Specialists<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-94cc70f1 gb-headline-text\">Do you suspect you may have a RKD? It is important to see a nephrologist who understands how to manage your type of RKD. Learn more about nephrologists who specialize in rare, protein spilling kidney diseases and how to contact them.<\/p>\n\n<\/div>\n\n<div class=\"gb-container gb-container-22cf50d4\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/managing-rkd\/find-a-specialist\/\"><\/a>\n\n<p class=\"gb-headline gb-headline-3a61379c\"><span class=\"gb-icon\"><svg fill=\"none\" viewBox=\"0 0 27 24\" height=\"24\" width=\"27\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"> <path fill=\"#00556B\" d=\"M26.0607 13.0607C26.6464 12.4749 26.6464 11.5251 26.0607 10.9393L16.5147 1.3934C15.9289 0.807611 14.9792 0.807611 14.3934 1.3934C13.8076 1.97919 13.8076 2.92893 14.3934 3.51472L22.8787 12L14.3934 20.4853C13.8076 21.0711 13.8076 22.0208 14.3934 22.6066C14.9792 23.1924 15.9289 23.1924 16.5147 22.6066L26.0607 13.0607ZM0 13.5H25V10.5H0V13.5Z\"><\/path> <\/svg><\/span><\/p>\n\n<\/div>\n<\/div><\/div>\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-5f18cf75\">\n<div class=\"gb-container gb-container-0018102f\">\n\n<figure class=\"gb-block-image gb-block-image-40625f55\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-40625f55\" src=\"https:\/\/kidneydevelop.wpengine.com\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-33d24afb gb-headline-text\">Related Resources<\/h2>\n\n\n<div class=\"gb-container gb-container-8a0bd972\">\n\n<div class=\"gb-grid-wrapper gb-grid-wrapper-2bf95862 resource-cards-loop  gb-query-loop-wrapper\" data-posts=\"post\">\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38008 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized disease-category-focal-segmental-glomerulosclerosis-fsgs resource-type-informational-documents\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/sparsentan-filspari-for-fsgs-faqs\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"675\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image.jpg\" class=\"gb-image-ca750b16\" alt=\"Nephcure Site Image\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image.jpg 1200w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-300x169.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-1024x576.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-768x432.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/05\/Site-Image-18x10.jpg 18w\" sizes=\"auto, (max-width: 1200px) 100vw, 1200px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter id=\"filter0_d_172_269\" x=\"0\" y=\"0\" width=\"149\" height=\"149\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\">\n      <feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/>\n      <feColorMatrix in=\"SourceAlpha\" type=\"matrix\" values=\"0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 127 0\" result=\"hardAlpha\"\/>\n      <feOffset dy=\"12\"\/>\n      <feGaussianBlur stdDeviation=\"6\"\/>\n      <feComposite in2=\"hardAlpha\" operator=\"out\"\/>\n      <feColorMatrix type=\"matrix\" values=\"0 0 0 0 0.00364583 0 0 0 0 0.232447 0 0 0 0 0.291667 0 0 0 0.2 0\"\/>\n      <feBlend mode=\"normal\" in2=\"BackgroundImageFix\" result=\"effect1_dropShadow_172_269\"\/>\n      <feBlend mode=\"normal\" in=\"SourceGraphic\" in2=\"effect1_dropShadow_172_269\" result=\"shape\"\/>\n    <\/filter>\n  <\/defs>\n<\/svg>\n\n<\/div>\n<\/div><style>.post-38008 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<span style=\"color: #c2005d !important;\" class=\"resource-terms-label\">Informational Documents<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Sparsentan\u00a0(FILSPARI) for FSGS:\u00a0FAQs<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-27575 post type-post status-publish format-standard has-post-thumbnail hentry category-printable-resource tag-cns tag-ins tag-rare-kidney-disease tag-support disease-category-congenital-infantile-nephrotic-syndrome-cns-ins resource-type-fact-sheet\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/congenital-nephrotic-syndrome-infantile-nephrotic-syndrome\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"340\" height=\"211\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS.png 340w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-300x186.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/CNSINS-18x12.png 18w\" sizes=\"auto, (max-width: 340px) 100vw, 340px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter id=\"filter0_d_172_269\" x=\"0\" y=\"0\" width=\"149\" height=\"149\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\">\n      <feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/>\n      <feColorMatrix in=\"SourceAlpha\" type=\"matrix\" values=\"0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 127 0\" result=\"hardAlpha\"\/>\n      <feOffset dy=\"12\"\/>\n      <feGaussianBlur stdDeviation=\"6\"\/>\n      <feComposite in2=\"hardAlpha\" operator=\"out\"\/>\n      <feColorMatrix type=\"matrix\" values=\"0 0 0 0 0.00364583 0 0 0 0 0.232447 0 0 0 0 0.291667 0 0 0 0.2 0\"\/>\n      <feBlend mode=\"normal\" in2=\"BackgroundImageFix\" result=\"effect1_dropShadow_172_269\"\/>\n      <feBlend mode=\"normal\" in=\"SourceGraphic\" in2=\"effect1_dropShadow_172_269\" result=\"shape\"\/>\n    <\/filter>\n  <\/defs>\n<\/svg>\n\n<\/div>\n<\/div><style>.post-27575 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<span style=\"color: #951f97 !important;\" class=\"resource-terms-label\">Fact Sheet<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">Congenital Nephrotic Syndrome &amp; Infantile Nephrotic Syndrome<\/h4>\n<\/div>\n<\/div><\/div>\n\n<div class=\"gb-grid-column gb-grid-column-32674dd1 gb-query-loop-item post-38012 post type-post status-publish format-standard has-post-thumbnail hentry category-video tag-fsgs tag-video resource-type-video\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/a-first-for-fsgs-patients-what-the-sparsentan-approval-means-for-you\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"2212\" height=\"1126\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval.png\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval.png 2212w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-300x153.png 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-1024x521.png 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-768x391.png 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-1536x782.png 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-2048x1043.png 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-18x9.png 18w, https:\/\/nephcure.org\/wp-content\/uploads\/2026\/04\/a-first-for-fsgs-patients-sparsentan-approval-600x305.png 600w\" sizes=\"auto, (max-width: 2212px) 100vw, 2212px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter id=\"filter0_d_172_269\" x=\"0\" y=\"0\" width=\"149\" height=\"149\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\">\n      <feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/>\n      <feColorMatrix in=\"SourceAlpha\" type=\"matrix\" values=\"0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 127 0\" result=\"hardAlpha\"\/>\n      <feOffset dy=\"12\"\/>\n      <feGaussianBlur stdDeviation=\"6\"\/>\n      <feComposite in2=\"hardAlpha\" operator=\"out\"\/>\n     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resource-type-educational-materials\"><div class=\"gb-container gb-container-32674dd1 resource-loop-card\">\n<div class=\"gb-container gb-container-6abd4867 recourses-grid-card\"><a class=\"gb-container-link\" href=\"https:\/\/nephcure.org\/es\/school-accomodations\/\"><\/a>\n<div class=\"gb-container gb-container-98d50fd4 resource-terms-play post-card-thumbnail\">\n<figure class=\"gb-block-image gb-block-image-ca750b16\"><img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1709\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-scaled.jpg\" class=\"gb-image-ca750b16\" alt=\"\" srcset=\"https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-scaled.jpg 2560w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-300x200.jpg 300w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-1024x684.jpg 1024w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-768x513.jpg 768w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-1536x1025.jpg 1536w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-2048x1367.jpg 2048w, https:\/\/nephcure.org\/wp-content\/uploads\/2024\/04\/pexels-pavel-danilyuk-8763034-18x12.jpg 18w\" sizes=\"auto, (max-width: 2560px) 100vw, 2560px\" \/><\/figure>\n\n<div class=\"gb-container gb-container-55e46ef5 video-btn\">\n\n<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"149\" height=\"149\" viewBox=\"0 0 149 149\" fill=\"none\">\n  <g filter=\"url(#filter0_d_172_269)\">\n    <circle cx=\"74.5\" cy=\"62.5\" r=\"62.5\" fill=\"#F2F2F2\"\/>\n    <path class = \"resource-svg-icon\" d=\"M97.6826 60.7681C99.0159 61.5379 99.0159 63.4624 97.6826 64.2322L64.409 83.4428C63.0756 84.2126 61.409 83.2503 61.409 81.7107L61.409 43.2896C61.409 41.75 63.0756 40.7878 64.409 41.5576L97.6826 60.7681Z\" fill=\"#3AC2BA\"\/>\n  <\/g>\n  <defs>\n    <filter id=\"filter0_d_172_269\" x=\"0\" y=\"0\" width=\"149\" height=\"149\" filterUnits=\"userSpaceOnUse\" color-interpolation-filters=\"sRGB\">\n      <feFlood flood-opacity=\"0\" result=\"BackgroundImageFix\"\/>\n      <feColorMatrix in=\"SourceAlpha\" type=\"matrix\" values=\"0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 127 0\" result=\"hardAlpha\"\/>\n      <feOffset dy=\"12\"\/>\n      <feGaussianBlur stdDeviation=\"6\"\/>\n      <feComposite in2=\"hardAlpha\" operator=\"out\"\/>\n      <feColorMatrix type=\"matrix\" values=\"0 0 0 0 0.00364583 0 0 0 0 0.232447 0 0 0 0 0.291667 0 0 0 0.2 0\"\/>\n      <feBlend mode=\"normal\" in2=\"BackgroundImageFix\" result=\"effect1_dropShadow_172_269\"\/>\n      <feBlend mode=\"normal\" in=\"SourceGraphic\" in2=\"effect1_dropShadow_172_269\" result=\"shape\"\/>\n    <\/filter>\n  <\/defs>\n<\/svg>\n\n<\/div>\n<\/div><style>.post-28407 .recourses-grid-card .video-btn { display : none } <\/style>\n\n<span style=\"color: #3456e8 !important;\" class=\"resource-terms-label\">Educational Materials<\/span>\n\n<h4 class=\"gb-headline gb-headline-e0f58ce0 card-description gb-headline-text\" data-count=\"50\">School Accomodations<\/h4>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n<\/div>\n\n\n<a class=\"gb-button gb-button-00ad366d gb-button-text gb-button-primary button\" href=\"\/resources\/\">ALL RESOURCES<\/a>\n\n<\/div>\n<\/div>\n\n<div class=\"gb-container gb-container-c7966d90\">\n<div class=\"gb-container gb-container-4d8a4fe1\">\n\n<figure class=\"gb-block-image gb-block-image-9ab43e4d\"><img loading=\"lazy\" decoding=\"async\" width=\"54\" height=\"4\" class=\"gb-image gb-image-9ab43e4d\" src=\"https:\/\/nephcure.org\/wp-content\/uploads\/2023\/11\/heading-line.svg\" alt=\"Headline decoration line\" title=\"heading-line\"\/><\/figure>\n\n\n\n<h2 class=\"gb-headline gb-headline-afffeb92 gb-headline-text\">Patient Navigation Services<\/h2>\n\n\n\n<p class=\"gb-headline gb-headline-14d28465 gb-headline-text\">Did you know? NephCure provides specialized support in helping you navigate through healthcare challenges. 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